Re: Gonino - Latest Results

[Guest guest]

I find that very disturbing that she thought your TSH was too low. But they had already reduced your dose based on symptoms? I would be interested to see what the doc himself has to say about your TSH. I also find it disturbing that he is allowing the NP to manage thyroid patients. She should be putting bandaids on hickeys and calling in prescriptions for bladder infections. I think this is the same NP who ordered the T3 Uptake and other obsolete tests. If you are doing well with what she is prescribing for you, then I would not rock the boat. If you are not doing well, then I would insist on seeing the doc. Actually, were I in your shoes, I would have rocked the boat before even allowing them to schedule me with the NP. I will put a note on the Texas Armour Doc List. <Jan screams and bangs head on keyboard. . . .repeatedly> Jul wrote: I had my test results come back Wednesday from Dr. Gonino's office.Met with to go over them. I do not have numbers on me at themoment unfortunately - keep forgetting to bring them with me.Afternoon cortisol was pretty high she said (they only

did the onetime test). My TSH was .035. FT3 and FT4 were smack in the middle oftheir range. She considered that ok (sigh) but the TSH too low.Those tests were done on 90 mg Armour. They cut me down to 45 mgArmour and 50 mcg Levoxyl at last week's visit and he wants me to stayon that until my next test to check those results. I'm still gettingheadaches (why he added back in the Levoxyl) though they've not beenall that bad or often. Maybe just 2 very mild ones in the last week.Yesterday's was horrid but that was the result of a crying fit I hadso I don't count it.They're not doing anything with the cortisol right now because hewants to recheck that again at the end of the month since he thinks Iwas fairly agitated that day (don't usually have a bp problem, evenwhen I am stressed, but my BP and pulse were elevated for that visit -possible it was the stress of seeing a new doc that did it) and thatcould

attribute to the high levels. He also thinks the change in mydiet I'm about to make (no sugar, no processed foods - just organicmeats and veggies basically) will likely lower that on it's own and ifit doesn't then they'd look at meds. I said I was ok with trying thatbecause I really don't like taking medications if I don't have to andI do blame my poor diet for a lot of things.I do have quite a bit of the yeast overgrowth thing going on and hethinks that's a big part of my problem. I'm inclined to agree - fornow. I only have to do that particular diet for 2 months, though (I'mstarting it Sunday as I haven't had time to get to the store to buyappropriate foods). Surely even I can follow this for that shortamount of time. ;)I had an emotional breakdown *again* yesterday. I don't know if it'sPMS or the lowered Armour again that caused it but it could definitelybe PMS as it's nearing that time. But last time my

Armour was loweredto 45 mg (no Levoxyl at that time) I flipped the heck out like thisfairly easily until it was raised back up again.I got vitamin shots (which made me nauseous for a bit and my energyplummeted an hour later...not sure if it was related or a totalcoincidence but the next day I had the emotional freakout...surelyvitamins couldn't do all that could they?) and go in starting nextweek for a series of IV treatments (oxygen, vitamins, and a couple ofothers I can't recall the names of). The nutrition class wasinteresting and I learned a lot. I'm on new vitamins and a few newsupplements (as well as something for sugar cravings) and will start amulti-cleanse program this weekend to help get my digestive tract backto working properly. And Nystatin for the yeast problem. And soon tobe Candidase as well once I can find a bottle of it.I don't feel all that good the last few days but I woke up

easiertoday than I have been (still very tired but a little bit more awakeand clear headed than previous). Even managed to start a load oflaundry and clean the kitchen before work. Not the normal behaviorfor me. But I felt so exhausted by the time I left for work soprobably not the smartest thing but it has to get done at some point,right? :)I still like the office and the staff - nicest group of people I'veever dealt with. They are amazing people. Always smiling and easy totalk to. And I'm not unhappy yet with their procedure here. I'm okwith trying to see what change in diet does for me as it can onlyhelp, really - I never feel well after I eat so I know I'm ingestingthings that are doing bad things to me. I'm just getting tired ofbeing patient I guess. Many days I feel worse than I did a year agowhen I started this whole thyroid treatment process. But I knowthat's kind of the way it tends to go and what

little bit of patienceI still hold on to, I need to use. *sigh*Jul

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[Guest guest]

To be fair, I'm not sure she is technically " managing " me. At least yet - can't comment on her ordering tests as she hasn't done that yet to me. All the comments pretty much that we went over were written by him. At least all my yeast stuff and meds and vitamins he wanted me on were from him (well, he signed it anyway), she was simply going over it with me. But none of that included thyroid stuff so I'm not sure really on that if those were her opinions or his (a few things she said made it sound like it was coming from him, most especially the cortisol levels as she said " He wants to wait and retest " .) I assumed she was simply reading off his comments but one should really not ever do that with thyroid. lol

I'm scheduled to meet with her in another 3 weeks but you are right, I should be meeting with him. I'll call and get that changed. They kind of through me a bit when they set that up with her and I didn't speak out like I should have. I remember hesitating a bit but just let it go. Should never do that so shame on me!

