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Hi everyone,

I am so glad to have found you and could really do with some opinions

and advise.

My name is Ruth and I was dxd with AOSD 6 years ago after birth of

2nd daughter at age of 32. I just had a sore throat, then the rash,

and when doc did blood test he found arthritis. After referal to hosp

reumotology they said they were sure it is AOSD, but apart from mild

changes in temp I have never had fever. This confuses me, but many

symptoms are getting worse, I ache all over most days and am now on

25g of methotrexate and 7.5g of Prednisolone every day as my wrists

are really swollen and painful. Until 6 months ago it was mainly

aches and pains and just puffy fingers, but it is now effecting my

everyday life and seems to be getting worse.

I feel very alone with my symptoms, despite a very loving and

supportive husband and family. Any views would be so welcome and just

to know of anyone else in the same boat would be so helpful.

Many thanks for listening!!

Ruthx

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