Re: Emotional fragility

[Guest guest]

That's the key, Margaret. Not letting negative or self-doubt derail

positive thoughts. I have a copy of the movie Sea Biscuit. If you

haven't seen it I highly recommend it. There's a line I like about

when the horse whisperer/trainer character says about the horse that

couldn't race anymore, " Don't throw a whole life away 'cause his

banged up a little. He can't race anymore, but he's still good to

look at. " I love this. My husband says I'm his Sea Biscuit!!

>

> ,

>

> This is a big problem for me. It has a profound effect on my life.

[Guest guest]

I agree with the breathing technique......so simple and easy to do, no

epuiptment required! And it does help to calm you down immediately.

Another thing that helps me - QUIET! I can be here all day long, with not a

SOUND in the house. My hubby LOVES music and there is either music or the TV

blaring almost 24/7 around here (still have 2 teens at home full time and one

college student here quite often!) So when all are off to work and school, I can

just be at peace, in the quiet. This helps me tremendously. Hubby always seems

surprised when he comes home and it's so quiet, but I LOVE it...it's just

something he doesn't understand, and that's ok.....it's my time and I cherish it

as long as I can get it.........not quiet at ALL when all are home and the noise

levels get almost too much to bare, sensory overload! EEK!

STL Jane

[Guest guest]

Hi Jane, yes I cannot handle a hubbub around me, but I live alone and so

have much more control…but when I still had kids at home it could be hell

sometimes! Not that you don’t love ‘em, but the racket can really have an

impact…I just melt down and get totally confused! I do like to have music on

sometimes (it’s soul food for me) but only as much and what I want! Aylwin

xox

_____

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of Jane

Sent: Tuesday, December 18, 2007 5:50 AM

To: CFAlliance

Subject: Re: Emotional fragility

I agree with the breathing technique...-...so simple and easy to do, no

epuiptment required! And it does help to calm you down immediately.

Another thing that helps me - QUIET!

[Guest guest]

Hello All!

I wanted to update my information on this thread that I posted about

taking Lyrica. Although I got huge benifits from taking this

medicine against the Nerve pain that nothing else seem to touch, I

got a terrible allergic reaction since my posting and it went into

cellulitis so quickly...it scared the pants off me!

I am almost done now with antibiotics and steroids with rashes all

but gone now too. It really ticks me off to finally find something

that gave me hopes in getting off most of my narcodic usage to just

have a severe reaction! I am not allergic to anything before this

I hope everyone is hanging in there. I have been busy with my

standard poodle pup until a local foundation that places dogs with

people with disabilities, can get her into their prison program for

beginning level training. I had no idea what this group does or will

do for me but they normally place the 'right dog' with the right need

of the patient. Getting trainable dogs in the specific breeds of

Labs to Standard Poodles along with any combination of the two is a

rare occurance. I am hoping that because I am using my own pup, it

will cut out some of what would be a lengthy process.

I understand or found out that they invest approx 8k in each disabled

person. Before realeasing the dog back to the owner, they will

install " invisible fence " , provide all items like harnesses for

weight support to anything needed for the dog to do the things it's

trained for. I understand that in the lowest level of training, they

tech the dog how to take things from washer to dryer and out into

basket, retrieve anything upon command, dial phone etc.

I will be happy if she is only trained for companionship, obedience,

retrival of dropped items...but anything else will be a bonus!

Ooops! I got off subject and managed to write another book!

God Bless Everyone!

> >Hello Ladies,

>

> I am right there in the middle of this pile when it comes to

> emotions. Until this thread, I thought it was just ME. I so

> appreaciate those that are spilling themselves out for those of us

> that need it. Your timing could not be better, I might add.

>

> My doctor started me on Lyrica (med made specifically for fibro)

and

> he did not want to get my hopes up and said to give it a week.

> Presently, they are offering a full week free from the

> pharmaciutical. I can tell you here and now, I have not taken my

> percodan or my oxycontin since I took that first dose! I saw the

> difference in less than the first half hour!

