Guest guest Posted April 11, 2007 Report Share Posted April 11, 2007 I have been trying to find someone who had these same two symptoms for like three years now. I am actually excited to know that I am not the only one. Strange bruising for no reason at all - my so called doctor doesn't think that it warrants looking into or that it is a problem. As far as the dizziness/lightheaded feeling.....I have had this on and off for three years now. It seems worse during the change of seasons and also when I get really run down/tired - even more tired than I usually am. Ha-Ha. I had my heart checked out and some quack wanted me to take medicine three times a day to RAISE my blood pressure. Isn't that the craziest thing you have ever heard? Just seeing your post makes me feel like I am not alone. Thank You and Have a nice day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2007 Report Share Posted April 11, 2007 No Offense Pointer 111, but low blood pressure and orthostatic intolerance are very common problems for people with ME, when I first relapsed my BP was crashing at 80/46 and I couldn't walk unaided. I could get no doc to order meds (and I hear they're not that great) and I wished I could! If that is a problem for you then you should know about it, in fact it is a common cause of the dizziness and lightheadedness you mention. But the first treatment one tries is very simple: just increase your salt and fluid intake can help sometimes (but not me) There's lots of info on CFS/ME sites about this. That doc should have explained to you better why they said that, but may not have been quite the quack that you thought! Cheers, Aylwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 Actually, no, its not the craziest thing I ever heard. Low blood pressure is one of the major culprits in Orthostatic Hypotension related light headedness. I don't take anything to raise mine, but I do try to eat extra salt and drink plenty of water. I have found that these things help. Also, I have often wondered if low blood pressure could be contributing to my fatigue. I have this theory that part of our problem could be a result of poor oxygenation (is that a word?) of our blood, cells, brain, etc. and wouldn't that relate back to low blood pressure? I think I might be tempted to try it (after doing a bit more research.) These are just some of the things rattling around my swiss cheese brain these days. Am I crazy? English Re:Need some info I have been trying to find someone who had these same two symptoms for like three years now. I am actually excited to know that I am not the only one. Strange bruising for no reason at all - my so called doctor doesn't think that it warrants looking into or that it is a problem. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 Actually if your blood pressure is to low than your dizziness and nausea could be caused by that. It is called orthostatic hypertension. You notice it especially when changing positions like going from lying down to sitting up or sitting to standing. But if it is low enough than it can be a problem even in any position. So, if your BP is normal than it is not an issue, if it is really low than it is something to investigate. I was on a medication for a while that did cause my blood pressure to be low and my doctor just told me that when I change positions to give myself a minute or so to normalize at that position before moving about. To determine if this is an issue for you the doctor has to take your BP standing, sitting, and lying down and see what the difference in position makes. Sandrea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 There are small devices that go on one finger and measure the amount of O2 in your bloodstream. I have no idea if you could get a hold of one of these but it would let you monitor yourself for a while and see how you do. They have these in hospitals and some doctor's offices. I know you can get home blood pressure machines, maybe you can get one of these too. Sandrea Re:Need some info Actually, no, its not the craziest thing I ever heard. Low blood pressure is one of the major culprits in Orthostatic Hypotension related light headedness. I don't take anything to raise mine, but I do try to eat extra salt and drink plenty of water. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 Hi , I believe there is lots of research to show we have hypoperfusion of parts of our brains, low O2 and nutrients, this is what some of the brain scan research shows. Sorry not very coherent today, no blood to my brain! Aylwin xo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 Hi Sandrea, well it can be ewven more complicated than that, with NMH and POTS, which need more testing than you describe, the CFIDS site has the info. Sorry I'm not good about doing links, I'm not that organized or have the brains/'puter savvy/energy.but the info is easy to find. TC, Aylwin xo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 Okay so I am obviously suffering a memory lapse. What does this email refer to? I don't know what the abbreviations stand for either. Did I ask a question about this? Sandrea Re:Need some info Hi Sandrea, well it can be ewven more complicated than that, with NMH and POTS, which need more testing than you describe, the CFIDS site has the info. Sorry I'm not good about doing links, I'm not that organized or have the brains/'puter savvy/energy.but the info is easy to find. TC, Aylwin xo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 That would be cool to see what the O2 Levels are. I do have a bp machine that my husband uses for his high bp. I feel guilty every time I use it b/c it messes up his history. Besides, I definitely don't need it to know that I am low, my light head lets me know! English Re:Need some info There are small devices that go on one finger and measure the amount of O2 in your bloodstream. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 Thanks Aylwin, I'll google it! English Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 Sorry Sandrea, I thought it was you.sometimes the way the emails come through is confusing, to me anyway, and I was too brain impaired to elaborate.this was about low blood pressure and Orthostatic Intolerance. NMH (neurally mediated hypotension) and POTS (postural orthostatic tachychardia syndrome) are the types of OI common in folks with ME and do not show up in the doc's simple lying/standing BP check, as they are often delayed response. There are proper tests though. The link is : www.cfids.org/about-cfids/orthostatic-intolerance.asp , it has the diagnostic info. Hope this clarifies things, for you or whoever! Sending spring flowers, Aylwin xox " Life is about not knowing, having to change, taking the moment and making the best of it, without knowing what's going to happen next. Delicious ambiguity. " Gilda Radner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 I thought that you said that you wondered if you aren't able to get enough O2 in and wondered if that was a fact. Sandrea Re:Need some info That would be cool to see what the O2 Levels are. I do have a bp machine that my husband uses for his high bp. I feel guilty every time I use it b/c it messes up his history. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 I read the article and it was really informative thanks. I may ask my internist about this. Although the treatment with amphetamines is something I can't do because of my history with Tardive Dyskenesia. And I already take SSRIs. Sandrea RE: Re:Need some info Sorry Sandrea, I thought it was you.sometimes the way the emails come through is confusing, to me anyway, and I was too brain impaired to elaborate.this was about low blood pressure and Orthostatic Intolerance. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.