Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 It could have been viral die-off with the Lauricidin or it may be yeast. My sons vocal tics got better with lauricidin but do come back if his yeast gets out of hand. Patti- -- In , " puresleep " <puresleep@v...> wrote: > Listmates, > Once again I need your input.My 11 yr old HFA daughter is > having a major regression in behaviors that we have not seen for years.She is throwing things,screaming,kicking,cursing,and scripting tv movies and shows all the time and laughing like she is really watching it.Her meaningful communication is about gone. > we are gfcfsf and use houston enzymes.I had also tried lauricidin and IP6 but that gave her a facial tic.The only other time she had tics wasw/a trial of paxil.When I took her off the lauricidin the tics went away but within a week she got ill.I thought it was strep but she tested negative.She has had strep in the past.Is it possible the strep could be active and test negative?After she got well,the tics came back briefly,then we had a somewhat calm week,then 2 days ago WOW,I am at a loss she is not able to explain why she is so angry and nothing seems to help her calm down.She also has been trying to eat all the time,I am limiting carbs and she will eat a 2lb bag of carrotts and is very thirsty also and is gaining alot of weight > Does anyone have a recommendation for an antiviral that is otc?I read about the licorice root,I think that might help.Also any appetite suppressors that might be ok?The > calcium and magnesium is nolonger working to calm her at > nite and she gets up frequently and wanders around > Thank you so much > theresa > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Hi Patti, Do you think I should start the lauricidin back?Maybe it activated something but didnot eliminate it thanks Theresa [ ] Re: please need info,advice,behaviors worsening It could have been viral die-off with the Lauricidin or it may be yeast. My sons vocal tics got better with lauricidin but do come back if his yeast gets out of hand. Patti- -- In , " puresleep " <puresleep@v...> wrote: > Listmates, > Once again I need your input.My 11 yr old HFA daughter is > having a major regression in behaviors that we have not seen for years.She is throwing things,screaming,kicking,cursing,and scripting tv movies and shows all the time and laughing like she is really watching it.Her meaningful communication is about gone. > we are gfcfsf and use houston enzymes.I had also tried lauricidin and IP6 but that gave her a facial tic.The only other time she had tics wasw/a trial of paxil.When I took her off the lauricidin the tics went away but within a week she got ill.I thought it was strep but she tested negative.She has had strep in the past.Is it possible the strep could be active and test negative?After she got well,the tics came back briefly,then we had a somewhat calm week,then 2 days ago WOW,I am at a loss she is not able to explain why she is so angry and nothing seems to help her calm down.She also has been trying to eat all the time,I am limiting carbs and she will eat a 2lb bag of carrotts and is very thirsty also and is gaining alot of weight > Does anyone have a recommendation for an antiviral that is otc?I read about the licorice root,I think that might help.Also any appetite suppressors that might be ok?The > calcium and magnesium is nolonger working to calm her at > nite and she gets up frequently and wanders around > Thank you so much > theresa > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 --It is hard to say. For us we needed to get throught the " viral die off " stage. I know Dana said that her son had a hard time with it. I did persevere and seemed to get the virus out. Did you work up slowly? I ramped up very slowly...added a pellet only once every 3 days. It didnt make my daughters rash go away until I got up to about 25 pellets, I didnt want to go any faster because I was afraid that her face would completely break out. I have lyme and added it to my regimine as I have read on my lyme list that it really helps keep opportunistic viruses at bay for us lymies. I did notice a die off feeling when I started it up as well. Patti In , " puresleep " <puresleep@v...> wrote: > Hi Patti, > Do you think I should start the lauricidin back?Maybe it activated something but didnot eliminate it > thanks > Theresa > [ ] Re: please need info,advice,behaviors worsening > > > > It could have been viral die-off with the Lauricidin or it may be > yeast. My sons vocal tics got better with lauricidin but do come back > if his yeast gets out of hand. > Patti- > > -- In , " puresleep " <puresleep@v...