Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 I take my second dose of Armour between 7 and 9 pm and it helps me sleep. This is an individual thing. I found this out by accident. One Thanksgiving, I came home after a party at 1:00am and realized that I had not taken my Armour. I went ahead and took it, thinking that if it kept me from sleeping, at least I did not need to be at work in the morning. I slept like a baby. . . . The only thing that now keeps me from taking my Armour at bedtime is that I take my estrogens at bedtime. carol77096 wrote: Lynn, Do you sleep OK when you take T3 at night? I thought that was the one that gives us our energy back and we need to split our Armour doses because it wears off in a few hours. Carol _Groups , "Lynn" wrote:>> Yes ,> I have full blown Hashi's. According to the ultrasound last week, > my right side shows very little activity, and no more nodule,> and my left side is fully engulfed with inflammation, and several > swollen lymphnodes on that side. All that is causing pain > throughout my left side from the shoulder up!> > What tests are done to check out the pituitary? What symptoms would > be a cause of a lame pituitary? Would that maybe explain my T4 > dropping from 58% this last summer to 44% last week?> > I am not sure if I can use the same equation for Free T3 when trying > to figure out the Total T3, but my Total T3 is at 75%. It seems > that I am not converting the T3, it's just stock filing up? I have > been experimenting and taking all my T3 at night on occasion.> Would that be part of the issue? I still take my T4 the same way, > every morning with my coffee. Same way for years now!> Lynn> Want to start your own business? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 The only way to find out is to try it.Lynn wrote: Carol,I haven't seen a problem with not being able to sleep. In fact, I think I may sleep a little better?I used to think that taking my T3 in the afternoon helped with the tired feeling we all get. But I don't seem to have any problems.I am wondering if taking it at night has made my T3 increase in my blood labs?I read on the thyroid.about forum that our thyroids work at night time to restore what we used that day. Has anyone else read something similar? I wonder if taking all my meds at night would be best?Lynn We have the perfect Group for you. Check out the handy changes to Yahoo! Groups. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Yes, it's fine. But it's really important for ThyCa and Hashi's. Kate At 01:21 PM 10/31/2006, you wrote: >Hi Kate... this may sound like a dumb question, but what if you don't have >ThyCa or Hashi's... is it a good thing to have the TSH suppressed? >-Ruth > > Re: New Dr STINKS! > > > > > > >I take 112mcg Unithroid/18.75mcg Cytomel (25mcg split) > > > She treated me like I had never heard of the thyroid, even with the > > > 100 plus papers I had sitting in front of her in my file. > > > > > > I still don't know why I am needing more T4? It is because half my > > > thyroid isn't working any longer? > > > > > > My total t3 (she didn't run the free t3 that Dr. Sarlis always ran) > > > was in the 75% this last drawl, and 40% on the Sept blood drawl. > > > I still think there was something wrong with the Cytomel, although > > > King Pharm. sent me a letter saying there was nothing wrong with the > > > batch that I returned. > > > > > > What's going on? I have some return of symptoms, like allergies, > > > dry hair that is falling out. > > > Change of seasons? > > > > > > Lynn > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 I should have stated, in that post, " no matter how LOW your thyroid hormones get " or are. Sorry bout that. I am well aware that, the higher they are, the more suppressed the TSH is (mine is), at least should be, but when the thyroid hormones are not that high in range, there is definitely something " different " about the pituitary hormone being suppressed almost no matter what. Re: Re: New Dr STINKS! > , > > When you go on thyroid replacement your TSH goes down and often > suppressed. That is a good thing with ThyCa and Hashi's. Your meds > replace the pituitary signaling. > > Kate > > > At 07:50 PM 10/30/2006, you wrote: >>Lynn >> >>You have Hashimoto's, right? Hashimoto's is a gradually self destructive >>disease to the thyroid, but what I DON'T understand is why your TSH is >>very >>suppressed, no matter how high your thyroid hormones get. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 I have found on the days I forget my afternoon dose of armour and take it at bedtime, I have a much more restful sleep. But I seem to only be able to get away with this on weekends, when I tend to forget my afternoon dose, so take it at bedtime, and when I don’t need the afternoon boost like I do on workdays. I’ve tried breaking it up into 3 doses, but I really have a crash on workdays by taking less early in the day. But thinking back, the only nights I actually slept through the night were the nights I took my afternoon dose at bedtime…hmmmm….sounds like something I should discuss with my doc. Ignore me…just thinking out loud! From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Jan Sent: Tuesday, October 31, 2006 4:41 PM To: Texas_Thyroid_Groups Subject: Re: Re: New Dr STINKS! The only way to find out is to try it. Lynn <lbonaccihouston (DOT) rr.com> wrote: Carol, I haven't seen a problem with not being able to sleep. In fact, I think I may sleep a little better? I used to think that taking my T3 in the afternoon helped with the tired feeling we all get. But I don't seem to have any problems. I am wondering if taking it at night has made my T3 increase in my blood labs? I read on the thyroid.about forum that our thyroids work at night time to restore what we used that day. Has anyone else read something similar? I wonder if taking all my meds at night would be best? Lynn We have the perfect Group for you. Check out the handy changes to Yahoo! Groups. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 You may need a dose increase or maybe an additional small dose at night. Do talk to the doc.Niki Carney wrote: I have found on the days I forget my afternoon dose of armour and take it at bedtime, I have a much more restful sleep. But I seem to only be able to get away with this on weekends, when I tend to forget my afternoon dose, so take it at bedtime, and when I don’t need the afternoon boost like I do on workdays. I’ve tried breaking it up into 3 doses, but I really have a crash on workdays by taking less early in the day. But thinking back, the only nights I actually slept through the night were the nights I took my afternoon dose at bedtime…hmmmm….sounds like something I should discuss with my doc. Ignore me…just thinking out loud! From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Jan Sent: Tuesday, October 31, 2006 4:41 PMTo: Texas_Thyroid_Groups Subject: Re: Re: New Dr STINKS! The only way to find out is to try it.Lynn <lbonaccihouston (DOT) rr.com> wrote: Carol,I haven't seen a problem with not being able to sleep. In fact, I think I may sleep a little better?I used to think that taking my T3 in the afternoon helped with the tired feeling we all get. But I don't seem to have any problems.I am wondering if taking it at night has made my T3 increase in my blood labs?I read on the thyroid.about forum that our thyroids work at night time to restore what we used that day. Has anyone else read something similar? I wonder if taking all my meds at night would be best?Lynn . Want to start your own business? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 In Hashi's, each time the thyroid itself works on it's own (even with med supplementation), antibodies zoom in and multiply, causing further destruction, production goes down, so further supplementation is needed. Now, if that was all that was going on while this was happening, then it would be simply increases (and should be), but that's not all that's going on. Usually, a person is going to feel worse and have all other symptoms going on, as a result of the antibody production, at least eventually. Also, the thyroid is going to inflame, possibly creating more nodules, etc.....Have you ever seen a picture of a destroyed Hashi's gland? It ain't pretty, and, if you can immagine that sitting in your neck, trying to breathe around it, with it jabbing into your trachea, and with all the other stuff going on, swollen lymph nodes, etc.... The less the Hashi's gland works on it's on, the less the destruction. The object is not to save the gland really, as that has now become a moot point, unless, by some miracle (unlikely), all the Hashi's antibodies go away forever and ever. The object is to keep it from physically progressing to the point of forming all these things going on in the neck and the body. This is what so many medical personnel, i.e., doctors, do not understand about this particular form of thyroid disease (and the most common form of it, to our knowledge). These antibodies do all other kinds of things besides just destroy the thyroid, there are going to be plenty of symptoms as a result of their production. With autoimmune thyroid disease, the gland needs to just become a nonworking bystander. The less stimulation from the pituitary, the better. I didn't have many symptoms yrs ago, once I started on T4, but the problem was that I was grossly undermedicated for THAT form of thyroid disease, and once the destruction decided to continue on, I was in dire straits for a very long time, not knowing what was happening to me until I tested myself for those little monsters. They were in the thousands because several doctors had not given me enough T4 to permanently " rest " the thyroid itself, so it had continued to work quite a lot on it's own. HYPOthyroidism causes a thicker bone structure, BUT the bone is not strong as it is