Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Hi All, Been lurking for, well, a few years. Anyway, have results of a SPECT scan and shows underdevelopment in the most forward part of both temporal lobes. My child is Aspie/HFA, 8yrs. old, no meds. Expressive/Respective language is biggest issue, followed by TOM and then balance. Was wondering if anyone as experience with therapies that have shown improvement, who have also done SPECT scans. We have done speech therapy for 6yrs., OT for 4yr., some gymnastics, some mood Bell, some biofeedback, most Locutour, most Sentence Master. (wanted to mention too, am big advocate of nutritional supplements - efa's Can now afford to do something like The Listening Program or Fast Forward, HBOT and not sure if I should be looking at something altogether different. Anyone out there with SPECT scans, tried a therapy, showed improvement, then did another SPECT scan? I know everyone's different but you have to start weeding out somewhere. Thank You, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2004 Report Share Posted February 8, 2004 , .. .as highly dangerous as it can over oxygenate and cause damage to areas of the brain that are already over perfused - often the case with our kids. Have heard this but only by Dr. G, but no reference data. Any links? Thank you, SPECT scan Hi All, Been lurking for, well, a few years. Anyway, have results of a SPECT scan and shows underdevelopment in the most forward part of both temporal lobes. My child is Aspie/HFA, 8yrs. old, no meds. Expressive/Respective language is biggest issue, followed by TOM and then balance. Was wondering if anyone as experience with therapies that have shown improvement, who have also done SPECT scans. We have done speech therapy for 6yrs., OT for 4yr., some gymnastics, some mood Bell, some biofeedback, most Locutour, most Sentence Master. (wanted to mention too, am big advocate of nutritional supplements - efa's Can now afford to do something like The Listening Program or Fast Forward, HBOT and not sure if I should be looking at something altogether different. Anyone out there with SPECT scans, tried a therapy, showed improvement, then did another SPECT scan? I know everyone's different but you have to start weeding out somewhere. Thank You, ______________________________________________ Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2004 Report Share Posted February 8, 2004 Hello, Just finished that presentation while you posted. Didn't see anything regarding HBOT being not recommended for hyperperfusion children. Are referring to slide 37 (Magill University or 3rd International Symposium on Brain Injury & HBOT) Not being argumentative here, just can't see it documented, meanwhile HBOT advocates say HBOT helps both hyper and hypo and offer " before and after " spect scans as well as documentation that no other therapy was tried. No hidden agenda, just digging. Thank you, Re: SPECT scan Power Point Presentation http://www.drspectscan.com/Library/acam.pdf " Brain and HBO Therapy " ACAM - American College for Advancement in Medicine 11/22/03 Las Vegas, Nevada J. Uszler, M.D. (310) 264-0080 --- " mylostsaints " wrote: > http://www.drspectscan.com/index12.html > http://www.drspectscan.com/hbotx.html > > > > > Any links? Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 Mindy, We have BCBS PPO, and they paid 100% of the SPECT scan. Joni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 That's terrible Doris !! Keep us posted as to how you make out. It is good for the publicity; but not at the cost of the children !! Sincerely, Also An Established patient: Michele Cerruto, 39 yrs. old Lindsey Davies, 13 yrs. old New Jersey Moving to Greenville, So Carolina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Yes, Carmen still does the scans. Unfortunately, we were hit with something of a challenge, because the camera broke down a couple of minutes into the scan! We ended up having to drive over to Dr. Uzler's office! So we ended up experiencing both facilities in one day...lol. Hopefully, none of you will ever have to go through what we did! Incidentally, Dr. Uzler and his technician were both very nice. Donna > > Well that's great that Carmen is still there.. did she actually do the scans > - I do hope so. > > By the way, has the price changed? We paid $US930 in both Jan 2002 and April > 2005 - this was the price for people paying direct (used an international > credit card) I think it was a bit more if through an insurer. > > Re: SPECT scan > > Doris and all - > > I think Brain Matters just didn't expect the response that they got. > They're just overwhelmed. Have you tried calling Narod in > Denver? If you leave her a voice-mail message, she should get back to > you soon, especially if you say your son is a pt. of Dr. G's. She > coordinated the whole thing with the Brain Matters office in Torrance. > Her direct number is (303) 665-0871. Good luck! > > just had a scan done last Friday. Carmen is still there. > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute and/or the Parent Coalition. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 so if you paid $930 last yr for a SPECT and UCLA billed BCBS FEP $1200 for 's SPECT, how is it that the cost has suddenly jumped to $1800 ? Do you get a 1:1 with a BrainMatters SPECT expert? (we never got this at UCLA). doris land > > Well that's great that Carmen is still there.. did she actually do the scans > - I do hope so. > > By the way, has the price changed? We paid $US930 in both Jan 2002 and April > 2005 - this was the price for people paying direct (used an international > credit card) I think it was a bit more if through an insurer. > > Re: SPECT scan > > Doris and all - > > I think Brain Matters just didn't expect the response that they got. > They're just overwhelmed. Have you tried calling Narod in > Denver? If you leave her a voice-mail message, she should get back to > you soon, especially if you say your son is a pt. of Dr. G's. She > coordinated the whole thing with the Brain Matters office in Torrance. > Her direct number is (303) 665-0871. Good luck! > > just had a scan done last Friday. Carmen is still there. > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute and/or the Parent Coalition. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Was just wondering that when I read about the $1800. I suspect that the cheaper price had something to do with the UCLA Harbor facility getting some kind of funding as this radiology lab also serves as a community facility - I believe (I certainly saw pregnant women, people on crutches etc comeing in for scans, x-rays etc - so maybe this is the price we pay for some privatization - no more subsidy. Re: SPECT scan > > Doris and all - > > I think Brain Matters just didn't expect the response that they got. > They're just overwhelmed. Have you tried calling Narod in > Denver? If you leave her a voice-mail message, she should get back to > you soon, especially if you say your son is a pt. of Dr. G's. She > coordinated the whole thing with the Brain Matters office in Torrance. > Her direct number is (303) 665-0871. Good luck! > > just had a scan done last Friday. Carmen is still there. > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute and/or the Parent Coalition. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 Hello everyone I'm sort of new here - I've been watching your great posts for a long time, and we are at last managing to get over from UK to see Dr Goldberg in a couple of weeks time. Dr Uszler is doing our Spect scan, and he has quoted me $1500. Best wishes to you all, Elspeth <rmwilson@...> wrote: Was just wondering that when I read about the $1800. I suspect that the cheaper price had something to do with the UCLA Harbor facility getting some kind of funding as this radiology lab also serves as a community facility - I believe (I certainly saw pregnant women, people on crutches etc comeing in for scans, x-rays etc - so maybe this is the price we pay for some privatization - no more subsidy. Re: SPECT scan > > Doris and all - > > I think Brain Matters just didn't expect the response that they got. > They're just overwhelmed. Have you tried calling Narod in > Denver? If you leave her a voice-mail message, she should get back to > you soon, especially if you say your son is a pt. of Dr. G's. She > coordinated the whole thing with the Brain Matters office in Torrance. > Her direct number is (303) 665-0871. Good luck! > > just had a scan done last Friday. Carmen is still there. > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute and/or the Parent Coalition. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 Hey Espeth....good luck on your journey...if you need any help etc email me off line, Regards, Re: SPECT scan > > Doris and all - > > I think Brain Matters just didn't expect the response that they got. > They're just overwhelmed. Have you tried calling Narod in > Denver? If you leave her a voice-mail message, she should get back to > you soon, especially if you say your son is a pt. of Dr. G's. She > coordinated the whole thing with the Brain Matters office in Torrance. > Her direct number is (303) 665-0871. Good luck! > > just had a scan done last Friday. Carmen is still there. > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute and/or the Parent Coalition. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2006 Report Share Posted April 15, 2006 Doris, We go to Dr. Uzler and both times she had to sit quietly in a dark room for 15 minutes for the medicine to work well. ll called it her " alpha state " of mind. She wanted to go in by herself the second time we went. Joni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2006 Report Share Posted April 15, 2006 before or after the injection of the isotope? and with/without an IV ? doris > > Doris, We go to Dr. Uzler and both times she had to sit quietly in a dark > room for 15 minutes for the medicine to work well. ll called it her " alpha > state " of mind. She wanted to go in by herself the second time we went. > Joni > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 She sat in a little dark room after the injection. She did not have an IV that I remember. We also went to a great diner type restaurant a couple of blocks down the street on the same side of the street, very kid friendly with a great selection. I have to look up the name and will post. Joni Quote Link to comment Share on other sites More sharing options...
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