If I haven't noticed a big improvement in how I feel by summer, I guess I'll be heading to Lubbock. *sigh* I really hope to not have to do that. I don't have the money for all the stuff they're got me doing right now anyway! My mother has to cover it all and she'd have to cover any plane tickets and hotels I might have to do (though I do have a grandmother in Slaton - but she's pretty sick a lot and doesn't like to have to deal with company then, even by her grandkids apparently). I just hate to add on to her already bad finances.

Thanks for your thoughts.

Jul

I find that very disturbing that she thought your TSH was too low. But they had already reduced your dose based on symptoms? I would be interested to see what the doc himself has to say about your TSH.

I also find it disturbing that he is allowing the NP to manage thyroid patients. She should be putting bandaids on hickeys and calling in prescriptions for bladder infections. I think this is the same NP who ordered the T3 Uptake and other obsolete tests.

If you are doing well with what she is prescribing for you, then I would not rock the boat. If you are not doing well, then I would insist on seeing the doc.

Actually, were I in your shoes, I would have rocked the boat before even allowing them to schedule me with the NP. I will put a note on the Texas Armour Doc List.

<Jan screams and bangs head on keyboard. . . .repeatedly>

Jul wrote:

I had my test results come back Wednesday from Dr. Gonino's office.Met with to go over them. I do not have numbers on me at the

moment unfortunately - keep forgetting to bring them with me.Afternoon cortisol was pretty high she said (they only did the onetime test). My TSH was .035. FT3 and FT4 were smack in the middle oftheir range. She considered that ok (sigh) but the TSH too low.

Those tests were done on 90 mg Armour. They cut me down to 45 mgArmour and 50 mcg Levoxyl at last week's visit and he wants me to stayon that until my next test to check those results. I'm still getting

headaches (why he added back in the Levoxyl) though they've not beenall that bad or often. Maybe just 2 very mild ones in the last week.Yesterday's was horrid but that was the result of a crying fit I had

so I don't count it.They're not doing anything with the cortisol right now because hewants to recheck that again at the end of the month since he thinks Iwas fairly agitated that day (don't usually have a bp problem, even

when I am stressed, but my BP and pulse were elevated for that visit -possible it was the stress of seeing a new doc that did it) and thatcould attribute to the high levels. He also thinks the change in my

diet I'm about to make (no sugar, no processed foods - just organicmeats and veggies basically) will likely lower that on it's own and ifit doesn't then they'd look at meds. I said I was ok with trying that

because I really don't like taking medications if I don't have to andI do blame my poor diet for a lot of things.I do have quite a bit of the yeast overgrowth thing going on and hethinks that's a big part of my problem. I'm inclined to agree - for

now. I only have to do that particular diet for 2 months, though (I'mstarting it Sunday as I haven't had time to get to the store to buyappropriate foods). Surely even I can follow this for that short

amount of time. ;)I had an emotional breakdown *again* yesterday. I don't know if it'sPMS or the lowered Armour again that caused it but it could definitelybe PMS as it's nearing that time. But last time my Armour was lowered

to 45 mg (no Levoxyl at that time) I flipped the heck out like thisfairly easily until it was raised back up again.I got vitamin shots (which made me nauseous for a bit and my energyplummeted an hour later...not sure if it was related or a total

coincidence but the next day I had the emotional freakout...surelyvitamins couldn't do all that could they?) and go in starting nextweek for a series of IV treatments (oxygen, vitamins, and a couple of

others I can't recall the names of). The nutrition class wasinteresting and I learned a lot. I'm on new vitamins and a few newsupplements (as well as something for sugar cravings) and will start amulti-cleanse program this weekend to help get my digestive tract back

to working properly. And Nystatin for the yeast problem. And soon tobe Candidase as well once I can find a bottle of it.I don't feel all that good the last few days but I woke up easiertoday than I have been (still very tired but a little bit more awake

and clear headed than previous). Even managed to start a load oflaundry and clean the kitchen before work. Not the normal behaviorfor me. But I felt so exhausted by the time I left for work soprobably not the smartest thing but it has to get done at some point,

right? :)I still like the office and the staff - nicest group of people I'veever dealt with. They are amazing people. Always smiling and easy totalk to. And I'm not unhappy yet with their procedure here. I'm ok

with trying to see what change in diet does for me as it can onlyhelp, really - I never feel well after I eat so I know I'm ingestingthings that are doing bad things to me. I'm just getting tired of

being patient I guess. Many days I feel worse than I did a year agowhen I started this whole thyroid treatment process. But I knowthat's kind of the way it tends to go and what little bit of patienceI still hold on to, I need to use. *sigh*

