Does anyone have experience with Vigabatrin (Sabril)?

[Guest guest]

Hi,

My 8-month-old son has been having seizures since he was 3.5 months old. We have

tried Keppra, Trileptal, Depakote and Topamax. The Topamax was the only drug

that reduced the frequency of the seizures so he's still on that one. When his

seizures morphed into infantile spasms, we tried a high-dose of steroids. That

didn't work. Now we're trying Vigabatrin. He has been on it for 4 days and so

far he hasn't had any seizures. I'd like to be able to get my hopes up, but

with all the other drugs, there was always what his doctor called a " honeymoon

period " , where the drug would stop the seizures for a few days. But the

seizures always returned.

Has anyone else used Vigabatrin? Is there often a honeymoon period with this

drug, or, if it works in the beginning, does it keep working?

Thanks so much,