Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Hi Carlo…well, it may or may not be…but you do have to get to a doc who will not just put things off onto depression. If the antidepressants aren’t helping you, don’t take ‘em! (You may have to wean off, as sudden withdrawal after you’ve been using it for awhile can be problematic). Self-diagnosing can be a bit of a fool’s game…but, again, you need to find a doc who is willing to look beyond, who is open minded, and will do the depthful diagnostics with you. Really, it could be so many things. But most docs are far too willing to just brush things off as depression and some vaguely defined post viral thingie. The other thing I can say to you is to not overdo, if at all possible…to rest when you need to. The best chance you have of kicking it off, if it is anything in the realm of “CFS”, is to get appropriate rest and care now. If you push and push yourself into maintaining your former (well) level of function, you really risk being more ill and a lower and lower chance of recovery. The 2 most important factors of full recovery are 1) how severely you got ill and 2) how quickly you go into rest therapy mode. Seems so simple, but it really is most crucial not to outstrip your natural capacities at this point. I know this plays hell with the life you have been living…just think of it as needing a holiday! Good Luck, aylwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Skip the " sleep " medication and get a new doctor. Pronto! We know our own bodies and we can tell when it is depression and when it is something else. Having had depression and CFS I kinow that the fatigue from depression is very different and I can snap out of it when something good comes along. CFS fatigue is not affected by external circumstance. Interesting that your fatigue happened right after food poisoning. Read Hildebrand (SP?) story which began after food poisoning. She work the best seller, Seabiscut. I had a bad bout of food poisoning when I was 14 but didn't get CFS until 50. Could there be a connection? I have often wondered. I did take anti viral medication for several months and it really helped by condition but,alas, not a cure. See if there is a Fibro and Fatigue Center anywhere near you (referred to as FFC in the e-group). It would be worth it to drive several hours to get there. They understand the disease and can diagnose if you have it. The sooner that you get treatment the better you chances of licking the disease. The center is expensive but cheap in the long run. You can Google then and they should come up first. Good luck. Lois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 Hi , I was banded by Dr on the 10th of November, everything has gone like clockwork. The Hills hospital were great and the nurses looking after me were calm and in no rush, really friendly too. Best of luck during your surgery. I hope yours goes as well as mine did. Jade -----Original Message-----From: SydBand [mailto:SydBand ] On Behalf Of kez_at_home84Sent: Thursday, November 27, 2008 9:32 PMTo: SydBand Subject: Newbie Hey Everyone, My names Karem and I am being banded 1st December by Dr Desmond . Are any of you patients of his? I would love to get yo know you guys and any advice you could give me would be great hehe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 Hi , Welcome to the group! My name is Lorraine. I have a beautiful little boy who is two and a half. He was diagnosed with Bilateral Perisylvian PMG when he was seven months old. He is an extremely clever little boy, but is non verbal. He has severe difficulty with his gross and fine motor skills. He was born with Talipes (Club Foot) and has had two operations so far to try and get a better position on his feet. I hope you dont mind i asking, but after having a little boy with PMG you decided to go on and have another child?? Were you given a reocurrence risk before deciding to have a second child. Did you have genetic tests done, if so do you know which ones. I am trying to decide whether or not to go on and try for a second baby, but cannot seem to come close to a decision. We have been given a 10% reocurrence risk, as it was Genetic in our case. If you dont wish to answer this post I completely understand. Kind Regards, Lorraine Tierney Quote Link to comment Share on other sites More sharing options...
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