Jul

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I have not found the travel or the hotel to be all that expensive. Not sure about plane tickets these days, as I now drive, but I am still paying just $59 for a hotel room there with the medical rate. I would further comment that if your Free T3 and Free T4 were right at midrange on 90 mg, you will most likely be undermedicated on a lower dose, unless you are one of those rare folks who need their Frees to be on the low side. What you may need is highly individual. Jul wrote: To be fair, I'm not sure she is technically "managing" me. At least yet - can't comment on her ordering tests

as she hasn't done that yet to me. All the comments pretty much that we went over were written by him. At least all my yeast stuff and meds and vitamins he wanted me on were from him (well, he signed it anyway), she was simply going over it with me. But none of that included thyroid stuff so I'm not sure really on that if those were her opinions or his (a few things she said made it sound like it was coming from him, most especially the cortisol levels as she said "He wants to wait and retest".) I assumed she was simply reading off his comments but one should really not ever do that with thyroid. lol I'm scheduled to meet with her in another 3 weeks but you are right, I should be meeting with him. I'll call and get that changed. They kind of through me a bit when they set that up with her and I didn't speak out like I should have. I

remember hesitating a bit but just let it go. Should never do that so shame on me! If I haven't noticed a big improvement in how I feel by summer, I guess I'll be heading to Lubbock. *sigh* I really hope to not have to do that. I don't have the money for all the stuff they're got me doing right now anyway! My mother has to cover it all and she'd have to cover any plane tickets and hotels I might have to do (though I do have a grandmother in Slaton - but she's pretty sick a lot and doesn't like to have to deal with company then, even by her grandkids apparently). I just hate to add on to her already bad finances. Thanks for your thoughts. Jul I find that very disturbing that she thought your TSH was too low. But they had already reduced your dose based on symptoms? I would be interested to see what the doc himself has to say about your TSH. I also find it disturbing that he is allowing the NP to manage thyroid patients. She should be putting bandaids on hickeys and calling in prescriptions for bladder infections. I think this is the same NP who ordered the T3

Uptake and other obsolete tests. If you are doing well with what she is prescribing for you, then I would not rock the boat. If you are not doing well, then I would insist on seeing the doc. Actually, were I in your shoes, I would have rocked the boat before even allowing them to schedule me with the NP. I will put a note on the Texas Armour Doc List. <Jan screams and bangs head on keyboard. . . .repeatedly>

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[Guest guest]

Actually the costs of what your doing now might balance out even with the travel to see Dr. R. I haven't had to do any classes, cleanses or IV treatments. I bet that's easily the cost of a night in a Lubbock hotel. Just a thought...

And it makes me nervous when docs start talking about reducing Armour dosage.

Carol

>> To be fair, I'm not sure she is technically "managing" me. At least yet -> can't comment on her ordering tests as she hasn't done that yet to me. All> the comments pretty much that we went over were written by him. At least> all my yeast stuff and meds and vitamins he wanted me on were from> him (well, he signed it anyway), she was simply going over it with me. But> none of that included thyroid stuff so I'm not sure really on that if those> were her opinions or his (a few things she said made it sound like it was> coming from him, most especially the cortisol levels as she said "He wants> to wait and retest".) I assumed she was simply reading off his comments but> one should really not ever do that with thyroid. lol> > I'm scheduled to meet with her in another 3 weeks but you are right, I> should be meeting with him. I'll call and get that changed. They kind of> through me a bit when they set that up with her and I didn't speak out like> I should have. I remember hesitating a bit but just let it go. Should> never do that so shame on me! > > If I haven't noticed a big improvement in how I feel by summer, I guess I'll> be heading to Lubbock. *sigh* I really hope to not have to do that. I> don't have the money for all the stuff they're got me doing right now> anyway! My mother has to cover it all and she'd have to cover any plane> tickets and hotels I might have to do (though I do have a grandmother in> Slaton - but she's pretty sick a lot and doesn't like to have to deal with> company then, even by her grandkids apparently). I just hate to add on to> her already bad finances.> > Thanks for your thoughts.> > Jul

[Guest guest]

I'm a Tech alumni and frankly, I've had enough of THAT particular drive to last me for the rest of my life. hee No more! :)We'll see though how well it goes with Gonino in the next few months. I feel undermedicated at this point and the few times I felt better and got blood tests, my T3 and T4s were both on the high end (well, T3 was a 9.3 out of a range of 2-4.9 I think but damn did I feel pretty damn good all around except my heart rate *g*). So I imagine I need to be on the high end though probably not that high. However, I did take my meds the day of blood test because I didn't know better.

I now have the test results in front of me (this is 90 mg Armour):TSH: .035 (.350-5.5)FT4: 7.4 (4.5-12)FT3: 123 (85-205)DHEA-Sulfate: 140 (45-270)Cortisol - PM: 21.9 (3.1-16.7)Is there anything I might could do in the meantime for the cortisol level? Some type of adrenal support supplement that I could add in? It'll probably take 2-3 weeks I'm guessing for any diet changes to really make much impact in how I feel and just wonder if there is anything that could be done in the meantime to help feel a little better? Jul

I have not found the travel or the hotel to be all that expensive. Not sure about plane tickets these days, as I now drive, but I am still paying just $59 for a hotel room there with the medical rate.

