RE: Re: Seizures and Walking

September 22, 2009

Our neurologist and a neurosurgeon told us that it is common to have an

increase in seizures anytime the body has had any kind of unusual stress .

like surgery, fevers, etc.

_____

From: polymicrogyria [mailto:polymicrogyria ]

On Behalf Of lilgestures

Sent: Tuesday, September 22, 2009 8:19 AM

To: polymicrogyria

Subject: Re: Seizures and Walking

Hi Kate.

My 5 year old developed nocturnal seizures this summer. She has yet to

register anything on an EEG but the neuro's said seizures were the only

explanation for what was going on with her.

She would wake up in the morning and be very groggy and not use good

sentences, mumble more, and would not bare weight. She is in a walker and

she kept saying she was scared and was more weak. The neuros blew me off the

first time but after the second " episode " they got us in for an overnight

EEG. It did not show anything, but it was a week after the episode and they

said that it was probably seizure related.

I would think that it is possible he is having residual from his eye surgery

and it may take some time to him to feel comfortable with the new way he is

seeing but I also would think that an EEG is warranted to rule out the

possibility of seizures. A friend of mine whose daughter has seizures was

having the same coordination issues you are describing and it just took the

right neuro to finally listen to her and test her.

But to answer your question, yes the seizures caused instability in my

daughters walking and her friend's as well.

>

> Hello,

> Today has been a rough day on Gage being able to walk. He has times about

every other week that his walking is terrible. Today it is the worst I have

seen it. He cann't walk without running into the wall, falling and needs me

to hold his hand just to walk to where he needs to go. He is not a great

walker as it is, so I concerns me to see this. He had eye surgery for

strabismus last Wednesday. Maybe there is a connection to that. I called his

eye Dr. and was told it is not likely the cause, but will take Gage to see

her tomorrow. My question for those who have children that walk and also

have seizures is: Do seizures cause instability in walking? I have not been

able to get any answers concerning this from his neurologist. It worries me-

especially today.

> Thanks,

>

September 22, 2009

Thanks for the responses. I feel a little more at ease to hear that it is

common to have bad walking days. Gage had been having these types of episodes

of bad walking before he had eye surgery, but yesterday it was the worst I have

ever seen it. He had an appointment for his eyes today and was told that she

doesn't feel there is a connection in the walking with his poor walking. I was

told that he should be walking better- not running into things- since he has

started seeing things 3D (I'm excited about that!). She said another change may

be him being more cautious of his surrounding due to things looking different to

him.

- I will definately talk with his neurologist about an overnight EEG. I

feel that she has been blowing off this issue too long (it has been going on for

almost 4 months). She had mentioned to me the possibility of nocternal

seizures, but left it at that with no further explaination or discussion. I

just need some reassurance of what is going on. If it is due to having

seizures, we can deal with it. I just want to make sure there isn't something

else going on before it gets out of hand.

Thanks again,

Subject: RE: Re: Seizures and Walking