Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 Mysha has NO speech issues. Well, no obvious speech issues. But, her expressive speech, processing speech, are delayed. She often can't find tge right word. But, speech is tge only therapy she's not had. She droops a TON especially when asleep. Her seizure start in her mouth. And she is really sensitive to texture in her mouth. Tooth brushing is a HUGE challenge. She will do anything to avoid it. Sent from my iPhone I bought it on amazon for like five dollars. Were working on getting one of the communication devices and the rep told me about it. He said was a lot like her. Sent from my Verizon Wireless BlackBerry Handle with care I just finished reading " Handle With Care " by Jodi Piccoult. All her books are touching, but this book touched a particular nerve with me. Has anyone else read it? Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 Wow! Good for you! How old is mysha? And what is a brain resection? Sent from my Verizon Wireless BlackBerry Handle with care I just finished reading " Handle With Care " by Jodi Piccoult. All her books are touching, but this book touched a particular nerve with me. Has anyone else read it? Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 drools a lot to! He tries so hard to talk and will tell you stories all day but you can only make out a word or two. He doesn't have seizures as of now anyway! But he is scared of everything. Like tonight there was some elephants down the road from us and he couldn't wait to get back to the car (they were passing through town with a circus). He hates any kind of masks and even some hats! Sent from my Verizon Wireless BlackBerry Handle with care I just finished reading " Handle With Care " by Jodi Piccoult. All her books are touching, but this book touched a particular nerve with me. Has anyone else read it? Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 , What a brave you are! Be confident, Jesus will take good care of Mysha and of the surgery. Just keep yr hands on His ones and you'll make it! HE gives us the proves but HE also gives us the force and corage to go through.... We are all in same boat, and will find a way to pass along, all together! A hug, maria abraços, m. paula " Não há futuro para a revolução política. Só um tipo de revolução é possível, e essa é a revolução espiritual. Cada indivíduo tem de mudar em seu ser, e se podemos mudar milhões de pessoas, então a sociedade vai mudar. Não há nenhuma outra maneira, não há nenhum atalho. " Osho To: polymicrogyria From: janellc1@... Date: Fri, 11 Jun 2010 04:45:17 +0000 Subject: Re: Handle with care Wow! Good for you! How old is mysha? And what is a brain resection? Sent from my Verizon Wireless BlackBerry Handle with care I just finished reading " Handle With Care " by Jodi Piccoult. All her books are touching, but this book touched a particular nerve with me. Has anyone else read it? Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2010 Report Share Posted June 11, 2010 Absolutely it made me think about how far we as parents to our special children would go. I would give my life to protect my son……. Donna From: polymicrogyria [mailto:polymicrogyria ] On Behalf Of Holman Sent: Thursday, June 10, 2010 11:05 PM To: polymicrogyria Subject: Re: Handle with care Donna Did that one kind of hit on things you've thought? Like how far you'd go? What price you'd pay? And the what ifs of our lives? Sent from my iPhone On Jun 10, 2010, at 10:18 PM, " Donna " <donnasc4@... <mailto:donnasc4%40cox.net> > wrote: YES....love all her books! From: polymicrogyria <mailto:polymicrogyria%40yahoogroups.com> [mailto:polymicrogyria <mailto:polymicrogyria%40yahoogroups.com> ] On Behalf Of Holman Sent: Thursday, June 10, 2010 6:44 PM To: polymicrogyria <mailto:polymicrogyria%40yahoogroups.com> Subject: Handle with care I just finished reading " Handle With Care " by Jodi Piccoult. All her books are touching, but this book touched a particular nerve with me. Has anyone else read it? Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2010 Report Share Posted June 11, 2010 Mysha is 13. Brain resection is where they cut out the part of the brain causing seizures. Just a little bit. Sent from my iPhone Wow! Good for you! How old is mysha? And what is a brain resection? Sent from my Verizon Wireless BlackBerry Handle with care I just finished reading " Handle With Care " by Jodi Piccoult. All her books are touching, but this book touched a particular nerve with me. Has anyone else read it? Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
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