I would further comment that if your Free T3 and Free T4 were right at midrange on 90 mg, you will most likely be undermedicated on a lower dose, unless you are one of those rare folks who need their Frees to be on the low side. What you may need is highly individual.

Jul wrote:

To be fair, I'm not sure she is technically " managing " me. At least yet - can't comment on her ordering tests

as she hasn't done that yet to me. All the comments pretty much that we went over were written by him. At least all my yeast stuff and meds and vitamins he wanted me on were from him (well, he signed it anyway), she was simply going over it with me. But none of that included thyroid stuff so I'm not sure really on that if those were her opinions or his (a few things she said made it sound like it was coming from him, most especially the cortisol levels as she said " He wants to wait and retest " .) I assumed she was simply reading off his comments but one should really not ever do that with thyroid. lol I'm scheduled to meet with her in another 3 weeks but you are right, I should be meeting with him. I'll call and get that changed. They kind of through me a bit when they set that up with her and I didn't speak out like I should have. I

remember hesitating a bit but just let it go. Should never do that so shame on me! If I haven't noticed a big improvement in how I feel by summer, I guess I'll be heading to Lubbock. *sigh* I really hope to not have to do that. I don't have the money for all the stuff they're got me doing right now anyway! My mother has to cover it all and she'd have to cover any plane tickets and hotels I might have to do (though I do have a grandmother in Slaton - but she's pretty sick a lot and doesn't like to have to deal with company then, even by her grandkids apparently). I just hate to add on to her already bad finances. Thanks for your thoughts. Jul

On 3/2/07, Jan <

texasthyroid@...> wrote:

I find that very disturbing that she thought your TSH was too low. But they had already reduced your dose based on symptoms? I would be interested to see what the doc himself has to say about your TSH. I also find it disturbing that he is allowing the NP to manage thyroid patients. She should be putting bandaids on hickeys and calling in prescriptions for bladder infections. I think this is the same NP who ordered the T3

Uptake and other obsolete tests. If you are doing well with what she is prescribing for you, then I would not rock the boat. If you are not doing well, then I would insist on seeing the doc. Actually, were I in your shoes, I would have rocked the boat before even allowing them to schedule me with the NP. I will put a note on the Texas Armour Doc List.

<Jan screams and bangs head on keyboard. . . .repeatedly>

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[Guest guest]

Jul,

You need an AM cortisol to get the full picture. If it is low in the am

and high in the evening, you are dealing with adrenal fatigue. I see

nothing wrong with your TSH, your frees could come up. How long have you

been on 90 mg?

Kate

At 04:25 PM 3/2/2007, you wrote:

>I'm a Tech alumni and frankly, I've had enough of THAT particular drive to

>last me for the rest of my life. hee No more!

>

>We'll see though how well it goes with Gonino in the next few months. I

>feel undermedicated at this point and the few times I felt better and got

>blood tests, my T3 and T4s were both on the high end (well, T3 was a 9.3

>out of a range of 2-4.9 I think but damn did I feel pretty damn good all

>around except my heart rate *g*). So I imagine I need to be on the high

>end though probably not that high. However, I did take my meds the day of

>blood test because I didn't know better.

>

>I now have the test results in front of me (this is 90 mg Armour):

>

>TSH: .035 (.350-5.5)

>FT4: 7.4 (4.5-12)

>FT3: 123 (85-205)

>DHEA-Sulfate: 140 (45-270)

>Cortisol - PM: 21.9 (3.1-16.7)

>

>Is there anything I might could do in the meantime for the cortisol

>level? Some type of adrenal support supplement that I could add

>in? It'll probably take 2-3 weeks I'm guessing for any diet changes to

>really make much impact in how I feel and just wonder if there is anything

>that could be done in the meantime to help feel a little better?

>

>Jul

>

>On 3/2/07, Jan

> wrote:

>I have not found the travel or the hotel to be all that expensive. Not

>sure about plane tickets these days, as I now drive, but I am still paying

>just $59 for a hotel room there with the medical rate.

>

>I would further comment that if your Free T3 and Free T4 were right at

>midrange on 90 mg, you will most likely be undermedicated on a lower dose,

>unless you are one of those rare folks who need their Frees to be on the

>low side. What you may need is highly individual.

