Guest guest Posted October 4, 2010 Report Share Posted October 4, 2010 I would be really suspicious of seizures. Molly does a really funny breathing seizure during sleep that sounds like a kid who's trying to catch their breath after crying really hard. It might not be seizure, but it sounds suspicious and it's better to rule out seizures now than to find out down the road that this was the beginning of seizure activity. Do you have a neurologist that follows her that you can call? If not, talk to your pediatrician. You might also try to get some video of it, that can be really helpful for the docs. Hugs! LoRene, mom to Molly (6yrs) To: polymicrogyria From: josalynsmommy10@... Date: Mon, 4 Oct 2010 07:20:19 -0700 Subject: Daughter Hi guys. My daughter Josie is now 7 months old and was diagnosed with PMG at 3 months old. She has yet to have a siezure (knock on LOTS of wood) and is doing great. No medications or any other complications. She does have Asymetrical Crying Facies and microcephaly and is deaf in her right ear. She is progressing amazingly. She is a month behind in gross motor skills because her back isnt very strong and her left shoulder needs help, and her find motor skills they tested her about 4 or 5 months behind because she doesnt play with objects or use her hands to bring objects to her mouth or pick things up. But she is beating a lot of odds and is the happiest baby ever. Herein lies my question. She recently is scaring me with this wierd cry of hers. First off she never cries...EVER! And a couple nights she has woken up with night terrors which run in my family and also comes along with PMG from what ive researched. The cry is so long but she does this ver short loud, ah, ah, ah, ah, ah for almost a minute. If you can imagine the breathing technique when you do lamaze for child birth, the hoo, hoo, hoo real quick breaths, thats what she is doing with the crying. Its so scary and I can get her to stop for almost a minute. She did it one time after I was trying to use the siringe to get snot out of her nose (we are all moms so I know I dont have to be too proper with that wording lol) and thats when I knew it wasnt just associated with night terrors alone. Any suggestions? Anyone heard of it? Thanks again! Tabitha, mother of beautiful perfect baby Josie Quote Link to comment Share on other sites More sharing options...
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