Guest guest Posted March 17, 2007 Report Share Posted March 17, 2007 Hi Jan. Thanks. I appreciate that and kow you have said that before. I just don't think I would get anywhere if I filed a complaint against him. What I am thinking of doing is writing him a letter expressing my great dissatisfaction with him, which is for me and not for his sake. It helps to know if other people had negative experiences with him so that's why I asked on this forum. I will put the into on the database . . Leann -----Original Message-----From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ]On Behalf Of Jan Sent: Friday, March 16, 2007 7:42 PMTo: Texas_Thyroid_Groups Subject: Re: Re: introduction If you do plan to file a complaint, sue or take any legal action, I would suggest that you refrain from so much as mentioning his name on any public board such as this one. You could be slapped with some kind of countersuit. The database is anonymous, however, and not even the moderators can find out who filled in a particular doc. . . . . rocky_sg2 <austinroxMyWay> wrote: What is that man's problem? Has anyone here filed a complaint against him? I am about to start down that road . . . .LeannHave no idea if anyone has complained. I was a bit leery of seeing him, or one of his new associates, as he has become very upscale these days, but he came highly recommended, so ......As someone who worked with docs, suspicions were always raised when things seemed just too too posh. More interested in income than results much of the time.Won't say that's what's going on here as I have nothing to back up any such idea. Just speaking in generalities.Rocky Don't pick lemons.See all the new 2007 cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 Welcome to Affirmations!!! We are happy to have you hear with us, and hope that maybe you can impart some tips for the rest of us as time goes on! Thanks for your comments about good nutrition and a positive outlook! We talk here about a positive outlook, but I'm afraid that we haven't mentioned good nutrition but only a handful of times. And I know that good nutrition is extremely helpful! Maybe you can contribute more info on that topic as time goes on, ...that is, if you wouldn't mind! I know that I could use your insight! Thanks and again welcome! Hugs, PJ Wood wrote: Hello Everyone, I recently joined the list....I'm , and I joined the list to learn more about using affirmations in stress management. I'm a stress management consultant with a wholly holistic practice. My favorite tools for stress relief are qigong, meditation, and mind power. I very strongly believe in the power of the mind to effect healing of all kinds... " mind over matter " is very real. :-) Here is a little stress management tip: The two most important things I see people overlook when they seek stress relief are good nutrition and a positive outlook. Practitioner Member AHHA: American Holistic Health Association Practitioner Member Holistic Wellness: Your Virtual Wellness Center Associate Editor " Qi Dao " newsletter by World Institute for Self Healing " Living Stress-Free ~ Naturally! " blog Read great articles on stress management and relaxation techniques! http://bewellwithmichelle.blogspot.com/ " Spirits In Harmony " blog Nourishment for the soul http://spiritsinharmony.blogspot.com/ --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 Hello Mike and welcome to affirmations!!! It sounds like you have some very noble goals and a wonderful family! Personally, " Balance " is something that I know is very important these days, but also something that alludes me much of the time. I'm kinda like the 3-legged stool that is spoken of in A.A. I am out of balance frequently! The only thing I can suggest to you right off the bat is to take things one day at a time, one step at a time. When striving to add goals like regular exercise, etc. into one's life, strive for improvement at first, and don't get too discouraged or down on yourself when things aren't perfect, or when you still aren't where you want to be. Sometimes, setting tasks small and then working up to larger tasks is just what the doctor ordered! In other words, start exercising perhaps twice a week, for several weeks, but insist on exercising twice every week. Any day or time that one can squeeze it into your week. Once you've succeeded at that for awhile, then increase it to 3 times a week! Etc. etc. Remember to love yourself even when you fail, or when you've tried and other time demands have encroached on your schedule or routine. Sometimes, loving oneself and accepting oneself " just as you currently are " can be a big boost to overcoming and setting in new schedules and routines! We are here to give you encouragement on your way. So don't hesitate to bring up these topics as time goes on, so we can root for you & your goals! Again welcome and hope we can all join you in improving all of our lives as time goes on! Hugs, PJ group owner/moderator Mike wrote: Hi everyone, I think stress is starting to impact my life.I'm feeling like I'm paralyzed and not moving forward with many things. I'm a 47 year old father of two children. Sheila is two and a half and Liam is six months. I am a recovering alcoholic (11 years sober), diabetic, asthmatic, and a bit overweight. I have a wonderful wife, Liz. I work full-time as a special needs educator and am working on a doctorate in Urban Education. I'm feeling overwhelmed in terms of fitting in exercise, medication, meditation, studying, work preparation, AA meetings, family time, and some down time for myself. I want to be the best dad, the best student, the best teacher, in awesome physical shape, and spiritually fit to address my emotional and intellectual needs. I feel like I'm about 1/5 of the person I should be. I'm putting things off and being grouchy at home. This can't continue. I think this group can help. I hope so. Mike from Boston http://health.groups.yahoo.com/group/AffirmationstoDe-Stress A positive thinking, positive affirmations support group, that discusses ways to cope with the stresses of daily life. Come aboard! PJ and Gang Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Thanks so much PJ, I appreciate your thoughts. The one day at a time thing is tough, but that's the way it must be right now. I always think my life must be scheduled a month in advance. No more - I hope! Mike -- In AffirmationstoDe-Stress , PJ wrote: > > Hello Mike and welcome to affirmations!!! It sounds like you have some very noble goals and a wonderful family! Personally, " Balance " is something that I know is very important these days, but also something that alludes me much of the time. I'm kinda like the 3-legged stool that is spoken of in A.A. I am out of balance frequently! > > The only thing I can suggest to you right off the bat is to take things one day at a time, one step at a time. When striving to add goals like regular exercise, etc. into one's life, strive for improvement at first, and don't get too discouraged or down on yourself when things aren't perfect, or when you still aren't where you want to be. Sometimes, setting tasks small and then working up to larger tasks is just what the doctor ordered! In other words, start exercising perhaps twice a week, for several weeks, but insist on exercising twice every week. Any day or time that one can squeeze it into your week. Once you've succeeded at that for awhile, then increase it to 3 times a week! Etc. etc. > > Remember to love yourself even when you fail, or when you've tried and other time demands have encroached on your schedule or routine. Sometimes, loving oneself and accepting oneself " just as you currently are " can be a big boost to overcoming and setting in new schedules and routines! We are here to give you encouragement on your way. So don't hesitate to bring up these topics as time goes on, so we can root for you & your goals! > > Again welcome and hope we can all join you in improving all of our lives as time goes on! Hugs, PJ group owner/moderator > > Mike wrote: > Hi everyone, > > I think stress is starting to impact my life.I'm feeling like I'm > paralyzed and not moving forward with many things. I'm a 47 year > old father of two children. Sheila is two and a half and Liam is > six months. I am a recovering alcoholic (11 years sober), diabetic, > asthmatic, and a bit overweight. I have a wonderful wife, Liz. I > work full-time as a special needs educator and am working on a > doctorate in Urban Education. > > I'm feeling overwhelmed in terms of fitting in exercise, > medication, meditation, studying, work preparation, AA meetings, > family time, and some down time for myself. I want to be the best > dad, the best student, the best teacher, in awesome physical shape, > and spiritually fit to address my emotional and intellectual needs. > I feel like I'm about 1/5 of the person I should be. I'm putting > things off and being grouchy at home. This can't continue. I think > this group can help. I hope so. > > Mike from Boston > > > > > > > > http://health.groups.yahoo.com/group/AffirmationstoDe-Stress > > A positive thinking, positive affirmations support group, that discusses ways to cope with the stresses of daily life. Come aboard! PJ and Gang > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2007 Report Share Posted May 7, 2007 , Welcome to the group. I'm sorry Still's has brought you here but you have found a great place for information as well as caring people. Chris junipurr8 wrote: Hi, My name is . I live in central NY with my husband of ten years () and our cat (Junipurr). My birthday is 4/20/73. I was diagnosed with Still's in February 2007. I'm not sure if it's relevant to the disease, but I was born two months early and weighed just two pounds. I believe I've had Still's since I was a toddler. Between the ages of 2 and 3, I suffered from high fevers that caused