I'm new but experienced

[Guest guest]

I'm new to this chat room, and chat rooms altogether. I don't

understand how this works. My mother-in-law (I love her dearly,

probably more than my husband) came to live with us (at my insistence

at the beginning of November 2003, I would have preferred spring of

2003, before she got so sick, however I am the 24/7 caregiver and am

losing my patience with my husband and his brother (who thinks he is

such a good caregiver because he transported her to radiation appts

during the summer of 2002 and he worked as a " babysitter " at a local

upscale nursing home for 8 hours a day (2nd shift) for 5 weeks and

knows everything. My husband and his brother have a volatile

relationship and I turned down POA because I did not want to fight

with them. However, I took care of my mother-in-law and assisted her

in many aspects of her life that they were not aware of she could not

do her own since the time of her husband's death in the spring of

2001. Her and I are very close, others also know that if it were not

for me she would be in a NH or have passed already. For the record,

My experience is that I worked as a medical secretary during the

1980s (when everyone did hands-on care) and have stayed focused on

medical aspects of society). Also, my mother (another medical

person) and I brought my grandmother (her mother) into our home and

cared for her as a cancer inflicted hospice patient until her death.

I also have a grandmother of 89 who suffered a stroke on 9/10/2001

and has stroke induced dementia yet is being cared for 24/7 by my 67

yo father with health problems himself. I am VERY WELL INFORMED of

the trials and tribulations of caring for the ill and mentally

impaired. I also have a 41 yo brother with Downs Syndrome who when I

was 5 yo was told that " God gave him to us because he knew we would

take care of him " . Have been doing so all my life, I'm 46. HELP

[Guest guest]

" kbellomyrees "

So sorry I didn't get your name...welcome to the caregivers group. You have

explained your story very well. I see you have asked for help. This is the

place to be. Have you noticed your MIL's (mother-in-law) symptoms fluctuating?

Are there times of the day when she struggles more than other times? Is she

taking any medications?

Please sign with a name, I feel a bit odd not being able to address you

properly.

My dad passed away from LBD in Sept. 2002. I have chosen to stay here, actually

rejoined recently, in hopes of helping others through their journey.

Will wait for your reply. This is a support group, not a chatroom. You will

notice that when you reply, you will receive your reply back as all emails go to

all members of the group. Easy to remedy, just delete your own email.

Please ask any questions.

Regards-

Sandie

Des Moines, IA

[Guest guest]

Hi and Welcome to the group.

Sorry to hear that you have to justify your caring for your MIL but happy to

read that you have a great relationship with her. Sounds like you've had

your share of caregiving as well - perhaps a point your BIL is missing.

Courage

I'm new but experienced

>I'm new to this chat room, and chat rooms altogether. I don't

>understand how this works. My mother-in-law (I love her dearly,

>probably more than my husband) came to live with us (at my insistence

>at the beginning of November 2003, I would have preferred spring of

>2003, before she got so sick, however I am the 24/7 caregiver and am

>losing my patience with my husband and his brother (who thinks he is

>such a good caregiver because he transported her to radiation appts

>during the summer of 2002 and he worked as a " babysitter " at a local

>upscale nursing home for 8 hours a day (2nd shift) for 5 weeks and

>knows everything. My husband and his brother have a volatile

>relationship and I turned down POA because I did not want to fight

>with them. However, I took care of my mother-in-law and assisted her

>in many aspects of her life that they were not aware of she could not

>do her own since the time of her husband's death in the spring of

>2001. Her and I are very close, others also know that if it were not

>for me she would be in a NH or have passed already. For the record,

>My experience is that I worked as a medical secretary during the

>1980s (when everyone did hands-on care) and have stayed focused on

>medical aspects of society). Also, my mother (another medical

>person) and I brought my grandmother (her mother) into our home and

>cared for her as a cancer inflicted hospice patient until her death.

>I also have a grandmother of 89 who suffered a stroke on 9/10/2001

>and has stroke induced dementia yet is being cared for 24/7 by my 67

>yo father with health problems himself. I am VERY WELL INFORMED of

>the trials and tribulations of caring for the ill and mentally

>impaired. I also have a 41 yo brother with Downs Syndrome who when I

>was 5 yo was told that " God gave him to us because he knew we would

>take care of him " . Have been doing so all my life, I'm 46. HELP

>

>

>

>

>Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Welcome!! I know how this seems to be a difficult process but in

time you'll be posting and getting help and offering advice and

wonder how you ever got along before this group. Welcome to the very

kindest, most caring group on the web. I know you'll benefit and we

will benefit from your knowledge and what sounds like loads of

experience.

Good for you for being the voice of reason amidst the malestrom that

occurs between your husband and his brother. Your mil needs you to

be there for her since her sons have their own issues to deal with.

I'm very impressed by your evident love for your mil. She's very

lucky to have you.

I hope you come to see this group as amazing and integral to your

caregiving as we all do.

Abby

[Guest guest]

Welcome to the group. I am 43 and am caring for my 79 year old mother who

was diagnosed with LBD in October 2002, but I think she had it probably

about a year before. She lives next door to me and just before being

diagnosed she was moved to a retirement home for more care, but returned

home with a private caregiver(s) since last May. My brother and sister live

out of town and are not in the picture much. Mom has done well on Reminyl

and that is the main reason she was able to come home. The tremors bother

her a great deal but too much Sinemet causes the hallucinations to return

full force so it is always a balancing act with meds. She thinks the meds

make her sick and often doesn't want to take them. Hope you find support

with this group. They have been a Godsend to me.

Kath in Toronto

P.S. If you would like to be added to the caregivers location list please

email me at skward2@... with any information you would like to see.

Check out the files section, and look at the list to see what others have

included.

I'm new but experienced

> I'm new to this chat room, and chat rooms altogether. I don't

> understand how this works. My mother-in-law (I love her dearly,

> probably more than my husband) came to live with us (at my insistence

> at the beginning of November 2003, I would have preferred spring of

> 2003, before she got so sick, however I am the 24/7 caregiver and am

> losing my patience with my husband and his brother (who thinks he is

> such a good caregiver because he transported her to radiation appts

> during the summer of 2002 and he worked as a " babysitter " at a local

> upscale nursing home for 8 hours a day (2nd shift) for 5 weeks and

> knows everything. My husband and his brother have a volatile

> relationship and I turned down POA because I did not want to fight

> with them. However, I took care of my mother-in-law and assisted her

> in many aspects of her life that they were not aware of she could not

> do her own since the time of her husband's death in the spring of

> 2001. Her and I are very close, others also know that if it were not

> for me she would be in a NH or have passed already. For the record,

> My experience is that I worked as a medical secretary during the

> 1980s (when everyone did hands-on care) and have stayed focused on

> medical aspects of society). Also, my mother (another medical

> person) and I brought my grandmother (her mother) into our home and

> cared for her as a cancer inflicted hospice patient until her death.

> I also have a grandmother of 89 who suffered a stroke on 9/10/2001

> and has stroke induced dementia yet is being cared for 24/7 by my 67

> yo father with health problems himself. I am VERY WELL INFORMED of

> the trials and tribulations of caring for the ill and mentally

> impaired. I also have a 41 yo brother with Downs Syndrome who when I

> was 5 yo was told that " God gave him to us because he knew we would

> take care of him " . Have been doing so all my life, I'm 46. HELP

>

>

>

>

> Welcome to LBDcaregivers.

>

>

>