Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 This is truly exciting! Bridget ________________________________ To: polymicrogyria Sent: Tue, April 13, 2010 11:16:20 AM Subject: Re: Seizures are Low!  My eyes a filled with tears of joy for you and your family!!! That gives me hope! > > That's fantastic news! It's very exciting! I hope one day we will find the right mix for Leila. > > > > Seizures are Low! > To: polymicrogyria@ yahoogroups. com > > > Hi, > >  > > I just wanted to share some good news about our family. Has > > been a long time since we posted but I do follow the threads. > >  > > My daughter, andra, is now 4 and as BPMG. Typically, she > > was having 15 seizures per day. Myoclonic and tonic clonics. > > After three years, seven drugs, three diets, we are down to 0 or > > 1 seizures per day. She is on Keppra, Lamictal and Felbital. > >  > > We can't figure out why the drop occurred because we implemented > > three different strategies as once. We added an extra dose of > > Lamictal in the afternoon; we began weekly cranial sacral > > therapy and put her back on the low glycemic index diet. And, > > we don't care. We're staying the course. > >  > > The other good news is that she is walking. It's amazing to > > watch and she just giggles. She takes about 10 steps at a time > > and has already figured out how to get down to her knees to > > obsess about her toys. > >  > > Thought I'd share with a group of parents that can really " get " > > how truly great this is. Sure hope this isn't another honeymoon > > period. It's the longest honeymoon period we've experienced! > >  > > Rochelle > > > > > >      > > > > Quote Link to comment Share on other sites More sharing options...
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