>

>Jul wrote:

>To be fair, I'm not sure she is technically " managing " me. At least yet -

>can't comment on her ordering tests as she hasn't done that yet to

>me. All the comments pretty much that we went over were written by

>him. At least all my yeast stuff and meds and vitamins he wanted me on

>were from him (well, he signed it anyway), she was simply going over it

>with me. But none of that included thyroid stuff so I'm not sure really

>on that if those were her opinions or his (a few things she said made it

>sound like it was coming from him, most especially the cortisol levels as

>she said " He wants to wait and retest " .) I assumed she was simply reading

>off his comments but one should really not ever do that with thyroid. lol

>

>I'm scheduled to meet with her in another 3 weeks but you are right, I

>should be meeting with him. I'll call and get that changed. They kind of

>through me a bit when they set that up with her and I didn't speak out

>like I should have. I remember hesitating a bit but just let it

>go. Should never do that so shame on me!

>

>If I haven't noticed a big improvement in how I feel by summer, I guess

>I'll be heading to Lubbock. *sigh* I really hope to not have to do

>that. I don't have the money for all the stuff they're got me doing right

>now anyway! My mother has to cover it all and she'd have to cover any

>plane tickets and hotels I might have to do (though I do have a

>grandmother in Slaton - but she's pretty sick a lot and doesn't like to

>have to deal with company then, even by her grandkids apparently). I just

>hate to add on to her already bad finances.

>

>Thanks for your thoughts.

>

>Jul

>

>On 3/2/07, Jan

> wrote:

>I find that very disturbing that she thought your TSH was too low. But

>they had already reduced your dose based on symptoms? I would be

>interested to see what the doc himself has to say about your TSH.

>

>I also find it disturbing that he is allowing the NP to manage thyroid

>patients. She should be putting bandaids on hickeys and calling in

>prescriptions for bladder infections. I think this is the same NP who

>ordered the T3 Uptake and other obsolete tests.

>

>If you are doing well with what she is prescribing for you, then I would

>not rock the boat. If you are not doing well, then I would insist on

>seeing the doc.

>

>Actually, were I in your shoes, I would have rocked the boat before even

>allowing them to schedule me with the NP. I will put a note on the Texas

>Armour Doc List.

>

><Jan screams and bangs head on keyboard. . . .repeatedly>

>

>

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[Guest guest]

WHAT has this crazy thing become, of having a doctor and never getting to see him/her??? I'm hearing this all the time. Noone has a clone or the same opinion. If I made an appointment with a particular doctor, and then another came out to see me, I'd be saying well, I'll come back when MY doctor has time to see ME, otherwise, it's a no go! Apples do not taste, look, or act like oranges and never ever will. This would be totally unacceptable to me. Having the nurse in the room with me and the doc and helping me with questions, answers, meds, other things is just great, the more the merrier, but NOT for my diagnosis. ONLY if they carry EXACTLY the same views, and that is awfully hard to find in two people together, in ANY profession. I understand that a doctor needs a helper, and vice versa, the helper needs the doctor, but that's precisely my point. No diagnosis from anyone other than the doctor whose opinions I knew were in sinc with the way it really is. ""???? does not sound like "Dr. Gonino" to me. The name of the game is "Who Do You Trust?"

Re: Gonino - Latest Results

I find that very disturbing that she thought your TSH was too low. But they had already reduced your dose based on symptoms? I would be interested to see what the doc himself has to say about your TSH.

I also find it disturbing that he is allowing the NP to manage thyroid patients. She should be putting bandaids on hickeys and calling in prescriptions for bladder infections. I think this is the same NP who ordered the T3 Uptake and other obsolete tests.

If you are doing well with what she is prescribing for you, then I would not rock the boat. If you are not doing well, then I would insist on seeing the doc.

Actually, were I in your shoes, I would have rocked the boat before even allowing them to schedule me with the NP. I will put a note on the Texas Armour Doc List.

<Jan screams and bangs head on keyboard. . . .repeatedly>

Jul wrote:

I had my test results come back Wednesday from Dr. Gonino's office.Met with to go over them. I do not have numbers on me at themoment unfortunately - keep forgetting to bring them with me.

[Guest guest]

Jul - Tried to go over your other recent posts. Sorry if I missed any

mention of any iron tests results before, but I didn't see any in

your recent posts. Iron is a huge issue with most of us. JMHO, but I

think it's a rampant condition for a huge number of folks even

without hypo issues. I was really in bad shape with that. Low

ferritin and serum iron can make us feel really fatigued on top of

hypo and can thwart the entire process of trying to get the thyroid

conversion process going well. (I don't have a good science

background in this and can never remember the biochemistry details.)

I think it can create the fatigue/rapid heart rate character of

adrenal problems, as well as brain fog. Without the iron to make good

hemoglobin molecules which carry oxygen, you are one tired puppy.

When you have both issues, yikes!

Just from my vantage point, and what I'm doing with Dr. ,

your DHEA-S is a tad low. I finally got up to 1750 (175 on your test

scale) last Nov., and I know I felt a lot better. I think I still

need to get to 2000-3000 range down the road.

And did you get sex hormones tested? Antibodies? Again, sorry if I

missed that somewhere.