> wrote: > > Listmates, > > Once again I need your input.My 11 yr old HFA daughter is > > having a major regression in behaviors that we have not seen for > years.She is throwing things,screaming,kicking,cursing,and scripting > tv movies and shows all the time and laughing like she is really > watching it.Her meaningful communication is about gone. > > we are gfcfsf and use houston enzymes.I had also tried lauricidin > and IP6 but that gave her a facial tic.The only other time she had > tics wasw/a trial of paxil.When I took her off the lauricidin the tics > went away but within a week she got ill.I thought it was strep but she > tested negative.She has had strep in the past.Is it possible the strep > could be active and test negative?After she got well,the tics came > back briefly,then we had a somewhat calm week,then 2 days ago WOW,I am > at a loss she is not able to explain why she is so angry and nothing > seems to help her calm down.She also has been trying to eat all the > time,I am limiting carbs and she will eat a 2lb bag of carrotts and is > very thirsty also and is gaining alot of weight > > Does anyone have a recommendation for an antiviral that is otc?I > read about the licorice root,I think that might help.Also any appetite > suppressors that might be ok?The > > calcium and magnesium is nolonger working to calm her at > > nite and she gets up frequently and wanders around > > Thank you so much > > theresa > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Oh Theresa, have you had her tested for P.A.N.D.A.S.? Patti > > > Listmates, > > > Once again I need your input.My 11 yr old HFA daughter is > > > having a major regression in behaviors that we have not seen for > > years.She is throwing things,screaming,kicking,cursing,and scripting > > tv movies and shows all the time and laughing like she is really > > watching it.Her meaningful communication is about gone. > > > we are gfcfsf and use houston enzymes.I had also tried lauricidin > > and IP6 but that gave her a facial tic.The only other time she had > > tics wasw/a trial of paxil.When I took her off the lauricidin the tics > > went away but within a week she got ill.I thought it was strep but she > > tested negative.She has had strep in the past.Is it possible the strep > > could be active and test negative?After she got well,the tics came > > back briefly,then we had a somewhat calm week,then 2 days ago WOW,I am > > at a loss she is not able to explain why she is so angry and nothing > > seems to help her calm down.She also has been trying to eat all the > > time,I am limiting carbs and she will eat a 2lb bag of carrotts and is > > very thirsty also and is gaining alot of weight > > > Does anyone have a recommendation for an antiviral that is otc?I > > read about the licorice root,I think that might help.Also any appetite > > suppressors that might be ok?The > > > calcium and magnesium is nolonger working to calm her at > > > nite and she gets up frequently and wanders around > > > Thank you so much > > > theresa > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Hi Theresa, Have you done an ASO titer re: the strep? (A throat culture is not as reliable an indicator.) If the ASO titer goes up, my son will worsen behaviorally; likewise, he improves as it drops. Heidi please need info,advice,behaviors worsening Listmates, Once again I need your input.My 11 yr old HFA daughter is having a major regression in behaviors that we have not seen for years.She is throwing things,screaming,kicking,cursing,and scripting tv movies and shows all the time and laughing like she is really watching it.Her meaningful communication is about gone. we are gfcfsf and use houston enzymes.I had also tried lauricidin and IP6 but that gave her a facial tic.The only other time she had tics wasw/a trial of paxil.When I took her off the lauricidin the tics went away but within a week she got ill.I thought it was strep but she tested negative.She has had strep in the past.Is it possible the strep could be active and test negative?After she got well,the tics came back briefly,then we had a somewhat calm week,then 2 days ago WOW,I am at a loss she is not able to explain why she is so angry and nothing seems to help her calm down.She also has been trying to eat all the time,I am limiting carbs and she will eat a 2lb bag of carrotts and is very thirsty also and is gaining alot of weight Does anyone have a recommendation for an antiviral that is otc?I read about the licorice root,I think that might help.Also any appetite suppressors that might be ok?The calcium and magnesium is nolonger working to calm her at nite and she gets up frequently and wanders around Thank you so much theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 You might want to have your doctor order an aso titer to see if there is a strep issue. Then you do a trial of antibiotics if it is high. --- puresleep <puresleep@...