Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Hello again everyone! First off thank you to those of you who responded to my school & seizures questions! My son's supposed to start kinder next Friday, the 20th, and I get to meet his teacher(s) next Wednesday so I'll ask lots of questions! We're gonna try it out & see how it goes, we live across the street from the school so that's a little settling for myself but still hard! But he's gonna love it, he loved Pre-k and needs to have time to himself and to be with other kids too! My daughter and I could use the time alone also, it'll be good for all of us as long as it all goes well! So, anyways, we had my sons neurologist appt. on Tuesday and she wants to up his phenobarbital to 12.5 mL's at bedtime & see if it stops his breakthroughs, so we'll see how it goes? But she said if we don't see a change at all in 2 weeks, if he seems to be the same as now, we'll look at some other meds. or she talked to me about the option of VNS Therapy?! I thought I'd seen this being discussed here before? She said it has a 50/50 chance of working with patients but it seems like an easy enough procedure to have a 50/50 chance of helping my son! I'm deffinately interested but wanted to hear anyones experiences, if any, who've gone this route and/or have had great success?! I'm very hopeful and would appreciate anyones feedback! Again, thank you in advance for your time!! , mom to , 5 years old, unilateral right sided PMG Quote Link to comment Share on other sites More sharing options...
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