I'm just not sure you're getting enough of the whole picture yet.

JMHO.

Sara

>

>

> I now have the test results in front of me (this is 90 mg Armour):

>

> TSH: .035 (.350-5.5)

> FT4: 7.4 (4.5-12)

> FT3: 123 (85-205)

> DHEA-Sulfate: 140 (45-270)

> Cortisol - PM: 21.9 (3.1-16.7)

>

just wonder if there is anything that could be done in the

> meantime to help feel a little better?

>

> Jul

>

[Guest guest]

Jul

>FT4: 7.4 (4.5-12)

Are you absolutely SURE that this test value is the FREE value of T4, not the TOTAL T4, which also counts in the binding proteins??? It looks like the latter to me, but then.......

[Guest guest]

I'm with you on this one, Kate, definitely. This would not be the doctor's

office for me. Notice I said office, as she didn't even get to see the doc

she had wanted to make the appointment with. If Gonino holds these

opinions, then I couldn't immagine going to see him either.

Re: Gonino - Latest Results

> Jul,

>

> You need an AM cortisol to get the full picture. If it is low in the am

> and high in the evening, you are dealing with adrenal fatigue. I see

> nothing wrong with your TSH, your frees could come up. How long have you

> been on 90 mg?

>

> Kate

[Guest guest]

I've flown and I either get the $49 each way deal or the $79.

Southwest runs specials regularly for travel within TX. Probably the

most you'd pay is $99 each way...but I subscribe to Southwest's e-

newsletter and get notifications of specials all the time.

I initially thought these gals were loco with all their Lubbock talk,

but I'm a believer! I didn't think my condition was " worthy " of

taking such a step out....but Sara and just about everyone else said

if they knew then what they did now, they would have seen Dr. R

ASAP. I'm glad I listened to them!!!!

I hope it works out for you, whatever way you decide to go :-).

>

> I have not found the travel or the hotel to be all that expensive.

Not sure about plane tickets these days, as I now drive, but I am

still paying just $59 for a hotel room there with the medical rate.

>

[Guest guest]

> I'm with you on this one, Kate, definitely. This would not be the doctor's

> office for me. Notice I said office, as she didn't even get to see the doc

> she had wanted to make the appointment with. If Gonino holds these

> opinions, then I couldn't immagine going to see him either.

I did see Gonino last week. Very long visit with him. He made the

diagnosis and ran the tests. She simply went over the results with

me.

I'm going to change the appointment and make sure I see him in a few

weeks instead though.

Jul

[Guest guest]

Are you absolutely SURE that this test value is the FREE value of T4, not the TOTAL T4, which also counts in the binding proteins??? It looks like the latter to me, but then.......

Well, that's a good question. I thought they were but...I'm not really sure I know how to tell the difference. The lab page she gave me a copy of don't say free on either of them now that I'm looking at it again. Just Thyroxine (T4) and Triiodothyronine (T3). Does that mean they didn't check frees?? Dammit.

I don't know why I just trust these guys to know what they're doing. I will learn one day. ;)Jul

[Guest guest]

> You need an AM cortisol to get the full picture. If it is low in the am

> and high in the evening, you are dealing with adrenal fatigue. I see

> nothing wrong with your TSH, your frees could come up. How long have you

> been on 90 mg?

I was on 90 mg for 5 weeks or so. My TSH on 45 mg for the same length

of time was about .01 if memory serves.

I talked to him about the times of day testing but they only do the

one. He said I was welcome to do the full day test kit (he wasn't

familiar with it) and bring it to him. I just haven't done that yet.

Jul

[Guest guest]

Good idea. Yup, ya gotta get all those pesky details in your hands all

at one time to see what's going on. The regular CBC type test showing

the hemoglobin isn't enough. Need ferritin, total serum iron, TIBC, %

saturation. Gives the detailed picture of the amount of iron in storage

and at work (or not) in your system.

Sara

>

> My iron levels at my last annual physical were " fine " but this was by

> a doctor I don't trust one bit so hard to say really what they were.

> I should get that retested again - it's about time for my next

> physical actually.

>

> Jul

>

[Guest guest]

It varies according to your own initial situation and progress and what

comes up along the way. But there is an initial consultation, overnight

stay, and blood draw at 8am the next morning. Then you return 2-3 weeks

later for follow up consult with blood work results. You get a very

thorough up to one hour or so education each time you go. After my

first follow up consult, I was told 6 months, then another 6 months,

now a year. I think some folks have gone back in 3 month intervals at

first. For follow up visits, I get blood work done in advance within 5

minutes of my house in Dallas, and it's sent to Lubbock. How lucky is

that?