with enough thyroid hormone to sustain the INside of the bone, it is a hard-brittle. Normal bone structure is a thinner outward bone, with a stronger inside. I would like to see documentation from medical sources that says that they have scientifically found that a low TSH (ignoring the thyroid hormones themselves) has ever caused osteoporosis. We have had this particular discussion many times on many thyroid boards and noone can ever find any studies that have determined this. You can research this one yourself, but it is well known that a Hashi's gland out of control has a higher statistical rate for lymphomas and certain types of thyroid cancers. Re: New Dr STINKS! > What is the reason for us Hashi's people to be suppressed? > Is it because we are trying to avoid Hashi flares, or to try to stop > the distruction? > > I've had Dr after Dr tell me that a suppressed TSH is BAD! That I > will suffer from articular fibillation (from too much T3), and concern > over my loss of bones. > I need a really good fight to be able to stay suppressed, and I seem > to be losing that battle. > > Since I need to start looking for a new Dr, I have to have a really > really good reason for stating my cause.....Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Amen to that. Re: New Dr STINKS! Lynn, I think the answer for you is you need a good doctor, not a good reason. You want someone you don't have to explain it to. :-) Carol >> What is the reason for us Hashi's people to be suppressed?> Is it because we are trying to avoid Hashi flares, or to try to stop > the distruction? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Yep, and that's the main reason a lot of these people have to drive, fly, or whatever way to go see decent thyroid docs, because they've been through so many nightmares, that it becomes the only way that they will accomplish this. When my insurance kicks in on this sbjct, then I will go to wherever is feasible for me to go, in MY world. Re: New Dr STINKS! >I hear ya! > Really hard in the Houston area, though....Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 I have noticed that some morning when I wake up around 4am and cannot go back to sleep. That if I take my Armour, I am able to go back to sleep for a while. Kim From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of Jan Sent: Tuesday, October 31, 2006 4:39 PMTo: Texas_Thyroid_Groups Subject: Re: Re: New Dr STINKS! I take my second dose of Armour between 7 and 9 pm and it helps me sleep. This is an individual thing. I found this out by accident. One Thanksgiving, I came home after a party at 1:00am and realized that I had not taken my Armour. I went ahead and took it, thinking that if it kept me from sleeping, at least I did not need to be at work in the morning. I slept like a baby. . . . The only thing that now keeps me from taking my Armour at bedtime is that I take my estrogens at bedtime. carol77096 <cmcgreer1hotmail> wrote: Lynn, Do you sleep OK when you take T3 at night? I thought that was the one that gives us our energy back and we need to split our Armour doses because it wears off in a few hours. Carol _Groups , "Lynn" wrote:>> Yes ,> I have full blown Hashi's. According to the ultrasound last week, > my right side shows very little activity, and no more nodule,> and my left side is fully engulfed with inflammation, and several > swollen lymphnodes on that side. All that is causing pain > throughout my left side from the shoulder up!> > What tests are done to check out the pituitary? What symptoms would > be a cause of a lame pituitary? Would that maybe explain my T4 > dropping from 58% this last summer to 44% last week?> > I am not sure if I can use the same equation for Free T3 when trying > to figure out the Total T3, but my Total T3 is at 75%. It seems > that I am not converting the T3, it's just stock filing up? I have > been experimenting and taking all my T3 at night on occasion.> Would that be part of the issue? I still take my T4 the same way, > every morning with my coffee. Same way for years now!> Lynn> Want to start your own business? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Interesting about the thyroid at night. I had heard that the adrenals and Cortisol build up at night. Kim From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of LynnSent: Tuesday, October 31, 2006 4:34 PMTo: Texas_Thyroid_Groups Subject: Re: New Dr STINKS! Carol,I haven't seen a problem with not being able to sleep. In fact, I think I may sleep a little better?I used to think that taking my T3 in the afternoon helped with the tired feeling we all get. But I don't seem to have any problems.I am wondering if taking it at night has made my T3 increase in my blood labs?I read on the thyroid.about forum that our thyroids work at night time to restore what we used that day. Has anyone else read something similar? I wonder if taking all my meds at night would be best?Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 It sounds like your doctor thinks that a suppressed TSH equates to being hyperthyroid. Many on this board will tell you from experience that they do not equate. Kim From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of LynnSent: Wednesday, November 01, 2006 6:44 AMTo: Texas_Thyroid_Groups Subject: Re: New Dr STINKS! What is the reason for us Hashi's people to be suppressed?Is it because we are trying to avoid Hashi flares, or to try to stop the distruction?I've had Dr after Dr tell me that a suppressed TSH is BAD! That I will suffer from articular fibillation (from too much T3), and concern over my loss of bones.I need a really good fight to be able to stay suppressed, and I seem to be losing that battle.Since I need to start looking for a new Dr, I have to have a really really good reason for stating my cause.....Lynn>> Yes, it's fine. But it's really important for ThyCa and Hashi's.> > Kate> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 That's right, Kate. Re: Re: New Dr STINKS! > The only problem with the bone loss stuff, the are too many factors for > bone loss. You really can't attribute bone loss to one thing. > > Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2006 Report Share Posted November 4, 2006 is a Houston endo, not at MD . You do not need an endo to prescribe your thyroid meds. If your primary care doc is willing to work with you, that might be the first place to start. Waldrop wrote: Hi:I also had Dr. Basaidy assigned to my case at MD . I am really new at all this, but I told her I thought I was undermedicated because I kept crying all the time - even when there was nothing to cry about. She told me to go to my general physician and see what the underlying cause of my crying was! That's when I knew she was wacky!!!!I have asked to be assigned to another doctor and they said "NO!!" Do you believe that they can say that when I am a paying customer/patient?! I have another appointment on December. I want to call the head of the department and complain, but I am afraid they will "throw" me out. I had medullary cancer and they are the top hospital in that type of cancer research in this area.I have been going to another endo in the 1960 area in Houston. She isn't good either, but she is running the tests I want. She doesn't pay any attention to the results, but at least I know I am on the right track. I'm on Synthroid and she just added 5 mg of cytomel at my request. I hate to start over with another doctor. I think my insurance is going to drop me if I keep jumping around! What are you going to do? Who is Vivian Rodriquez? at MD ?> > I finally had to go see the new Dr that was addigned to > me after Dr. > > Sarlis left MD .> > > > I can not and will not recommend any one see DR. Busaidy.> > > > She asked how I was doing, as far as the pain from the > inflammation.> > I told her I was doing ok, but was concerned about the Cytomel > that > > I was taking, thinking that there was either something wrong with > > the batch, or something wrong with me.> > I showed her my printout of the t4/43 range calculator that Emma > > from thyroid.about.com has made.> > The Dr. quickly discounted that saying that every range is > > different. I told her that it's a simple equation.> > She said it also didn't matter because our thyroids can vary. I > > told her that I "try" to get my bolld drawn same time each visit.> > She then told me that the Free T3 didn't matter. > > Oh and get this, that I didn't need T3 to begin with.> > Dr. Sarlis told me from day one that I have a conversion problem.> > She never ordered the Free T3 only the T3 Total.> > She wanted to try to get me off Cytomel altogether. I told her NO > > WAY! SHe told me that being on Cytomel could make me develope > > articular fibrillation. She said they give it to cancer patients > > because the benefits outweigh the possible side effects. She said > > don't worry, she wouldn't do it "if" I was doing fine on that > dose. > > Yeah right!> > I asked her what she thought of Armour. She said she wouldn't have > > a problem with me being on it, but warned me of the unstability of > > Armour. I just shook my head. She said she has never prescribed > > it, but has patients on it.> > The most important thing I am worried about is my labs.> > I was hoping someone would have an answer.> > I've notice that my Free T4 is dropping. I was in the 58% but now > > am in the 48-44%.> > What could this mean? My ultrasound has confirmed that my right > > side is not dead due to that Hashi's but my left side is being > fully > > attacked.> > My TSH is suppressed at 0.02 (0.50-5.50)> > up from 0.019 (0.350-5.500> > > > I can't explain how bummed I am from this visit. I finally found a > > Dr that would listen to me, and now I am back at square one. How > > dare Dr. Sarlis go and try to find a cure for cancer! (just joking) . __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.