Invisible seizures

[Guest guest]

Can someone tell me about invisible seizures?????

Subject: Re: CRISTINA

To: polymicrogyria

Date: Monday, March 22, 2010, 4:58 PM

 

My daughter is 6 and she talks and uses a walker to walk shorter distances. She

has right-sided weakness and had higher tone before the dorsal rhizotomy. She

has ADD or ADHD-inattentive type and started having nocturnal seizures last

summer. So far they seem controlled with Keppra. (knock on something)

Now that I heard something about invisible seizures I need to look more into

that as some days or even times she is focused and can do her school work and

other times she cannot concentrate for anything.

>

> an hour from ton which is where we have to take her to for all of her

appointments and hospitalizations. She is non-verbal, cannot walk, an excessive

drooler, severe developmental delays and has seizures. Her seizures are finally

under control with trileptal. She has not had a severe seizure in 11 months

(Knock on wood). . She gets speech, OT, and PT twice a week. She just started

crawling about a year ago. I am not happy with her neorologist. I seem to know

more about her condition than she does. I am willing to travel this summer for a

specialist to look at her MRI. I am a teacher and will have time this summer.

Does anyone have any recommendations. I read about someone in San Francisco. I

had several ultrasounds while I was pregnant b/c of my age. I was 36 when I got

pregnant. All throughout my pregnancy I was told everything was fine. Then, in

my 6th month my blood pressure started dropping (60/30) and I was put on

bedrest. By my

> 7th month I has lost all of my amniotic fluid and she came 9 weeks early. This

is my third child and my other two are fine (21 and 18, yes I started all over

again ). I used to wonder if my age was a factor until I found this group. I

was told that this condition was rare and genetic. But again, I don't have a lot

of faith in my neurologist. Have lots to say later about that but will close

this e-mail for now. Glad to finally have some support and someone to talk to.

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> My name is Rita and I am new to the group. I have been reading e-mails for

about a week now. My daughter Cristina is 4 years old and has PMG. We live in SC

about an hour from ton which is where we have to take her to for all of

her appointments and hospitalizations. She is non-verbal, cannot walk, an

excessive drooler, severe developmental delays and has seizures. Her seizures

are finally under control with trileptal. She has not had a severe seizure in 11

months (Knock on wood). . She gets speech, OT, and PT twice a week. She just

started crawling about a year ago. I am not happy with her neorologist. I seem

to know more about her condition than she does. I am willing to travel this

summer for a specialist to look at her MRI. I am a teacher and will have time

this summer. Does anyone have any recommendations. I read about someone in San

Francisco.

>

> I had several ultrasounds while I was pregnant b/c of my age. I was 36 when I

got pregnant. All throughout my pregnancy I was told everything was fine. Then,

in my 6th month my blood pressure started dropping (60/30) and I was put on

bedrest. By my 7th month I has lost all of my amniotic fluid and she came 9

weeks early. This is my third child and my other two are fine (21 and 18, yes I

started all over again ). I used to wonder if my age was a factor until I

found this group. I was told that this condition was rare and genetic. But

again, I don't have a lot of faith in my neurologist. Have lots to say later

about that but will close this e-mail for now. Glad to finally have some support

and someone to talk to. Thanks.

>

> * 3 * New Photos 8

> Visit Your Group

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> Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

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