Re: Re: Breathing like panting

[Guest guest]

does exactly this when he needs Vest Airway treatments.  It is ususally

a sign that he has lots of junk in his lungs.  When we do percussion....and he

'gives' us the junk....we can avoid his getting sick.  

Sharon - Mom to (13)

Subject: Re: Breathing like panting

To: polymicrogyria

Date: Friday, August 6, 2010, 12:31 AM

 

It is very hot outside but this started and continued inside our house at about

70 degrees with the AC.

>

>

>

> , how is the weather? Is your state going thru an extreme heat wave?

>

>

> ________________________________

>

> To: polymicrogyria

> Sent: Thu, August 5, 2010 2:26:19 PM

> Subject: Breathing like panting

>

> Hey everyone,

>

> Phoebe (3 1/2yrs) started on Monday night 8/2/10 breathing rapidly. It looks

> like panting. This went off and on and by Wednesday it wouldn't stop. We took

> her to her pediatritian and he thought it was a seizure and put her on

klonopin.

> Her chest x-ray was normal. We saw her neurologist today and he said it wasn't

a

> seizure but didn't know what it could be. Her lab work on Friday had elevated

> liver enymes and low lactic acid. He ordered repeat lab work to compare.

>

> I don't know what this could be. Neither do the doctors. They think her lungs

> are fine, not respitory or the muscles around. Not airway obstruction. Her

color

> is fine. Not dusky, her fingers are normal pink looking. She doesn't look like

> she is in any distress. Yet she still keeps panting. Her respirations have

> jumped from the 20's to the 40's and 50's.

>

> Here's more info:

> Age 3 1/2

> Weight 39.3

> Medicines: Keppra, Topamax, Prevacid and Klonopin only one dose (which I will

> discontinue)

> Seizures, PMG, Postnatal Microcephaly, Diffuse white matter disease, G-tube

fed.

>

>

> I don't know what to do or what kind of doctor to see. Anyone have kids that

> have started breathing like this? It's like she just started it on Monday

> without any change like shots, or weather or anything.

>

> Any ideas?

>

> - Reynolds

>

>

>

> ------------------------------------

>

>

[Guest guest]

Percussion definately helps if kids are coughing, or if stuff is in their

lungs. Maybe ask your doc or Medicaid Services Coordinator (do you have those in

your state?) about getting one of those vests. Also, what was the pulse ox rate?

and some O2 wouldn't hurt, right? Plenty of kids with disabilities have an

oxygen tank at home....

YOu must be so stressed out!

Good luck,

Thea in NY

Breathing like panting

>

> Hey everyone,

>

> Phoebe (3 1/2yrs) started on Monday night 8/2/10 breathing rapidly. It looks

> like panting. This went off and on and by Wednesday it wouldn't stop. We took

> her to her pediatritian and he thought it was a seizure and put her on

klonopin.

> Her chest x-ray was normal. We saw her neurologist today and he said it wasn't

a

> seizure but didn't know what it could be. Her lab work on Friday had elevated

> liver enymes and low lactic acid. He ordered repeat lab work to compare.

>

> I don't know what this could be. Neither do the doctors. They think her lungs

> are fine, not respitory or the muscles around. Not airway obstruction. Her

color

> is fine. Not dusky, her fingers are normal pink looking. She doesn't look like

> she is in any distress. Yet she still keeps panting. Her respirations have

> jumped from the 20's to the 40's and 50's.

>

> Here's more info:

> Age 3 1/2

> Weight 39.3

> Medicines: Keppra, Topamax, Prevacid and Klonopin only one dose (which I will

> discontinue)

> Seizures, PMG, Postnatal Microcephaly, Diffuse white matter disease, G-tube

fed.

>

>

> I don't know what to do or what kind of doctor to see. Anyone have kids that

> have started breathing like this? It's like she just started it on Monday

> without any change like shots, or weather or anything.

>

> Any ideas?

>

> - Reynolds

>

>

>

> ------------------------------------

>

>

[Guest guest]

has a seizure where he looks like he is having trouble breathing, we call

it the gasping seizure, and it has freak many drs out when they see it, his

resipations do become increased but we have put a pulso ox on him during it and

his o2 is normal, they have done xrays to see if somtheing is blocking his

airway and can find nothing, it is really scary to hear and see your child

struggle to breathe. 

________________________________

To: polymicrogyria

Sent: Fri, August 6, 2010 10:15:46 AM

Subject: Re: Re: Breathing like panting

 

Percussion definately helps if kids are coughing, or if stuff is in their lungs.

Maybe ask your doc or Medicaid Services Coordinator (do you have those in your

state?) about getting one of those vests. Also, what was the pulse ox rate? and

some O2 wouldn't hurt, right? Plenty of kids with disabilities have an oxygen

tank at home....

YOu must be so stressed out!

Good luck,

Thea in NY

Breathing like panting

>

> Hey everyone,

>

> Phoebe (3 1/2yrs) started on Monday night 8/2/10 breathing rapidly. It looks

> like panting. This went off and on and by Wednesday it wouldn't stop. We took

> her to her pediatritian and he thought it was a seizure and put her on

>klonopin.

>

> Her chest x-ray was normal. We saw her neurologist today and he said it wasn't

>a

>

> seizure but didn't know what it could be. Her lab work on Friday had elevated

> liver enymes and low lactic acid. He ordered repeat lab work to compare.

>

> I don't know what this could be. Neither do the doctors. They think her lungs

> are fine, not respitory or the muscles around. Not airway obstruction. Her

>color

>

> is fine. Not dusky, her fingers are normal pink looking. She doesn't look like

> she is in any distress. Yet she still keeps panting. Her respirations have

> jumped from the 20's to the 40's and 50's.

>

> Here's more info:

> Age 3 1/2

> Weight 39.3

> Medicines: Keppra, Topamax, Prevacid and Klonopin only one dose (which I will

> discontinue)

> Seizures, PMG, Postnatal Microcephaly, Diffuse white matter disease, G-tube

>fed.

>

>

> I don't know what to do or what kind of doctor to see. Anyone have kids that

> have started breathing like this? It's like she just started it on Monday

> without any change like shots, or weather or anything.

>

> Any ideas?

>

> - Reynolds

>

>

>

> ------------------------------------

>

>