> wrote: > > Listmates, > Once again I need your input.My 11 yr old HFA > daughter is > having a major regression in behaviors that we have > not seen for years.She is throwing > things,screaming,kicking,cursing,and scripting tv > movies and shows all the time and laughing like she > is really watching it.Her meaningful communication > is about gone. > we are gfcfsf and use houston enzymes.I had also > tried lauricidin and IP6 but that gave her a facial > tic.The only other time she had tics wasw/a trial of > paxil.When I took her off the lauricidin the tics > went away but within a week she got ill.I thought it > was strep but she tested negative.She has had strep > in the past.Is it possible the strep could be active > and test negative?After she got well,the tics came > back briefly,then we had a somewhat calm week,then 2 > days ago WOW,I am at a loss she is not able to > explain why she is so angry and nothing seems to > help her calm down.She also has been trying to eat > all the time,I am limiting carbs and she will eat a > 2lb bag of carrotts and is very thirsty also and is > gaining alot of weight > Does anyone have a recommendation for an antiviral > that is otc?I read about the licorice root,I think > that might help.Also any appetite suppressors that > might be ok?The > calcium and magnesium is nolonger working to calm > her at > nite and she gets up frequently and wanders around > Thank you so much > theresa > > [Non-text portions of this message have been > removed] > > > > > ===== Barb Katsaros barbkatsaros@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi , I'm new hear, when my 11yr old get hyper from eating sweets or something else, we give him a glass of aloe vera, (Lily Of The Valley) juice that normally calms him down in about 15 mins, and for sleeping , you need tea chocolate sweeting with glucose that should make them sleep right tru the nite, you can get the tea chocolate from a caribbean store Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Heidi, Thank you,is this a specific lab for this test?in thisarea they use Labcorp theresa Re: please need info,advice,behaviors worsening Hi Theresa, Have you done an ASO titer re: the strep? (A throat culture is not as reliable an indicator.) If the ASO titer goes up, my son will worsen behaviorally; likewise, he improves as it drops. Heidi Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Barb, thank you,I havean appt w/ped this week I will ask about getting the test.Can you recommend a probiotic to use w/antibiotic as I am surewe are also dealing w/yeast issues as well.Did you post about a book your son wrote? thanks Tjeresa Re: please need info,advice,behaviors worsening You might want to have your doctor order an aso titer to see if there is a strep issue. Then you do a trial of antibiotics if it is high. Barb Katsaros barbkatsaros@... Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi, We do not have a caribebean store,can you recommend a brand,maybe I can get it from HFS Thanks theresa Re: please need info,advice,behaviors worsening Hi , I'm new hear, when my 11yr old get hyper from eating sweets or something else, we give him a glass of aloe vera, (Lily Of The Valley) juice that normally calms him down in about 15 mins, and for sleeping , you need tea chocolate sweeting with glucose that should make them sleep right tru the nite, you can get the tea chocolate from a caribbean store Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Dr. Goldberg rec. kyodophilus or any other single strain probiotic. He says they are better tolerated--cause less allergic rxns. We get it from gnc. It would be a good idea to purchase a gold card. It pays for itself thru the discount that is the first week of every month--30 percent off where we are. No, I did not post about a book my son wrote. You must have me confused with someone else. Good luck. Barb ps: My son was on emycin--333 tabs tid for over a year, and his strep is coming down. We tried keflex in between, but it was less effective. We are now on our 3rd penicillin shot, which seems to bring the aso down the quickest. It is very hard to bring down in my son. After a year and a half, it has come down to 444, from 777. --- puresleep <puresleep@...> wrote: > > Barb, > thank you,I havean appt w/ped this week I will ask > about getting the test.Can you recommend a probiotic > to use w/antibiotic as I am surewe are also dealing > w/yeast issues as well.Did you post about a book > your son wrote? > thanks > Tjeresa > Re: please need > info,advice,behaviors worsening > > > > You might want to have your doctor order an aso > titer > to see if there is a strep issue. Then you do a > trial > of antibiotics if it is high. > Barb Katsaros > barbkatsaros@... > > > > > > Responsibility for the content of this message > lies strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 > we are gfcfsf and use houston enzymes.I had also tried lauricidin and IP6 but that gave her a facial tic. Lauricidin caused major yeast for my kids. Consider increasing your yeast protocol. >>She also has been trying to eat all the time,I am limiting carbs My son would try to eat all the time for two reasons. First, when he was eating a food or supplement he did not tolerate. Second, when he had a yeast issue. >>Does anyone have a recommendation for an antiviral that is otc? Olive leaf extract works very well for us. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Thank you Dana, I bought some ole last nite.It is in 450mg caps.I split these to give 2x a day.Is that good she weighs 130lb thanks theresa [ ] Re: please need info,advice,behaviors worsening > we are gfcfsf and use houston enzymes.I had also tried lauricidin and IP6 but that gave her a facial tic. Lauricidin caused major yeast for my kids. Consider increasing your yeast protocol. >>She also has been trying to eat all the time,I am limiting carbs My son would try to eat all the time for two reasons. First, when he was eating a food or supplement he did not tolerate. Second, when he had a yeast issue. >>Does anyone have a recommendation for an antiviral that is otc? Olive leaf extract works very well for us. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 > Thank you Dana, > I bought some ole last nite.It is in 450mg caps.I split these to give 2x a day.Is that good she weighs 130lb I have 500 mg capsules. I give my son [age 8-1/2, 65 pounds] 1-2 capsules, 2-3x per day. It is good to start at a a lower dose, but you might need to work up to a higher dose. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 No,I have not had her tested for pandas,I think that might be a possibility.she stayed sick from the time she first regressed(15 Mo)w/ear infections,throat,respiratory colds,sinus even a bad case of salmonella once until she was about 7.She has always been a girl who loved her food,but was a skinny little one until she was eight.we tried secretin every 6 weeks or so for 1 yr.it eliminated diarrea(sp)but thats about it.after that year she started to gain weight..to much..I get blamed for carrying the chubby gene.. my kids all start getting chubby around age 9 or so,just like I did.she wastested for prader willi and negative,thus far no genetic cause has been found,but why are mainsteam Docs willing to do genetic testing and hesitant to test for yeast,viral etc.it is frustrating I know there is an immune link,her father has allergies and I have fibromyalgia thanks theresa [ ] Re: please need info,advice,behaviors worsening Oh Theresa, have you had her tested for P.A.N.D.A.S.? Patti > > > Listmates, > > > Once again I need your input.My 11 yr old HFA daughter is > > > having a major regression in behaviors that we have not seen for > > years.She is throwing things,screaming,kicking,cursing,and scripting > > tv movies and shows all the time and laughing like she is really > > watching it.Her meaningful communication is about gone. > > > we are gfcfsf and use houston enzymes.I had also tried lauricidin > > and IP6 but that gave her a facial tic.The only other time she had > > tics wasw/a trial of paxil.When I took her off the lauricidin the tics > > went away but within a week she got ill.I thought it was strep but she > > tested negative.She has had strep in the past.Is it possible the strep > > could be active and test negative?After she got well,the tics came > > back briefly,then we had a somewhat calm week,then 2 days ago WOW,I am > > at a loss she is not able to explain why she is so angry and nothing > > seems to help her calm down.She also has been trying to eat all the > > time,I am limiting carbs and she will eat a 2lb bag of carrotts and is > > very thirsty also and is gaining alot of weight > > > Does anyone have a recommendation for an antiviral that is otc?I > > read about the licorice root,I think that might help.Also any appetite > > suppressors that might be ok?The > > > calcium and magnesium is nolonger working to calm her at > > > nite and she gets up frequently and wanders around > > > Thank you so much > > > theresa > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Thank you Dana Theresa [ ] Re: please need info,advice,behaviors worsening > Thank you Dana, > I bought some ole last nite.It is in 450mg caps.I split these to give 2x a day.Is that good she weighs 130lb I have 500 mg capsules. I give my son [age 8-1/2, 65 pounds] 1-2 capsules, 2-3x per day. It is good to start at a a lower dose, but you might need to work up to a higher dose. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Low carnitine levels can be the cause of weight gain, if you are sure that the calorie count being consumed is correct. Also, thyroid issues nay be of concern. -GA [ ] Re: please need info,advice,behaviors worsening Oh Theresa, have you had her tested for P.A.N.D.A.S.? Patti > > > Listmates, > > > Once again I need your input.My 11 yr old HFA daughter is > > > having a major regression in behaviors that we have not seen for > > years.She is throwing things,screaming,kicking,cursing,and scripting > > tv movies and shows all the time and laughing like she is really > > watching it.Her meaningful communication is about gone. > > > we are gfcfsf and use houston enzymes.I had also tried lauricidin > > and IP6 but that gave her a facial