>

> How often do you have to go out to see him? >

> Jul

>

[Guest guest]

I'm so glad we caught this because it changes the whole picture, entirely! When it's called simply "Thyroxine" and has this lab range, Jul, it is the Total amt of T4, bound and Free together. You still don't know what your Free value of T4 is. There is another one that is simply an estimate of the Free T4, done by mathematical guessing as in taking a percentage of the Total and thinking that that SHOULD be the Free amt, but it is not like getting the Free t4 done. The test value on the lab sheet will say either "Free T4, or "T4, Free". The Triiodothyronine that you got IS the free value of that hormone, I believe. Believe me, we've all had our trials and errors in learning to "get it", when it comes to this testing. I really don't know why he wouldn't have run the Free T4, when he did run the Free T3, doesn't make sense to me. Your bound and free T4 together isn't even that high yet.

Re: Gonino - Latest Results

Are you absolutely SURE that this test value is the FREE value of T4, not the TOTAL T4, which also counts in the binding proteins??? It looks like the latter to me, but then.......Well, that's a good question. I thought they were but...I'm not really sure I know how to tell the difference. The lab page she gave me a copy of don't say free on either of them now that I'm looking at it again. Just Thyroxine (T4) and Triiodothyronine (T3). Does that mean they didn't check frees?? Dammit. I don't know why I just trust these guys to know what they're doing. I will learn one day. ;)Jul

[Guest guest]

Wow, from everything I've been hearing, I thought that Gonino was VERY

familiar with all times of day cortisol and adrenal fatigue testing. Holy

cow, the morning one being the highest one, if everything is healthy (as

long as it's not way too high), is very basic info for someone to make these

claims. Sheesh!!

Re: Gonino - Latest Results

> I was on 90 mg for 5 weeks or so. My TSH on 45 mg for the same length

> of time was about .01 if memory serves.

>

> I talked to him about the times of day testing but they only do the

> one. He said I was welcome to do the full day test kit (he wasn't

> familiar with it) and bring it to him. I just haven't done that yet.

>

> Jul

[Guest guest]

If it doesn't say Free T3 and Free T4 then it's not. "Fine" and "Normal" are not words you want to hear anymore. You want the numbers in black and white! :-)

Carol

> > > Are you absolutely SURE that this test value is the FREE value of T4, not> > the TOTAL T4, which also counts in the binding proteins??? It looks like> > the latter to me, but then.......> > > Well, that's a good question. I thought they were but...I'm not really sure> I know how to tell the difference. The lab page she gave me a copy of don't> say free on either of them now that I'm looking at it again. Just Thyroxine> (T4) and Triiodothyronine (T3). Does that mean they didn't check frees??> Dammit.> > I don't know why I just trust these guys to know what they're doing. I will> learn one day. > > Jul>

[Guest guest]

Those are not the Frees. Those are the Totals and not very useful. You are even more undermedicated than I thought you might be when you said your Frees were at mid-range.Jul wrote: Are you absolutely SURE that this test value is the FREE value of T4, not the TOTAL T4, which also counts in the binding proteins??? It looks like the latter to me, but then.......Well, that's a good question. I thought they were but...I'm not really sure I know how to tell the difference. The lab page she gave me a copy of don't say free on either of them now that I'm looking at it again. Just Thyroxine (T4) and Triiodothyronine (T3). Does that mean they didn't check frees?? Dammit. I don't know why I just trust these guys to know what they're doing. I will learn one day. ;)Jul

The fish are biting.

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[Guest guest]

I think this must be the work of the NP. We thought another one of his patients had him trained. I had looked at her labs that he ordered and there was a Free T3 and Free T4. This was a couple of years ago. wrote: I'm so glad we caught this because it changes the whole picture, entirely! When it's called simply "Thyroxine" and has this lab range, Jul, it is the Total amt of T4, bound and Free together. You still don't know what your Free value of T4 is. There is another one that is simply an estimate of the Free T4, done by mathematical guessing as in taking a percentage of the Total and thinking that that

SHOULD be the Free amt, but it is not like getting the Free t4 done. The test value on the lab sheet will say either "Free T4, or "T4, Free". The Triiodothyronine that you got IS the free value of that hormone, I believe. Believe me, we've all had our trials and errors in learning to "get it", when it comes to this testing. I really don't know why he wouldn't have run the Free T4, when he did run the Free T3, doesn't make sense to me. Your bound and free T4 together isn't even that high yet. Re: Gonino - Latest Results Are you absolutely SURE that this test value is the FREE value of T4, not the TOTAL T4, which also counts in the binding proteins??? It looks like the latter to me, but then.......Well, that's a good question. I thought they were but...I'm not really sure I know how to tell the difference. The lab page she gave me a copy of don't say free on either of them now that I'm looking at it again. Just Thyroxine (T4) and Triiodothyronine (T3). Does that mean they didn't check frees?? Dammit. I don't know why I just trust these guys to know what they're doing. I will learn one day. ;)Jul

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[Guest guest]

