Re: Re: keppra (to bonnie)

[Guest guest]

my son is 4 years old he doesnt talk either it is hard for us to know what he

wants how did you get your grand dsughter to let her family know what does she

do my son has seizures he is on 3 seizures meds. 1 is keppra which i believe

stoped his grand mals he still has 1-3min ones which i can handle because when

he has a grand mal he would get medflighted to a hospital 2 hours away he has

been medflighted 6 times from june 2007=====to march 2009 please let me know how

to help my son  thank you

Subject: Re: keppra

To: polymicrogyria

Date: Thursday, May 20, 2010, 1:05 PM

 

What were their first seizures like?

My daughter last summer had some episodes at night where in the morning she was

foggy and lost functional control a in weight bearing and balance. She was

usually dry in the morning but these nights she wet herself. By the time we got

her in for an EEG two episodes later it was only showing slowing and no seizure

activity. I was told that the only explanation was that she had a seizure and

they started her an Keppra. Since she started the keppra she gained daytime

bladder control.

I just feel out of sorts b/c as far as I know I have never seen a seizure of

hers. When she was little she had leg spasms and I mentioned this to the doctor

and they said they were just muscle spasms. She was acting normal during this

time.

How did you find out about the night time seizures? I tried taping her but

didn't really see anything obvious.

Do you notice a typical behavior prior to an oncoming seizure? I just feel so

uninformed.

ps. My daughter did have mood issues but the docs added B6 and that really

helped.

>

> Hi

>

> We are in the UK.My daughter Lucy (10 tomorrow) had her first seizure a

> week before her 4th birthday (terrifying). I thought she wasn't going to get

> them because was mis-informed and told that as she hadn't had any by the

> time she was 2 and a half, she probably wouldn't get them. Since reading up

> on PMG, I think the average time for onset is about 3/4 years of age.

>

> Well, her seizures were very infrequent for about 3 years so no medication

> and apart from a couple they all occurred within an hour of her going to

> sleep at night. Then they started occurring more frequently....maybe a

> couple every 6 weeks so she started on Epilim (Sodium Valporate) in jan 2008.

> Lucy now has 10ml twice a day via oral syringe and no side effects but not

> convinced they are stopping the seizures (she still has them occasionally).

> Scared to come off the meds though.

>

> Have never heard of Keppra over here. Will certainly mention it when next

> go to consultant.

>

> Love from the other side of the pond

>

> Bower

>

>

>