tic.The only other time she had > > tics wasw/a trial of paxil.When I took her off the lauricidin the tics > > went away but within a week she got ill.I thought it was strep but she > > tested negative.She has had strep in the past.Is it possible the strep > > could be active and test negative?After she got well,the tics came > > back briefly,then we had a somewhat calm week,then 2 days ago WOW,I am > > at a loss she is not able to explain why she is so angry and nothing > > seems to help her calm down.She also has been trying to eat all the > > time,I am limiting carbs and she will eat a 2lb bag of carrotts and is > > very thirsty also and is gaining alot of weight > > > Does anyone have a recommendation for an antiviral that is otc?I > > read about the licorice root,I think that might help.Also any appetite > > suppressors that might be ok?The > > > calcium and magnesium is nolonger working to calm her at > > > nite and she gets up frequently and wanders around > > > Thank you so much > > > theresa > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Theresa, I believe any lab can do this. . .we just go through our local Healthcare Clinical Lab. Heidi Re: please need info,advice,behaviors worsening Hi Theresa, Have you done an ASO titer re: the strep? (A throat culture is not as reliable an indicator.) If the ASO titer goes up, my son will worsen behaviorally; likewise, he improves as it drops. Heidi Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi Barb, Thank you for your input,I know I will need a card from gnc,it seems that this is going to take awhile.I wonder if the lauricidin might have activated a viral issue but not to the degree wher it would test positive.I was told I was allergic to penicillian by my mom but never knew if this is true.Does anyone knowwhy this is so hard to bring down in your son>?sorry about asking about the book,that moms name is Barb also thank you theresa Re: please need > info,advice,behaviors worsening > > > > You might want to have your doctor order an aso > titer > to see if there is a strep issue. Then you do a > trial > of antibiotics if it is high. > Barb Katsaros > barbkatsaros@... > > > > > > Responsibility for the content of this message > lies strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 The Vitamin Shoppe: Makes Kyodophilus in their generic brand: vita acidophilus it's the exact same ingred as Kyo, but much cheaper... $11/bottle for 100 Also....Dairy Free, Yeast Free, etc... M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Thanks heidi Re: please need info,advice,behaviors worsening Hi Theresa, Have you done an ASO titer re: the strep? (A throat culture is not as reliable an indicator.) If the ASO titer goes up, my son will worsen behaviorally; likewise, he improves as it drops. Heidi Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Strep is very hard to remove from the body, and the body keeps having autoimmune responses to it, in certain individuals. It's possible that lauricidin activated an immune response. Sometimes, the impurities in these products which are over the counter can be a big problem to the immune system. My sons were on large doses of vitamins as prescribed by Pfeiffer Center, and Dr. Goldberg had us stop all of them. The boys are now on a One A Day vitamin. --- puresleep <puresleep@...> wrote: > > Hi Barb, > Thank you for your input,I know I will need a card > from gnc,it seems that this is going to take > awhile.I wonder if the lauricidin might have > activated a viral issue but not to the degree wher > it would test positive.I was told I was allergic to > penicillian by my mom but never knew if this is > true.Does anyone knowwhy this is so hard to bring > down in your son>?sorry about asking about the > book,that moms name is Barb also > thank you > theresa > Re: please need > > info,advice,behaviors worsening > > > > > > > > You might want to have your doctor order an > aso > > titer > > to see if there is a strep issue. Then you do > a > > trial > > of antibiotics if it is high. > > Barb Katsaros > > barbkatsaros@... > > > > > > > > > > > > Responsibility for the content of this message > > lies strictly with > > the original author(s), and is not necessarily > > endorsed by or the > > opinion of the Research Institute. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 That's good to know. I will check that out. But if you buy the kyodophillus when it is at 30 per cent off, it comes to about 11 or 12 a bottle. I wonder if there is any kind of a discount offered at the Vitamin Shop. --- isoaa@... wrote: > > The Vitamin Shoppe: > > Makes Kyodophilus in their generic brand: vita > acidophilus > > it's the exact same ingred as Kyo, but much > cheaper... $11/bottle for 100 > > Also....Dairy Free, Yeast Free, etc... > > M. > > > [Non-text portions of this message have been > removed] > > > > > ===== Barb Katsaros barbkatsaros@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 Consider trying digestive enzymes, if you havent' already. S <tt> No,I have not had her tested for pandas,I think that might be a possibility.she stayed sick from the time she first regressed(15 Mo)w/ear infections,throat,respiratory colds,sinus even a bad case of salmonella once until she was about 7.She has always been a girl who loved her food,but was a skinny little one until she was eight.we tried secretin every 6 weeks or so for 1 yr.it eliminated diarrea(sp)but thats about it.after that year she started to gain weight..to much..I get blamed for carrying the chubby gene..