I think this must be the work of the NP. We thought

another one of his patients had him trained. I had looked at her labs

that he ordered and there was a Free T3 and Free T4. This was a couple

of years ago. I didn't even see the NP () the day of the blood draw so I'm not sure she could have had anything to do with this...the lady who was in the room taking bp and pulse, etc was someone completely different. We talked about my frees all through that visit and I just never considered he'd order anything else since he seemed to be a highly recommended thyroid doc as it was. Lessons learned and all of that. *sigh*

Though now that I'm rethinking about that conversation, when I was telling him all of my previous lab work, when I first gave him the FT4 and FT3, he balked at the numbers a bit and I couldn't figure out what was wrong. And then he said " Oh that was your frees " like he was expecting me to be telling him the other I guess. I didn't think anything of it because I realized I wasn't referencing them as frees, just saying " My T4 and T3 " so figured *I* confused him. So the ones he did order are useless? How do they relate to the frees? Sometimes I think I understand how this works but then I realize how much I absolutely don't have a clue. :/One of my online pals is a med student who just finished being tested on the endocrine system. When she heard me talking about all of this thyroid stuff, she was asking a bunch of questions. And then at the end of reading my " story " , she said " Wow, in school they teach us it's really cut and dried. " Which I laughed and laughed and laughed. And said " Well, then, that would be why thousands of people continue to be treated badly and are undermedicated. " Sheesh. And of course she heard nothing about Armour or anything - just levothyroxine. But she said she figured the students who went on to specialize in endocrinology probably got more info about things like that. I said " I wouldn't count on it. " *g* Jul

wrote:

I'm so glad we caught this because it changes the whole picture, entirely! When it's called simply " Thyroxine " and has this lab range, Jul, it is the Total amt of T4, bound and Free together. You still don't know what your Free value of T4 is. There is another one that is simply an estimate of the Free T4, done by mathematical guessing as in taking a percentage of the Total and thinking that that

SHOULD be the Free amt, but it is not like getting the Free t4 done. The test value on the lab sheet will say either " Free T4, or " T4, Free " . The Triiodothyronine that you got IS the free value of that hormone, I believe. Believe me, we've all had our trials and errors in learning to " get it " , when it comes to this testing. I really don't know why he wouldn't have run the Free T4, when he did run the Free T3, doesn't make sense to me. Your bound and free T4 together isn't even that high yet.

Re: Gonino - Latest Results On 3/2/07,

wrote:

Are you absolutely SURE that this test value is the FREE value of T4, not the TOTAL T4, which also counts in the binding proteins??? It looks like the latter to me, but then.......

Well, that's a good question. I thought they were but...I'm not really sure I know how to tell the difference. The lab page she gave me a copy of don't say free on either of them now that I'm looking at it again. Just Thyroxine (T4) and Triiodothyronine (T3). Does that mean they didn't check frees?? Dammit. I don't know why I just trust these guys to know what they're doing. I will learn one day. ;)Jul Expecting? Get great news right away with

email Auto-Check.Try the Yahoo! Mail Beta.

[Guest guest]

I think he probably does understand that at different times of the day

the level would differ and all that. But no, he'd never heard of the

saliva testing done multiple times in the same day. He mentioned that

as I came in through the next few months, they'd test it so there

would be various levels caught to compare (though he never

specifically mentioned making the times of day different).

I keep intending to find a good explanation of it and faxing it to his

office. Anyone got a good link that I should look at?

Jul

> Wow, from everything I've been hearing, I thought that Gonino was VERY

> familiar with all times of day cortisol and adrenal fatigue testing. Holy

> cow, the morning one being the highest one, if everything is healthy (as

> long as it's not way too high), is very basic info for someone to make these

> claims. Sheesh!!

>

>

[Guest guest]

If it didn't say free, it ain't!

Kate

At 10:14 PM 3/2/2007, you wrote:

>

>Are you absolutely SURE that this test value is the FREE value of T4, not

>the TOTAL T4, which also counts in the binding proteins??? It looks like

>the latter to me, but then.......

>

>

>Well, that's a good question. I thought they were but...I'm not really

>sure I know how to tell the difference. The lab page she gave me a copy

>of don't say free on either of them now that I'm looking at it

>again. Just Thyroxine (T4) and Triiodothyronine (T3). Does that mean

>they didn't check frees?? Dammit.

>

>I don't know why I just trust these guys to know what they're doing. I

>will learn one day.

>

>Jul

[Guest guest]

If you are only going to test one time of day, am is best. When you know

were the am is, that is the most important. If you body isn't fueled for

the day, your in trouble.

Ok, one more question...are you taking you Armour the day of testing?

Kate

At 10:17 PM 3/2/2007, you wrote:

>I was on 90 mg for 5 weeks or so. My TSH on 45 mg for the same length

>of time was about .01 if memory serves.

>

>I talked to him about the times of day testing but they only do the

>one. He said I was welcome to do the full day test kit (he wasn't

>familiar with it) and bring it to him. I just haven't done that yet.

>

>Jul