Sincerely asking for a new way to look at this

[Guest guest]

Hi All -

My young son was diagnosed with Type 1 diabetes two years ago. This has been

an amazing and difficult journey for us. There is an element of ever present,

alert awareness that goes with treating this dis-ease and it gets really

tiring. I think " stay in the now " (which ironically, I need to do to keep him

alive) but I get stuck in all the planning needed for this lifestyle.

I have tried on all kinds of different " stories " to explain this illness and

have chucked them all.

I find myself grateful many days for the closenes and self awareness that

this has brought to our family - no time for a lot of the usual crap. However,

to be with him as he suffers in pain is hurtful, to say the least.

Facing MOUNTAINS of uneducated judgements that come my way also hurts. (No, I

did not raise my kid on TWINKIES!!!!!) It is an auto immune disorder - in

medical terms - not the same disease as Type 2 diabetes.

I saw a thread here about empathy actually being lack of boundries. I don't

know about that. (And I truly mean I don't KNOW about it) I can feel it -

physically - when one of my kids jumps out of a tree, has an IV put in, or eats

in on a skateboard!

I do know how to distance myself enough to be efficient in a crisis and all

of that, but I have not seen a new way to think about this, live with it.

That is what I am asking for here.

I see so many very thought-full people here, really looking into themsleves-

that I would value your ideas on this.

Thank You

- GG