[Guest guest]

Hi ,

What great news about getting your pup into a training program. There

is a prison training program near where I live and I hear they do a

really great job. Any idea how long the waiting list is? Sorry about

your allergic reaction. I hope you will be feeling well soon.

Sandrea

[Guest guest]

Hi , how good to hear from you! I am so sorry the Lyrica did not work

out for you. Those allergic reactions can be scary. I would suggest now that

you taper on to any new drug very gradually…that’s what I do, to avoid such

scary scenarios. It’s common for us types to develop drug (and other)

allergies and sensitivities as we go along. Are the narcotics so bad…do they

make you ill, stoned or whatever…because sometimes they are just the best

and only thing, they have their uses as well as abuses, and forget any moral

judgments against your self or whatever. I know many don’t even get relief

from opiates, so in a funny way you are lucky that something works for you.

That all sounds wonderful about the pup! Very exciting and great that there

is a program in your area. How’s the pup? Name? How old is he? Anyway my

dear it’s great to get an update and I hope it all goes well for you now!

TC, Aylwin xox

[Guest guest]

Hello ,

My doctor and I decided together that Lyrica would not be a good idea for me to

try. I'm wondering what you're speaking of when you talk about formerly taking

narcotics. What was it you took and what did it do for you? At this point and

for all of the past 30+ years I've had all these problems, I only take an

anti-depressant at night to help me stay asleep. I have absolutely no social

life because of the pain, fatigue and allergies/sensitivities to 'smells',

fragrances and 'odors'.

I've met a man at a singles site who is interested in meeting me and getting to

know me better, but I'm 'dragging my feet' about it. On the one hand, I'd be so

excited to have a real life again and perhaps even find love again, but on the

other hand, I don't know if I'd have the stamina or ability to even get started.

If there is anything I can do to help with my issues, I'd like to know what it

might be.

Thanks,

Dorie

Hello All!

I wanted to update my information on this thread that I posted about

taking Lyrica. Although I got huge benifits from taking this

medicine against the Nerve pain that nothing else seem to touch, I

got a terrible allergic reaction since my posting and it went into

cellulitis so quickly...it scared the pants off me!

[Guest guest]

Maybe I should try wording my question another way. I'm a 61-yo woman who has

had CFS for over 30 years, so having tried many relationships and all sorts of

other situations before (such as employment, a social life, etc.), I know what I

do and don't have regarding stamina.

My question is what was it was using that seemed to help her? There was

some kind of mention of a narcotic. It sounded like she was happy to be off it,

but my knowing I can't have Lyrica makes me wonder if what she was formerly

using might be better for me than nothing at all.

Thanks,

Dorie

[Guest guest]

Hi Dorie, well dos not get to post very often, so I will answer in

general as best as I can. She was taking a narcotic painkiller for her

severe pain. People with ME/CFS/Fibro have highly variable reactions and

results with pain meds…some are helped by narcotic, or opioid, medications

and some are not. Some are helped by Lyrica, and some are not. My suggestion

is that you work with you doc on this, of get referred to a pain treatment

centre. The reason is, that if you doc does not acknowledge the intensity of

pain you may be experiencing, you will never get a scrip for a narcotic

anyway. This is just for and about pain; narcotics will not improve your

other CFS symptoms. Good Luck, Aylwin xox

[Guest guest]

I think she was taking Vicadin. I may be wrong. Can't rely on my bad memory

anymore. I also take vicadin for pain. It does help but I am so doped when I

take it that I don't accomplish anything else, except sleep. Maybe that's bad..

maybe its not. I don't take it on a daily basis.. just when the pain gets so

bad I can't handle it anymore.

Someone correct me if I am wrong.

Hugs!

Vickie

Dorie S wrote:

Maybe I should try wording my question another way. I'm a 61-yo woman

who has had CFS for over 30 years, so having tried many relationships and all

sorts of other situations before (such as employment, a social life, etc.), I

know what I do and don't have regarding stamina.