MY TWO CENTS...

[Guest guest]

As you all know, I'm mad as a hornet over the way the medical community has

mistreated me and thousands of others.

I ran across this web site while surfing for current lyme nfo:

http://www.acponline.org/lyme/patient/

Under treatment it says:

LYME DISEASE: A PATIENT'S GUIDE

Treatment

Lyme disease is treated with one of several antibiotics. Usually, these

antibiotics are given by mouth, though they may need to be given intravenously

in some severe cases of Lyme disease, especially if the nervous system is

involved.

For most cases of early Lyme disease, antibiotics should cure the infection. In

late stage Lyme disease, symptoms should improve but may not go away completely.

Even after treatment, a patient often still tests positive for anti-Borrelia

burgdorferi antibodies. However, continuing to test positive for antibodies does

not mean that the patient still has Lyme disease.

Antibodies, the body's defense system against infection, will not necessarily go

away once all the Lyme disease-causing bacteria have been killed. If symptoms

continue or worsen after treatment has ended, contact your doctor.

What are they talking about " once the bacteria have been killed " ???? What a load

of crap. And these are the people who are supposed to be training our

physicians!

I shot off an e-mail to their main box telling them how offended I was by their

obvious lack of concern for the largest growing epidemic in the nation. They

even had the balls to use the word CURE! There is no cure for lyme!

Please join me in educating the educators if you feel up to it. We need to start

addressing these issues one by one to the best of our ability.

http://www.acponline.org/cgi-bin/feedback, for e-mail.

To mail or phone them, http://www.acponline.org/home/contact.htm

Together we can make a difference!!!!

[Guest guest]

I am adding my two cents to the lyme bank. We do need to get the word out and

the education going. Who knows which 2 cents is going to make a difference.

[Guest guest]

Playing doctor

with your child is dangerous please be kind enough to not play doctor with

other people's children just because their parents are desperate and you

can. Being a parent of an autistic son is by far the hardest and most

difficult thing I have ever had to deal with. The added confusion of reading

unsubstantiated solutions does not make it any easier.

Bill

THIS IS A GOOD POINT. WE ARE ALL DEALING WITH A DIFFICULT SITUATION. LET'S

NOT MAKE IT HARDER. THIS LIST IS DESIGNED TO HELP PARENTS AND CHILDREN WHO

ARE ON THE PROTOCOL. I OFTEN WONDERED WHY WE GET OFF TOPIC. BEING ON

THE PROTOCOL IS A DECISION ONLY YOU CAN MAKE, BUT IF YOU DECIDE NOT TO GO

THAT ROUTE, THERE ARE NUMEROUS OTHER SITES OUT THERE TO EXPLORE. I CAN ALSO

SAY THAT I FEEL BETTER IN MY LATE 30'S THAN I DID THROUGHOUT MY 20'S AND

EARLY 30'S. IF IT WASN'T FOR LEARNING ABOUT DR. GOLDBERG AND , I DON'T

EVEN

WANT TO THINK ABOUT WHERE WE WOULD BE TODAY. (PERHAPS OFF A CLIFF

SOMEWHERE.) THAT SOUNDS PRETTY HARSH, BUT I USE TO DEAL WITH MY KID SCREAMING,

TANTRUMING AND HURTING HERSELF AND ME FOR UP TO 5 HOURS AT A TIME. ALSO

SOMETIMES

ALL NITE LONG FOR SEVERAL MONTHS WHILE WORKING FULL-TIME AND TRYING TO JUST

SIMPLY GET THROUGH THE DAY. I WAS NEVER GIVEN ANY LOGICAL, SENSIBLE REASONS,

ONLY 5-6 PAGES OF EVALUATION THAT I COULD HAVE PULLED UP ON THE INTERNET.

Michele Davies