Re: Cognitive Problems

[Guest guest]

Hey Bob, my last collapse has given me much more severe problems this way. I

think that CoQ10 can help, also B12 shots, fish oils…there are a number of

things but these are big for me. Not that I’m “all better”, but these things

have improved some, over time. Of course as soon as I actually go out my

brains melt! (Stimulation) Whether or not it’s the supplements or just time

I’ll never really know, but they feel like they’re doing some good. I’m sure

others will have other ideas too. Good Luck, Aylwin xox

[Guest guest]

Hey Bob, my last collapse has given me much more severe problems this way. I

think that CoQ10 can help, also B12 shots, fish oils…there are a number of

things but these are big for me. Not that I’m “all better”, but these things

have improved some, over time. Of course as soon as I actually go out my

brains melt! (Stimulation) Whether or not it’s the supplements or just time

I’ll never really know, but they feel like they’re doing some good. I’m sure

others will have other ideas too. Good Luck, Aylwin xox

[Guest guest]

HI Bob,

Have you had your blood oxygen ratio tested? I know we all have this

same problem with memory loss as I am terribly afflicted too. My

understanding (if I can say this right) is that after a nite of sleep,

we wake up as if we had not slept at all. Upon testing, my oxygen

level ratio drops below 82% at night and I stop breathing 5.7 times in

1 1/2 hour. My doctor believes if I use oxygen at night, it will not

only improve my recovering sleep but feed the cells that can actually

reverse the problems with memory and other aspects of this DD. It may

be worth your while to check it out? I do not know where you live (USA

or otherwise) but there are nurses that will bring the finger thingie

(great term eh?) with a box attached to monitor your oxygen levels at

nite so that Medicare will cover the Oxygen tank and fills free. I am

still in the process of getting mine or would let you know if it really

helped or not, but my lil doggy was upset by the machine and would not

let me sleep to get a good study. I have to redo the testing again

before I get my oxygen tank. (has to be below 98% for collective 5 min

throughout the night to qualify and I slept 1 1/2 hour!..after throwing

him outside)

, " Bob " wrote:

>

> Hi Everyone,

> i'm having alot of cognitive problems at the moment...

> i've got problems with the following:

> no mental clarity

> foggy head

> bad memory (long term and short term memory recall problems)

>

> i was wondering if anyone has found anything that helps at all?

> any tips or advice would be very much appreciated,

> Bob

>

[Guest guest]

Hi Bob!

I have severe cognitive issues due to FMS/CFS/severe

anxiety and due to the almost 20 different medications

I take. I have found the following to be helpful:

-I read in a magazine for improving memory that BRIGHT

YELLOW helps increase memory. They suggested using

Yellow Post It's around the house to help remember

things.

-Word Searches, Reading, and puzzles of any kind help

to stimulate memory and to keep the brain active and

has recently shown according to an article I read to

help prevent dementia.

-I make a ton of lists-to do lists, sometimes, I will

even write down on a slip of paper, what I am going

into a room to do so that I don't forget.

-I try to get enough rest and take naps as needed as

that sometimes helps me as well.

Even though it is a very frustrating situation, I have

learned to use laughter and humor! I find if I get

aggravated over the issue, that I only get myself

anxious and that makes my memory worse.

I hope this helps. I can empathize with how you are

feeling. I am not able to drive anymore due to my

cognitive issues, and have even been tested for early

alzheimers 2 years ago when I was only 33.

[Guest guest]

That sounds like a really hard situation. There are things to take for

sleep and it is horrid that she won't give you something. But not to

allow counseling when dealing with chronic illness and all the

repercussions is really cruel. I can't understand that.

Sandrea

[Guest guest]

So sorry Bob that the doc is not all that helpful! THAT is so frustrating and

sadly, we've all been there. And I'm with you on the subtle differences of what

they say and what they MEAN! Documentation is HUGE in this ratrace............I

wish I had some great words of advice????? Just hang in there and hopefully,

someone here can suggest another physician that may be somewhat local for you -

Good Luck!

STL Jane

Bob wrote:

Hi everyone,

i'd like to thank you all so much for your suggestions about improving

congitive dysfunction...

i'm already taking fish oils, evening primrose oil and CoQ10, so i'm

going to look into getting Vit B12 shots.. even tho i know that this

will be no mean feat in the UK! Be a better Heartthrob. Get better relationship

answers from someone who knows.

[Guest guest]

Hi Bob, sounds like you need a new doc…someone who won’t even try to help

you manage any part of this through simple massage, or sleep aids sounds

pretty useless, not to mention uncompassionate. Any way you could get the

B12 on prescription and give your own injections? Diabetics do it all the

time, I did my own Gamma Globulin injections years ago (It helped me until I

became allergic to the preservative). The do or a nurse could teach you.

Good Luck with it, Aylwin xox

ps I find if I get it too often I get a bad brain & body inflammatory

response, so take it easy and find your right dose/frequency if you can get

it at all <sigh>. It does help.

[Guest guest]

Hi a,

Lupus sounds a lot like my CFS. I would have thought it would be

considered more " respectable " to have Lupus than it is CFS as it seems

more folks know about Lupus or at least have heard about it. I guess

not. I find it harder to read the all caps print actually, but maybe

others don't. Sorry, not up to writing much now.

Sandrea