convulsions. (My parents were told more than once that I wouldn't live.) When I was 5, I was diagnosed with JRA. I took Ascriptin - a high dose of aspirin every day. I was also on Phenobarbitol and Dilantin. I don't recall much about my JRA, just not being able to lift my head during flares and not being able to play in gym class. I went into remission when I was 10. When I was 12, I had the flu and took aspirin. When the flu resolved, I contracted hepatitis and was in the hospital due to dehydration. The doctors weren't sure it was hepatitis and I was diagnosed with a bleeding ulcer. I also had the flu when I was 17 and then had hepatitis. It was diagnosed correctly and I haven't taken aspirin since. At the age of 25 I started having back and arm pain. The cause seemed to be a poorly designed work station. (I was working as a medical transcriptionist.) Not much was done to help resolve the pain. I moved the next year and did okay (just taking ibuprofen and using ice and heat) for a while. In 2000, I had a raw spot on my scalp. The hair fell out. I saw a dermatologist who peformed a biopsy. He was concerned it might be lupus erythematosis. The biopsy came back negative. That same year, I started having a lot of neck and arm pain. I saw chiropractors and physical therapists and ended up working part- time. My employer (a law firm) decided they needed someone full-time and terminated my employment. I went to a pain clinic, received epidural injections in my neck/spine (they didn't help at all), was on bed-rest for a month, and eventually improved. I started working part-time in late 2000, and was again employed full-time in spring of 2001. (My rheumy says the arthritic changes and degeneration in my neck are from something other than a bad work station.) I was diagnosed with depression and anxiety in 2002 and started taking medication. I don't believe I had a rash (other than the spot on my scalp) until around 2004. I saw my PCP for that and was given steroids and a topical ointment. In October 2005 I had a lot of pain in my legs. I went to my PCP and said I was concerned about RA. Bloodwork was done and my RA factor came back negative. It was suggested that I might be stressed and should just relax. I had pain off and on and started getting regular rashes. As long as the rash wasn't too bad, I simply applied the topical ointment. I had pain frequently, but figured it was in my head. In December 2006 I started having significant pain in my left hip. I went to the doctor thinking it was a pulled muscle. I just took ibuprofen and applied ice and heat. When the pain got worse, I noticed a nodule where the pain originated. I went back to the doctor and bloodwork was done. Again, the RA factor was negative. The doctor, at my urging, contacted the local rheumatologist. I was in quite a bit of pain and had missed some work. I saw the rheumatologist in early February and he immediately diagnosed me with Still's. (I was even able to take him a photo of my most recent rash.) My father was diagnosed with RA about a year ago. (It's not Still's, but doesn't present like " regular " RA.) While I hate what we are both going through, it's very helpful to have someone to talk with. I think I am just ending a flare. For the first time that I've noticed in years, I had a fever. The flare started with a rash - one of the worst I've had. Then the pain started and I had the fever - but just for one day. I hurt through my entire body. All of my joints were effected and I found it difficult to chew, breathe deeply, and I had a massive headache. I have a bit more energy today and much less pain. I am currently taking: Welbutrin, Klonopin (as needed), Methotrexate, Folic Acid, Hydrocodone (as needed), Fluocinonide (topical treatment for scalp), Triamcinolone (ointment for skin), and I just ended a Medrol dose pack for the rash. Like many of you, I apologize for such a lengthy intro. I'm not sure what part of my history might help other people - or what you might be able to suggest based on what I've been through. I'm grateful to have found this site and have already learned a lot. Thank you, --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2007 Report Share Posted June 17, 2007 Welcome ! Welcome to the world of idiot docs and those who have to deal with them. I wish I had some advice about your pain.it depends on what type I guess. I get a lot of relief for muscle/joint/bone pain from a hot Epsom salt bath.but I have to cool it before I get out or I will pass out! I hope the new rheumy is better. Take Care, Aylwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2007 Report Share Posted July 30, 2007 Hi Kellianne and welcome! YES, we do what we can and that seems to vary from person to person. If you find something that works girl, stick with it! I'm not the best on alternative therapies, but you will find TONS of info here along with much love and support! This is a great group of people here, all chuggin along best we can........... Hang in there and again, welcome to our little family!! STL Jane kellianne wrote: hello, I'm a new member and an very excited that there is this group out there for those of us who suffer from this wide range of conditions. at this time, i am under the care of a rhumatoidologist and my pcp. what bothers me is the amount of medications i am to take to deal with the symptoms of FM. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2007 Report Share Posted August 1, 2007 Hi Kellianne, I just wanted to welcome you and give you my two cents worth.This is an amazing group for info and compassion. I have been a part of many support groups, both online and live,and I've found this one the most useful and helpful.I've run two groups for people in chronic pain/CFS/fibromyalgia. I've done countless hours of research,tried every treatment/therapy/supplement going-at least it feels like that! After all my efforts and trials, I had to give in to the system, for lack of funds. For the most part,our medical system treats the symptoms and alot of medications are specifically for particular symptoms. Don't get me wrong. I'm thankful there are such medications to help or I wouldn't have a life-I'd be all bedridden with fatigue and pain! I am even more thankful that there is so much research and interest in our diseases, so hopefully,one day, they will find something to cure us. In the meantime, everyone seems to go through the trial and error gambit hoping to be the one that finds something to reverse their illness.That search is called hope, which we all need to keep us going. Though I don't take alot of supplements and do take alot of drugs ,now, every once in a while, I'll try something new on the market. For the mostpart, they might help briefly but cannot sustain their effect. They often average between $100-$150,or more, for a monthly supply and you may need 2 or more of these to have any effect. When I was diagnosed I was told exercise and sleep were the only things that really helped, and I've found that is quite true- when I'm able to exercise! So,after all that, I guess I'm just saying, we each have our own journeys and it doesn't much matter what have helped others because you just have to try things for yourself! > > hello, I'm a new member and an very excited that there is this group > out there for those of us who suffer from this wide range of > conditions. at this time, i am under the care of a rhumatoidologist and > my pcp. what bothers me is the amount of medications i am to take to > deal with the symptoms of FM. to me this feels like i am not dealing > with the main issue but just covering it up by caring for the by > product. what i am looking for is a more whole body/ mind care for my > condition. if there are any ideas or information that anyone is willing > to share about this concept, i would really like to hear from them. so > far i have found that cutting out sugar, chocolate and caffine are the > basis of a theraputic diet for FM. (this caffine based life form is > really sad she has to give that up)....oh well we do what we need to do > to gain control of our lives don't we? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 Hi Everyone, PJ thank you for allowing me to join this group. I " m June, and am really looking forward to participating in the group. I like Louise Hay's books and Sondra Ray's also. They are big on positive thinking and affirmations. I will write later but I wanted y'all to know a little about me. Hugs June --------------------------------- Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 Hello June! Welcome to affirmations! I hadn't heard about Sondra Ray -- could you share something by her in the group in the future?! We always like to hear about other authors who are positive! Thanks!! Hugs, PJ june kenner wrote: Hi Everyone, PJ thank you for allowing me to join this group. I " m June, and am really looking forward to participating in the group. I like Louise Hay's books and Sondra Ray's also. They are big on positive thinking and affirmations. I will write later but I wanted y'all to know a little about me. Hugs June --------------------------------- Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Hi New , Welcome! Sure sounds like you have your hands full! I can’t help with the disability benefits as I am a Canuck, but I will say that the thing with family and friends is a hard and common dilemma. I think that sometimes they just don’t WANT to understand, especially if you are the caregiver, the one everyone turns to. It can be very threatening to upset the balance of who helps who. You can print off a page of explanation to hand out from any good website, but if they are in denial, they will not even read it. Bottom line is that you respect yourself and not take crap on from other’s attitudes. And let them know it! If you had MS or Cancer they would have to get it, even though