Re: Frustrated

April 24, 2003

Hania, I think it is good for you to vent. At least your getting it out insead

of letting it eat your insides out.

Keep venting

frustrated

I had a dream last night that I was validated about nada by the FOO. When I

woke up I started thinking about nada's recent letter (OK big mistake, I know).

I was molested as a child. The FOO knew it. So, nada says in her letter " Well

if you had just told me, I never would have let it happen " OK, I was a CHILD,

she was supposed to be the parent. The abuse happened in the same house where

she was getting drunk. Hello, what is wrong with this picture!!!! I mean, I

have kids the same age I was when it happened. I know when anything is

bothering them because I take the time to be with them and get to know them.

Sorry, I just had to vent. Those thoughts were eating me alive.

Hania

March 3, 2004

She is currently on Seroquel, Aricept, Effexor, Remeron and

Neurontin. The Dr. wants to discontinue the Neurontin and start

Depakote. She wants to try the Depakote and then if that doesn't

improve things she talked about admitting Mom so she can adjust the

meds while observing her.

Thanks for your response, I felt really desperate yesterday...a

little better today. I'm so glad this group is available!

> Hi ,

>

> Is your mom taking any PD meds?

> Courage

>

> Frustrated

>

> >I apologize in advance for venting my frustrations and would

> >appreciate any insight. My husband and I are about at our wit's

> >end. My husband stays with her during the day and he just

called.

> >Mom has fallen 3 times today but, thank God, has not hurt

herself.

> >She is very weak and having trouble walking, but will not lie down

to

> >rest and insists on walking around. We are afraid she will fall

and

> >really hurt herself. She is being very stubborn and refuses to

> >listen to us. She is also having trouble finding the right words

and

> >slurring her speech at times. I am not sure what to do except

call

> >the Dr. again. We have adjusted her meds a number of times

recently

> >and nothing seems to work.

> >

> >I am so frustrated and don't know what to do. I guess I need to

call

> >the Dr. yet again. Thanks for " listening " .

> >

> >Welcome to LBDcaregivers.

> >

March 3, 2004

My mothers hallucinations got worse whenever she went to the hospital. Her

doctor said this was normal since she was out of her normal surroundings.

This also happened when we would take her to our homes. So I imagine that

would be the same when you first put them in a nursing home.

I was fortunate in many ways that we were able to keep my mother home. Plus

the fact that dad would have had a much harder time functioning. Now that

she has passed he is having to adjust but I think it would have been more

stressful for all of us to have had to deal with mother and dad at the same

time.

M

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Re: Frustrated

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>

>,

>Just a laymans word of caution. When Dad was in the hospital with

>seizures, the nurses/doctors were unable to tell what " normal "

>behavior was. I was more comfortable in seeing his behaviors at home

>rather than the hospital. The hospital stressed him out so much

>that " normal " didn't exist when he was there. We were better able to

>discern what meds were effective in a stable home environment. Then

>at least you have fewer variables.

>Just a thought.

>Lynn

>

> > > Yes - call the Doc again!

> > > My dad had hip protectors to wear because he fell so frequently.

> > > He had very low blood pressure and was extremely dizzy and

>confused

> > but he

> > > too would be pestering to walk about. He was so agitated he

> > couldn't rest -

> > > it was as if he was terrified of sitting or lying down - as

>if 'the

> > beast'

> > > would capture him if he stayed still.

> > > He was like an animal being stalked - it was very distressing.

> > > My heart goes out to you - it's horrid!

> > > It is so exhausting too.

> > > You must get the docs to listen and respond - and I know what a

> > battle that

> > > can be!!!

> > > Sally

>

_________________________________________________________________

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May 22, 2010

Was your daughter involved in an Early Intervention program before she turned 4?

They have a transition program where they help you set up a meeting with the

public school to see if your child qualifies for a special needs preschool

classroom. Even if you didn't have EI, your town's school department is

responsible for servicing your daughter with any therapy she may need.

Best of luck!

Traci

>

> So I found an adorable private school that seamed perfect for my 4 year old

daughter and they said they would except her , but I got a call today saying

they were to nervous to take her because of her epilepsy and felt they werent

able to meet her needs. Before they had just said ok it with her doctor. My

daughters doctor said she would be fine there ( the school does not have a

nurse) The doctor said she only has 1 to 2 seizures a month ( sometimes not at

all) and since she was only going 3 hours a day that it wouldnt be a problem.

Well now the school said NO and its soo frustrating I loved that school. The

public school in my area is horrible. and this isnt the first time last year my

sister and I found a beautiful house but it slipped out that my daughter had

epilepsy and they did not want us to rent after they found that out ! Errrr why

does it have to be like that . Now I have to call a bunch of schools and hope I

can find one for her within my

> budget that I like that will also take her. Sorry really needed to vent..

>

> Roxanne Bartlett mother to serinity 3 years ..

>

> (san antonio,tx)

>

May 22, 2010

No she isnt involved in early intervention . They actually are just now about

to start an evaluation for PT and speech they have never notice any delays

until now, and its only a slight delay. so I am very happy she is getting that

... and the public school in my area is horrible I really did not like it when I

went down there. I found 3 private schools that said they would take even with

her epilepsy so I am gonna go see them on monday ! Very hopeful that I like

them and they except her..

________________________________

To: polymicrogyria

Sent: Sat, May 22, 2010 6:52:53 PM

Subject: Re: frustrated