Re: confused and cfs - Penny

[Guest guest]

Hi, Penny,

Your post sounded so much like the way I felt for about 16 years

that I had to reply. Do some research on hypothyroidism and see if

that may be your problem. It took me 4 yrs. and 4 drs., but I

finally found one who recognized my symptoms as low thyroid

function. I've been taking Armour Thyroid (an old medication, but

in many ways better than Synthroid) for nearly a year and I haven't

felt this good since I don't remember when. I used to be depressed,

so tired I cried some mornings as I got out of bed to get my kids

ready for school, and had an ache under my right shoulder blade that

never went away. Depression, fatigue and muscle aches are only a

few of the symptoms of this disease, and it doesn't always show up

on the blood work. Mine didn't, that's why I had to go through so

many doctors. And one of the causes of low thyroid function is

stress, and we've all lived our lives with enough stress to kill

lesser humans (lol). So, I encourage you to check it out. You may

have a physical cause to feel so bad, but one that can be treated

effectively.

Hugs,

Joy

In ModOasis , " cmzgirl1231 " <cmzgirl1231@y...> wrote:

> Hi everyone,

>

> I haven't had a relationship with my nada for almost two years,

> having a nada free existence has been very pleasant for the most

> part she was leaving me alone for awhile and now she has decided

> that we should see each other and keeps sending me cards with what

> she considers kind words written on them.. Needless to say these

> cards are making me feel sick...I know I shouldn't open them but I

> do and then I throw them out right away. I told her a month ago

> that I did not want to resume a relationship with her and now I

view

> these cards as subtle harassment. I am not going to have her in

my

> life but she is making me physcically and emotionally ill by

> contacting me.

> I too believe I must have cfs even though i've never been formally

> diagnosed...as far back as I can remember I have been tired all

the

> time even after going to bed at 7p.m and getting up 12 or 13 hours

> later. I believe that when we end our relationship with nada we

do

> go through a period of mourning....I feel sad lately and am having

> big time mood swings. Is joint pain also a symptom of cfs? I

have

> that all the time too. I thought I did good " surviving " my crazy

> upbringing but now I'm not sure, depression, exhaution and

> achiness....hmmm doesn't sound so good does it. I need to snap

out

> of this sadness....I really wish nada would fall off the face of

the

> earth and stop contacting me via mail.

> I know this post is all over the place, thanks for listening...

>

> Penny

[Guest guest]

> > I too believe I must have cfs even though i've never been

formally

> > diagnosed...as far back as I can remember I have been tired all

> the

> > time even after going to bed at 7p.m and getting up 12 or 13

hours

> > later. I believe that when we end our relationship with nada we

> do

> > go through a period of mourning....I feel sad lately and am

having

> > big time mood swings. Is joint pain also a symptom of cfs?

_-----------------------------------------------------------------

Hi Penny -- I haven't read the msgs prior to this one but wanted to

clarify something. Being " tired all the time " is not a criteria for

having cfs -- that's the public misunderstanding brought on by the

dopey name. There are about 8 other things which must be happening

concurrently to fit the description. " Sudden onset " flu like

symptoms which do not resolve after 6 months, various weird

infections, low grade fevers, night sweats, photophobia, swollen

lymph glands, strep-like sore throats,cognitive problems such as

severe short term memory loss (I couldn't remember where I lived or

how to drive a car..) and a host of other cognitive problems....Cfs

is probably not one disease but a group of inflammatory/auto-immune

type conditions that haven't been figured out yet. Joint pain is one

symptom of Fibro Myalgia which is different from cfs but often

lumped in with it. When in doubt see a specialist for diagnosis.

Things have changed a lot in the last 10 years a lot more doctors

recognize the symptoms and the CDC website is actually very

informative now -- so that might be a good place to start if you

suspect cfs.

I struggled with it for years that's how I know about it -- was a

research subject in a federal gov't center investigating it.

~daphne