RE:recovered & embarrassed by past

[Guest guest]

What???How is that different from the person who has seizures gets a device to

stop them and is asked questions about things we have no answers for? How is a

recovered kid different from anyone who has overcome a great set of barriers?

I do not understand your comment. It's our moral duty to help as many people

as we can. My daughter still has Autism and if I found one cure that helped her

function 100% in this world, I would be screaming it from the mountaintops! I

would be having aparty everyday for the rest of my life! Iknow my daughter

would be so excited and feel so blessed that she would share her experience in

hopes that she could help answer the un answered questions so she could help

other children in the world.

Your comment just really blows me out of the OCEAN- embarrassed? No way!

Let's celebrate a cure!

Candis

Autism Research Survey online at:

http://www.inclusioncommunitytrainingcenter.org

Candis Firchau,MA,TLPC

Director

Inclusion Community Training Center

Advocacy, Behavioral Interventions, Counseling

and Training

979.826.8568

This email is intended exclusively for the person to whom it was addressed. This

email is confidential. If you have received this email by error, please

disregard it.

[Guest guest]

I think we've all made our point here, which is this... some children would

be happy and proud to get up on stage, some would rather not be there. Some

parents would be glad to have their children represent recovered children

publicly, and some would prefer to provide support in other ways.

At every holiday school program when he was in elementary school, my NT son

looked so miserable to be on stage that he looked like he might pass out...

and that was in a large group of children.... he would inch his way back so

that he was completely hidden by the other kids standing on the risers. He

hated it. He would not be one to choose to get up in front of a crowd. He

ran for mayor of his class and threw up at home (nerves) before he went to

school to give his speech. He won, by the way... but he absolutely hated

giving that speech.

My NT daughter, on the other hand, will put on a never ending show for

anyone who glances her way. At the holiday program this year, even though

she is the smallest one in her class, she elbowed her way to the front and

did her best to thrill the audience. She sang a solo at the school talent

show in front of more than a hundred people. She would be thrilled to get

up in front of a crowd for almost any reason.

Different strokes for different folks... that's what makes the world

interesting.

Caroline

[Guest guest]

Candis - while I agree with celebrating a cure and it being our moral duty

to help as many people as we can, despite what you think your daughter

thinks now, she might not want this screamed from the mountain tops if she

were blessed with a cure or recovery.

Some of our children have been so severely bullied and harassed during their

recovery, that all they want to do is act, be and be treated as normal -

especially when they are in their more formidable teen years. Screaming

about recovery from this disease might just not figure in their agenda yet.

In 10 - 15 years time with adult maturity - and others around them in their

peer group have reached a maturity to accept, then they might want to be

more open about it.

RE:recovered & embarrassed by past

What???How is that different from the person who has seizures gets a device

to stop them and is asked questions about things we have no answers for?

How is a recovered kid different from anyone who has overcome a great set of

barriers?

I do not understand your comment. It's our moral duty to help as many

people as we can. My daughter still has Autism and if I found one cure that

helped her function 100% in this world, I would be screaming it from the

mountaintops! I would be having aparty everyday for the rest of my life!

Iknow my daughter would be so excited and feel so blessed that she would

share her experience in hopes that she could help answer the un answered

questions so she could help other children in the world.

Your comment just really blows me out of the OCEAN- embarrassed? No way!

Let's celebrate a cure!

Candis

Autism Research Survey online at:

http://www.inclusioncommunitytrainingcenter.org

Candis Firchau,MA,TLPC

Director

Inclusion Community Training Center

Advocacy, Behavioral Interventions, Counseling

and Training

979.826.8568

This email is intended exclusively for the person to whom it was addressed.

This email is confidential. If you have received this email by error, please

disregard it.

[Guest guest]

Thank you, . I completely agree. I absolutely

feel that I have a moral obligation to spread the word

that recovery is possible. I have had countless

converstions via email and telephone with strangers,

sharing my experiences and story. I have even invited

people into my home so they could see the miracle with

their own eyes. However, my recovered 10 year old

remembers being teased and taunted in preschool. She

remembers how much she hated being pulled out of

regular kindergarten for adaptive phs ed. and speech.

(she would cry and ask why the other kids didn't have

to go). Another story that comes to mind happened in

grade 1 when little nasty formed a girls " club "

during recess times and all the girls in the class

were in it. went out of her way to make sure my

daughter wwas excluded. My daughter was crushed.

Although pretty much recovered at that point, she

didn't understand why anyone would be " mean " , nor did

she know how to stick up for herself.

Now, she's an honor student in regular 4th grade with

many friends(even nasty ended up a good friend).

She's on a swim team and is a girl scout. She just

wants to live her life and be a normal kid. She

understands her disease and appreciates all it took to

get her here. However, she is not interested in

sharing any of this information with her peers or

anyone else. They accept her as one of their own, and

that's all she's ever wanted.

I was a teacher for a long time in an inclusion

school. I've seen absolute angels embrace sped kids

and make them feel accepted, and part of the group. I

will never forget the expressions on the faces of

these sped children who were treated with such love.

Unfortunately, I've also seen lots of exclusion and

downright cruelty, and the resulting heartbreak .

Before recovery, I rememeber my desperation and my

thoughts of what I would do(including screaming from

mountaintops) if only she would " make it " . It didn't

occur to me at that time that my child wouldn't like

that idea. I do want to help in any way I can-

especially in spreading the word of . I would

welcome any one of you into my home to meet my family

and witness our blessing. Not a day goes by when I

don't appreciate how lucky we are. I hope someday, my

daughter will want to share her story with the world

-but that will be her decision. Happy Holidays to you

all. Never give up.

__________________________________

for Good - Make a difference this year.

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