Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 If you've gained any of the wonderful prednisone weight, add that. If obese, add that. If you have anything else, non-stills related put that in as well. I'll never forget when I worked for social security disability. I had a woman who was totally blind but had some new back problems. She filled out her disability form with all the back problem stuff and ever mentioned that she was totally blind on the form. Had I not questioned her about that, she would have been denied. What I'm saying is don't forget the obvious - High blood pressure, back problems, diabetes, etc. Good luck. carole in Hollywood FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 I notice you have nose sores too. The docs keep telling me it's not related to Stills but they don't know what it is, but I'm beginning to think it is Stills related - even though they still can't do anything about them. Just wanted you to know that someone else has them to. Good luck with your interview - fingers crossed! Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 chris, thats a pretty thorough list, but i remember they asked me if i was able to bathe and dress myself without help,you might want to add that. good luck,elly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 I get most of the symptoms you listed..not anemia tho..too much iron runs i my family. I am a carrier for the disease hemochromocytosis. Anyway, I think being persistant should eventually work. What a world. Feel better ...Liz NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2006 Report Share Posted December 3, 2006 Hi Faye I still have the nose sores after 7 months sometimes I wonder if they will ever go away. Take Care, Chris PS Sorry your here but glad you found this group they are great. ANGELAINO@... wrote: Hi There, My name is Faye and I have had stills for almost two years now.I had and I had really bad nose sores for almost a year before they finally went away. All the doctor would say was use saline nose drops. Faye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi Chris. Guess I was lucky to only have the nose sores for a year.I have found that since I have been reading about everyone elses problems I am doing better than I thought. HAVE A GREAT DAY, FAYE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Hello everyone, I know I haven't posted here in a long time, but you all should be use to that by now. I hope you all are enjoying your weather there in the mid west lol. it's a nice balmy 34 here in nw montana. Just about time to break out the shorts! Guess I should wait for the snow to melt off, and since that won't be for awhile yet. The Holiday season wasn't good to me this year and I am still dealing with a lot of that. My dad passed away dec 10th. We weren't close but it has still delt a big blow. Things will get better over time that I know. As for my medical. I was on Rituxan there for awhile but decided to stop that after the latest FDA Warning on it. Was not a risk I was willing to take. The bad thing about that is it was working. I am now on Orencia I believe it is slowly starting to work, but I think it is causing some of my new problems I am having now. I will be talking with my doctors about that here in the next couple of days. Well that is about all for now. Will try to post again soon. Until next time take care... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Dearest , It is good to see you. That is awful news! My condolences and warm thoughts. I am sorry that you lost your Dad, no matter how close you were it still hurts.I am sending gentle hugs and hope that Orencia works for you very very well! I am supposed to start it too, but my insurance company is being difficult. Keep in touch Sweetie Love Sharon xxoo > Hello everyone, > I know I haven't posted here in a long time, but you all should be > use to that by now. I hope you all are enjoying your weather there in > the mid west lol. it's a nice balmy 34 here in nw montana. Just about > time to break out the shorts! Guess I should wait for the snow to > melt off, and since that won't be for awhile yet. > > The Holiday season wasn't good to me this year and I am still dealing > with a lot of that. My dad passed away dec 10th. We weren't close but > it has still delt a big blow. Things will get better over time that I > know. > > As for my medical. I was on Rituxan there for awhile but decided to > stop that after the latest FDA Warning on it. Was not a risk I was > willing to take. The bad thing about that is it was working. I am now > on Orencia I believe it is slowly starting to work, but I think it is > causing some of my new problems I am having now. I will be talking > with my doctors about that here in the next couple of days. > > Well that is about all for now. Will try to post again soon. Until > next time take care... > > > > >  Quote Link to comment Share on other sites More sharing options...
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