Re: Namenda & My Gram

[Guest guest]

Wolfie:

I'm praying the Namenda is doing its trick. It certainly sounds as

if your Gram is faring better cognitively. Hey, anything that works

and restores our LOs back to us - even partially - is a very good

thing indeed.

Keeping my fingers and toes crossed for her (and for Bo too!!)

Abby

[Guest guest]

Wolfie, I am so happy that the Namenda seems to be helping. I will keep

this in mind for the time ahead with mom.

Kath

Namenda & My Gram

> Hello my friends! Thought you might be interested in a little

> update. Last Monday when I went to see my Gram (she's in the NH),

> she was the absolute worst that I have ever seen her. Usually, I can

> pick out some of the words that she says and put them back together

> and make sense of what she is talking about. Monday, I could not. I

> was at a loss as I sat there looking at her and thinking 'You only

> look like my beloved Grandma.' I spent some time doing her

> fingernails -- she usually loves that, but she didn't even know what

> I was doing and was rather puzzled. She had one little glimmer of

> reality when she made a complete sentence and said, " Honey, I am to

> the spot where I can't think anymore. " And we both cried and I

> hugged her. It was awful, then she slipped back and away from me.

> It shredded my heart in a billion pieces and I left that day feeling

> hollow and scared for the future.

>

> Tuesday morning she started taking Namenda. Some of you responded to

> my SOS about information regarding that drug. She is currently on

> 5mg in the morning. I do not know if she is just finally acclimating

> to the NH or if the Namenda is already working -- but whatever it is,

> Praise God! Thursday, she was better -- making more sense. And

> Friday, she was magnificant -- (for LBD anyway). She laughed and

> joked with us. Didn't talk to the hallucinations. Asked about an

> event that took place nearly 2 weeks ago -- 'bout fell off my chair

> with that one. I have noticed that she can now differentiate between

> yesterday & today -- the other days are still a mystery to her, but

> we will take what we can get. She is using far less 'near' words,

> finding the ones she wants to use instead. I can see that she has a

> long process time -- but before she had NO process time. I will keep

> a careful watch and keep you all informed about her progress. Thank

> you all for your kind words, information & community.

>

> Peace,

> Wolfie

>

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Yes, taking Sinemet definitely increased the hallucinations that my mother

had. Sadly, her shaking is bothering her so much I have increased her

morning dosage of Sinemet to a whole pill from a half and am in the " wait

and see " phase.

Kath

Re: Namenda & My Gram

>

>

> Sher,

> Just had my dad to the neurologist a few weeks ago and he started

> him on Namenda. He is also on Exalon. The neurologist said he

> never uses Namenda alone, always with Exalon or Aricept. He has had

> better success using it with one of these other drugs. Thought that

> was interesting.

> Donna L

>

>

>

>

> > It's great to read about bits of success and that the Namenda is

> > working for your Gram. I asked the Dr. about it as a Nurse friend

> had

> > told me about it. Is is sometimes used along with Aricept? My Mom

> is

> > in the early stages of LBD and Doc said maybe later?? Glad you can

> > have many more good days.. God Bless, Sher

>

>

>

> Welcome to LBDcaregivers.

>

>

>

>

>

[Guest guest]

This sounds similar to my mother's response. She has good days and

not-so-good days but the addition of Namenda has definitely improved

her life quality. I'm so pleased for your Gram - and you! Take Care -

Deb

> Hello my friends! Thought you might be interested in a little

> update. Last Monday when I went to see my Gram (she's in the NH),

> she was the absolute worst that I have ever seen her. Usually, I

can

> pick out some of the words that she says and put them back together

> and make sense of what she is talking about. Monday, I could not.

I

> was at a loss as I sat there looking at her and thinking 'You only

> look like my beloved Grandma.' I spent some time doing her

> fingernails -- she usually loves that, but she didn't even know

what

> I was doing and was rather puzzled. She had one little glimmer of

> reality when she made a complete sentence and said, " Honey, I am to

> the spot where I can't think anymore. " And we both cried and I

> hugged her. It was awful, then she slipped back and away from me.

> It shredded my heart in a billion pieces and I left that day

feeling

> hollow and scared for the future.

>

> Tuesday morning she started taking Namenda. Some of you responded

to

> my SOS about information regarding that drug. She is currently on

> 5mg in the morning. I do not know if she is just finally

acclimating

> to the NH or if the Namenda is already working -- but whatever it

is,

> Praise God! Thursday, she was better -- making more sense. And

> Friday, she was magnificant -- (for LBD anyway). She laughed and

> joked with us. Didn't talk to the hallucinations. Asked about an

> event that took place nearly 2 weeks ago -- 'bout fell off my chair

> with that one. I have noticed that she can now differentiate

between

> yesterday & today -- the other days are still a mystery to her, but

> we will take what we can get. She is using far less 'near' words,

> finding the ones she wants to use instead. I can see that she has

a

> long process time -- but before she had NO process time. I will

keep

> a careful watch and keep you all informed about her progress.

Thank

> you all for your kind words, information & community.

>

> Peace,

> Wolfie