<BR> my kids all start getting chubby around age 9 or so,just like I did.she wastested for prader willi and negative,thus far no genetic cause has been found,but why are mainsteam Docs willing to do genetic testing and hesitant to test for yeast,viral etc.it is frustrating<BR> I know there is an immune link,her father has allergies and I have fibromyalgia<BR> thanks<BR> theresa<BR> Â [ ] Re: please need info,advice,behaviors worsening<BR> <BR> <BR> <BR> Â Oh Theresa, have you had her tested for P.A.N.D.A.S.?<BR> Â Patti<BR> Â <BR> Â > >Â Â > Listmates,<BR> Â > >Â Â > Once again I need your input.My 11 yr old HFA daughter is<BR> Â > >Â Â > having a major regression in behaviors that we have not seen for<BR> Â > >Â Â years.She is throwing things,screaming,kicking,cursing,and scripting<BR> Â > >Â Â tv movies and shows all the time and laughing like she is really<BR> Â > >Â Â watching it.Her meaningful communication is about gone.<BR> Â > >Â Â > we are gfcfsf and use houston enzymes.I had also tried lauricidin<BR> Â > >Â Â and IP6 but that gave her a facial tic.The only other time she had<BR> Â > >Â Â tics wasw/a trial of paxil.When I took her off the lauricidin<BR> Â the tics<BR> Â > >Â Â went away but within a week she got ill.I thought it was strep<BR> Â but she<BR> Â > >Â Â tested negative.She has had strep in the past.Is it possible the<BR> Â strep<BR> Â > >Â Â could be active and test negative?After she got well,the tics came<BR> Â > >Â Â back briefly,then we had a somewhat calm week,then 2 days ago<BR> Â WOW,I am<BR> Â > >Â Â at a loss she is not able to explain why she is so angry and nothing<BR> Â > >Â Â seems to help her calm down.She also has been trying to eat all the<BR> Â > >Â Â time,I am limiting carbs and she will eat a 2lb bag of carrotts<BR> Â and is<BR> Â > >Â Â very thirsty also and is gaining alot of weight<BR> Â > >Â Â > Does anyone have a recommendation for an antiviral that is otc?I<BR> Â > >Â Â read about the licorice root,I think that might help.Also any<BR> Â appetite<BR> Â > >Â Â suppressors that might be ok?The<BR> Â > >Â Â > calcium and magnesium is nolonger working to calm her at <BR> Â > >Â Â > nite and she gets up frequently and wanders around<BR> Â > >Â Â > Thank you so much<BR> Â > >Â Â > theresa<BR> Â > >Â Â > <BR> Â > >Â Â > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2004 Report Share Posted December 6, 2004 Hi , we recently started houston enzymes,it does help her stomach not to hurt theresa [ ] Re: please need info,advice,behaviors > worsening<BR> > <BR> > <BR> > <BR> > Oh Theresa, have you had her tested for P.A.N.D.A.S.?<BR> > Patti<BR> > <BR> > > > > Listmates,<BR> > > > > Once again I need your input.My 11 yr old HFA daughter is<BR> > > > > having a major regression in behaviors that we have not seen for<BR> > > > years.She is throwing things,screaming,kicking,cursing,and > > > scripting<BR> > > > tv movies and shows all the time and laughing like she is really<BR> > > > watching it.Her meaningful communication is about gone.<BR> > > > > we are gfcfsf and use houston enzymes.I had also tried > > > > lauricidin<BR> > > > and IP6 but that gave her a facial tic.The only other time she had<BR> > > > tics wasw/a trial of paxil.When I took her off the lauricidin<BR> > the tics<BR> > > > went away but within a week she got ill.I thought it was strep<BR> > but she<BR> > > > tested negative.She has had strep in the past.Is it possible the<BR> > strep<BR> > > > could be active and test negative?After she got well,the tics came<BR> > > > back briefly,then we had a somewhat calm week,then 2 days ago<BR> > WOW,I am<BR> > > > at a loss she is not able to explain why she is so angry and > > > nothing<BR> > > > seems to help her calm down.She also has been trying to eat all > > > the<BR> > > > time,I am limiting carbs and she will eat a 2lb bag of carrotts<BR> > and is<BR> > > > very thirsty also and is gaining alot of weight<BR> > > > > Does anyone have a recommendation for an antiviral that is otc?I<BR> > > > read about the licorice root,I think that might help.Also any<BR> > appetite<BR> > > > suppressors that might be ok?The<BR> > > > > calcium and magnesium is nolonger working to calm her at <BR> > > > > nite and she gets up frequently and wanders around<BR> > > > > Thank you so much<BR> > > > > theresa<BR> > > > > <BR> > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.