those diseases mostly are not visible either. There has been a lot of bad press for people with this disease, and the general public still does not see it as something serious. Why do they think you are getting all those care hours and disability supports??? Inevitably some friends who refuse to understand will fall away. The ones left are your TRUE friends. A group like this is a big help I have found, in that we really DO understand! And struggle with the same things, more or less, that you do.! Take Care, Aylwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Thanks for the greeting Aylwin! I appreciate your comments too :-) and know you are right about the family and friends being used to me being the strong one/caregiver/problem solver, etc and they are angry with me....my son sat and told a CF researcher Sat that I am faking it and just lazy and crazy :-) Thanks again for your response :-) > > Hi New , Welcome! Sure sounds like you have your hands full! I can't > help with the disability benefits as I am a Canuck, but I will say that the > thing with family and friends is a hard and common dilemma. I think that > sometimes they just don't WANT to understand, especially if you are the > caregiver, the one everyone turns to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 -I really hate to say this but maybe it's high time when dealing with the public, don't tell them what you have and then have to explain it in order to get what you desire without all that exhausted banter. Just tell them you have cancer! I'm not supersticious and after talking to some survivors of Cancer saying they would rather have it again than to have this...it could be a blessing. It's frustrating trying to explain and it feels like your always having to defend yourself. That's why I have really drawn into my space more when normally I am or have been out there helping others and living a life! Oh Well, I'm off my box now. Huggies! -- In CFAlliance , " J. Catchpole " wrote: > > Hi New , Welcome! Sure sounds like you have your hands full! I can't > help with the disability benefits as I am a Canuck, but I will say that the > thing with family and friends is a hard and common dilemma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 -I really hate to say this but maybe it's high time when dealing with the public, don't tell them what you have and then have to explain it in order to get what you desire without all that exhausted banter. Just tell them you have cancer! I'm not supersticious and after talking to some survivors of Cancer saying they would rather have it again than to have this...it could be a blessing. It's frustrating trying to explain and it feels like your always having to defend yourself. That's why I have really drawn into my space more when normally I am or have been out there helping others and living a life! Oh Well, I'm off my box now. Huggies! -- In CFAlliance , " J. Catchpole " wrote: > > Hi New , Welcome! Sure sounds like you have your hands full! I can't > help with the disability benefits as I am a Canuck, but I will say that the > thing with family and friends is a hard and common dilemma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Welcome , from a Missouri Neighbor! Geez, you have quite a busy life going on, I don't know how you do it! I am 44, married, with 3 kids and it gets to be TOO much some days..............now onto the $6 Million dollar question " how do you get family/friends to understand? " ...........with great patience and perseverance! I've had CFS/ME and FM for 8 years now and I think my husband has FINALLY really gotten it. I lost my job almost 2 years ago and until he spoke directly to my doctor just after I lost my job, he didn't really believe. I guess he thought I was worthy with my performance. It just added such a strain to our marriage too, but we've FINALLY gotten over that hump. He is supportive, my kids are quietly supportive mostly. I have friends who have stuck with me and are understanding, and I have others who get somewhat miffed when I miss a party, a date, an appointment of any sort. They dont' really understand and probably never will. That is where my patience also comes in - as far as I'm concerned, it is THEIR loss, to not try to continue our friendship, to make an allowance here and there. I no longer have the energy or strength to waste on concerning myself with worry over these lost relationships - I'd rather spend what little I have on caring for and sharing with the ones who stick with me! I think where family is concerned, they are finally getting it too - after 10 years of hosting all family functions, working full time and ALL the other extra-curricular activities that come with raising 3 very active kids + volunteer work - they could see the changes in me. I wasn't the ball of energy going 12 different directions anymore. My family is somewhat tight lipped, so I may not have heard everything you are