Guest guest Posted November 21, 2003 Report Share Posted November 21, 2003 Abby, I know that medication affects everyone differently. My Dad first started to change in 1995 with memory loss and other strange things. He wasn't dx with LBD until 18 mths ago. Early this year is when the hallucinations really started to kick in. He was seing people (strangers) all over the place and some of them were out to do him no good. He was having a very hard time differentiating between what was going on on TV and real life. He was getting up in the middle of the night and packing his luggage to go to his other homes. He was also really worried all the time about the smallest things. The doctors put him on Excelon (for the hallucinations & the shaking) and Paxil (for the worrying). Both have been a tremendous help with the hallucinations and the worry. He is a lot less confused and can follow a conversation. The downside I have seen is increased sadness and I wonder if because he is less confused, he is more aware of what is happening to him. He also has become stiffer physically, has loss his appetite and is loosing his balance. The doctors say this is probably side effects of the Excelon. It seems like a no win situation. abbybb1 wrote: Hi guys: I spoke to my dad's family doctor today who, surprisingly, knew quite a bit about LBD (even though he didn't recognize it even after my dad's surgery when I told him re: some of my dad's weird hallucinations..). Nevertheless, when I asked about Memantine he said he'd read about it and it was still only available in the US but that Canada's approval of it was " imminent " . He said his wife is a pharmacist so she'll check to be sure. He told me we could consider that for my dad but, given the fact that the Aricept seems to be working for him cognitively, we don't need to consider it now. Are your LOs on anything for their Parkinson's. I know the problems associated with LBD and how medications for either Parkinsons or Alzheimer's tend to cross one another out but is there anything my dad could be taking so that he's not hallucinating or feeling so bone- weary and shaking as badly as he does? It's just killing me to see him like this. I knew last week was too good to be true. Ah, those highs but damn these lows..... Abby Quote Link to comment Share on other sites More sharing options...
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