Re: bacterial infections

[Guest guest]

Hi LoRene andMolly,

Oops, I am sorry that I misunderstood Yes, I think you have a

point about an infection being a bit trickier to diagnose, and then

the exposure to surgery related infections/hospital stays

complicates it even further. It sounds like you all have been

through so much. How is Molly doing now? Half of our problem is

that cannot communicate how he is feeling...so yes, it is a

constant guessing game trying to figure out what is going on

inside! Half the time I wonder it is me over reacting to his

behaviour - I think - is this normal 2 year old behaviour? Normal

PMG 2 year old behaviour? Or is he sick? So much guess work,

constant vigilance - I marvel at how much I will know one day

We had our little guy into the local hospital last year after

Christmas with a gastrointentinal infection and as soon as we told

the emergency doctor about 's PMG diagnosis - he absolutely

FREAKED OUT!!! It is like he forgot the main reason we were there,

dehydration, and didn't know what to do with him! That was the first

experience we have had like that, we were there for about 10 hours

through out the night, put through tons of blood work and x-

rays that were completely unnecessary! It was HORRIBLE!!! And

confusing, and scary for us - so lesson learned, next time we will

drive the extra 1.5 hours to the Children's hospital where they are

more comfortable dealing with a variety of disorders and run of the

mill ones as well!

Take care!

> >

> > I was wondering if any of your children was diagnosed with a

> bacterial

> > infection or staph infection also .. I m thinking that they are

> linked

> > some how if the infection spreads to the brain . just a theory

of

> > mine . My daughter was diagnosed with pmg in June of this year

and

> then

> > in july was hospitalized for 3 days with cellulitis . she was a

> very

> > sick baby had pneumonia twice and would spike fevers of 104 out

of

> the

> > blue . Im wondering if she had this infection for awhile and

> nobody

> > caught it. please let me know if any of your children had any

kind

> of

> > infections.. I was reading about the bactrofen pump what is that

> > for ? Thanks for your time

> >

>