hearing, BUT they do get it now. They don't expect so much from me anymore and better yet, I don't expect so much from MYSELF anymore! Well, I can't really help on the SSDI YET, I just had my hearing with the ALJ on Sept 12 and am waiting my 6 - 8 weeks for his decision. I'll let you know when it happens! I hope you find as many good friends and supportive shoulders as I have here. This is an amazing group and I don't know where I'd be without them! Good luck to you and take good care now, ok? STL Jane (St. Louis Jane) csralls1 wrote: Hello! I would like to introduce myself while I have a couple of minutes before my twin grandsons get going for the day. I am 48 years old, single/divorced/widowed female living with CFS/FM and other ailments in subsidized housing with my 2 sons and 3 grandchildren. I have many questions for the group such as, for those who recieve SSI, how long did it take you to get it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Welcome , from a Missouri Neighbor! Geez, you have quite a busy life going on, I don't know how you do it! I am 44, married, with 3 kids and it gets to be TOO much some days..............now onto the $6 Million dollar question " how do you get family/friends to understand? " ...........with great patience and perseverance! I've had CFS/ME and FM for 8 years now and I think my husband has FINALLY really gotten it. I lost my job almost 2 years ago and until he spoke directly to my doctor just after I lost my job, he didn't really believe. I guess he thought I was worthy with my performance. It just added such a strain to our marriage too, but we've FINALLY gotten over that hump. He is supportive, my kids are quietly supportive mostly. I have friends who have stuck with me and are understanding, and I have others who get somewhat miffed when I miss a party, a date, an appointment of any sort. They dont' really understand and probably never will. That is where my patience also comes in - as far as I'm concerned, it is THEIR loss, to not try to continue our friendship, to make an allowance here and there. I no longer have the energy or strength to waste on concerning myself with worry over these lost relationships - I'd rather spend what little I have on caring for and sharing with the ones who stick with me! I think where family is concerned, they are finally getting it too - after 10 years of hosting all family functions, working full time and ALL the other extra-curricular activities that come with raising 3 very active kids + volunteer work - they could see the changes in me. I wasn't the ball of energy going 12 different directions anymore. My family is somewhat tight lipped, so I may not have heard everything you are hearing, BUT they do get it now. They don't expect so much from me anymore and better yet, I don't expect so much from MYSELF anymore! Well, I can't really help on the SSDI YET, I just had my hearing with the ALJ on Sept 12 and am waiting my 6 - 8 weeks for his decision. I'll let you know when it happens! I hope you find as many good friends and supportive shoulders as I have here. This is an amazing group and I don't know where I'd be without them! Good luck to you and take good care now, ok? STL Jane (St. Louis Jane) csralls1 wrote: Hello! I would like to introduce myself while I have a couple of minutes before my twin grandsons get going for the day. I am 48 years old, single/divorced/widowed female living with CFS/FM and other ailments in subsidized housing with my 2 sons and 3 grandchildren. I have many questions for the group such as, for those who recieve SSI, how long did it take you to get it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 ---Hello and Welcome to the group " New " ! I hope you find this place to be a valuable source of comfort, information and making some darned good friends in the process! There isn't anything that you are going through that we can't understand or try to at least! We will have to do something with our names, ummm you gotta nick or sumthin? Huggs! In CFAlliance , " csralls1 " wrote: > > Thanks for the greeting Aylwin! I appreciate your comments too :-) > and know you are right about the family and friends being used to me > being the strong one/caregiver/problem solver, etc and they are angry > with me....my son sat and told a CF researcher Sat that I am faking > it and just lazy and crazy :-) Thanks again for your response :-) > > > > > > > Hi New , Welcome! Sure sounds like you have your hands full! > I can't > > help with the disability benefits as I am a Canuck, but I will say > that the > > thing with family and friends is a hard and common dilemma. I think > that > > sometimes they just don't WANT to understand, especially if you are > the > > caregiver, the one everyone turns to. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 ---Hello and Welcome to the group " New " ! I hope you find this place to be a valuable source of comfort, information and making some darned good friends in the process! There isn't anything that you are going through that we can't understand or try to at least! We will have to do something with our names, ummm you gotta nick or sumthin? Huggs! In CFAlliance , " csralls1 " wrote: > > Thanks for the greeting Aylwin! I appreciate your comments too :-) > and know you are right about the family and friends being used to me > being the strong one/caregiver/problem solver, etc and they are angry > with me....my son sat and told a CF researcher Sat that I am faking > it and just lazy and crazy :-) Thanks again for your response :-) > > > > > > > Hi New , Welcome! Sure sounds like you have your hands full! > I can't > > help with the disability benefits as I am a Canuck, but I will say > that the > > thing with family and friends is a hard and common dilemma. I think > that > > sometimes they just don't WANT to understand, especially if you are > the > > caregiver, the one everyone turns to. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 I have given up trying to explain or defend myself. Those that care enough to really want to learn are worth the energy. The rest I tell I am disabled and chronically ill. They are a drain to what precious energy I have. Take care of you. Big gentle huggles. Love ya, Di wrote: > -I really hate to say this but maybe it's high time when dealing with > the public, don't tell them what you have and then have to explain it > in order to get what you desire without all that exhausted banter. > Just tell them you have cancer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 I have given up trying to explain or defend myself. Those that care enough to really want to learn are worth the energy. The rest I tell I am disabled and chronically ill. They are a drain to what precious energy I have. Take care of you. Big gentle huggles. Love ya, Di wrote: > -I really hate to say this but maybe it's high time when dealing with > the public, don't tell them what you have and then have to explain it > in order to get what you desire without all that exhausted banter. > Just tell them you have cancer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2007 Report Share Posted September 27, 2007 I agree, , we have two s, two s, and two Janes, maybe more. I put S. on my posts now, because it gets too confusing as to who is saying what. As long as our last names don't start with the same letter, it should work ok. The Janes have a good way to do it too. Welcome, by the way, to all the new people, I usually don't post much. I glean information as much as possible and contribute if I have something to say, but the others have BTDT so much longer than I have with CFS/FM that I feel like I'm still new. S. > > ---Hello and Welcome to the group " New " ! > > I hope you find this place to be a valuable source of comfort, > information and making some darned good friends in the process! > There isn't anything that you are going through that we can't > understand or try to at least! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 By the way, I 've been wondering about " Jane, the one with the hound " .......are you still out there? I haven't seen anything from her in quite a while? I hope you're ok? STL Jane Sikes wrote: I agree, , we have two s, two s, and two Janes, maybe more. I put S. on my posts now, because it gets too confusing as to who is saying what. As long as our last names don't start with the same letter, it should work ok. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 By the way, I 've been wondering about " Jane, the one with the hound " .......are you still out there? I haven't seen anything from her in quite a while? I hope you're ok? STL Jane Sikes wrote: I agree, , we have two s, two s, and two Janes, maybe more. I put S. on my posts now, because it gets too confusing as to who is saying what. As long as our last names don't start with the same letter, it should work ok. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 AMEN! STL Jane " Di ) " wrote: I have given up trying to explain or defend myself. Those that care enough to really want to learn are worth the energy. The rest I tell I am disabled and chronically ill. They are a drain to what precious energy I have. Take care of you. Big gentle huggles. Love ya, Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 I don't know why the new has not responded to my question but I'll take the change. Which does group prefer, or Dutchie? I'll go by either but dutchie is my nick for so many things so I am comfortable with that too. Just let me know. If there is a new dutchie in the future, will let her change lol! Huggz! Dutchie/cynthia > I agree, , we have two s, two s, and two Janes, maybe > more. I put S. on my posts now, because it gets too confusing as to > who is saying what. As long as our last names don't start with the same > letter, it should work ok. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.