Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Hi, I have had numbness then tingling in my Arms and Legs. It started getting bad about the end of June, but I have had it on and off my entire life. I told my doctors this, combined with high adolase and High Liver Enzymes blood tests, my doctors felt I might have a muscle disease in addition to the Still's. The Rhuemy did some muscle strength tests and ordered a EMG and muscle biopsy. The EMG came out normal. I'm still waiting for the results of the Muscle Biopsy. I don't know why I am having Numbness and tingling yet, but I'm sure my doctors will find out. Good Luck! I hope you find an answer too. --------------------------------- Get your email and more, right on the new Yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 I have a lot of tingling and numbness in my hands, arms, feet and sometimes head. I just assume it's part of all this mess, lol. Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 Hi Norma, We have had some recent discussions on itching. Some take prescription meds. For me I have found I can control some of it by changing laundry detergent and using hypo-allogenic shampoos, lotions and make- up. Funny you mention ear itching. Do you mean inside the ear or out? I do sometimes have itching inside my ear and it drives me insane. To date, no cause and nothing to stop it. You might want to search the messages for itching and see what comes up. Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 > > Hi Norma, > > We have had some recent discussions on itching. Some take prescription > meds. For me I have found I can control some of it by changing > laundry detergent and using hypo-allogenic shampoos, lotions and make- > up. > > Funny you mention ear itching. Do you mean inside the ear or out? I > do sometimes have itching inside my ear and it drives me insane. To > date, no cause and nothing to stop it. > > You might want to search the messages for itching and see what comes > up. > > > Houston > Hey there! I get those itchy ears(inside,too! Feels like my brain is itching me!( " What brain,Bram? " Sometimes my percocet makes my scalp itch,also. I hope I used this " reply " correctly. I usually post answers... Good luck to you!!! I wish you pain and itch freedom! Sincerly;Bram. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2006 Report Share Posted December 5, 2006 > > Hi Norma, > > We have had some recent discussions on itching. Some take prescription > meds. For me I have found I can control some of it by changing > laundry detergent and using hypo-allogenic shampoos, lotions and make- > up. > > Funny you mention ear itching. Do you mean inside the ear or out? I > do sometimes have itching inside my ear and it drives me insane. To > date, no cause and nothing to stop it. > > You might want to search the messages for itching and see what comes > up. > > > Houston > Hey there! I get those itchy ears(inside,too! Feels like my brain is itching me!( " What brain,Bram? " Sometimes my percocet makes my scalp itch,also. I hope I used this " reply " correctly. I usually post answers... Good luck to you!!! I wish you pain and itch freedom! Sincerly;Bram. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Hello stilligans, I was dx back in Nov. 05 and since Feb.. or march my blood work is normal. I am on kineret when I don't have some type of infection going on and plaquenil and antinflamitory called lodine. Even with the blood work be normal I still have a great deal of pain in my hands, elbows, shoulders and my knees and my RD feels I should not be in so much pain. I also still have fevers often, I get hot then cold then hot again this goes on everyday. Whenever I do any type of physical activity I start to sweat real bad and get exhausted easily. I have lesions in my brain caused by still's and I get headaches frequently, my memory is shot and I cannot concentrate very well. My question to the group is, does anybody experience pain even though your blood work is ok. thanks, Brett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 , I was put on MTX and after a month or so I was experiencing severe head aches and that is when we discovered the brain lesions. So she is hesitant to put me back on it. Arava I have not tried. What type of drug is it? Brett Re: question Brett, Has he tried Methotrexate or Arava or is that not possible with the lesions as well? I sure hope you find something to help soon. Do you find anything that seems to help? Houston > > , thanks for the response. My Rd would like to try different drugs, but because of the brain lesions I can't take enbrel or remicade. > > Brett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2007 Report Share Posted January 9, 2007 Hi Brett, Yep my blood work appears normal yet I feel like crap. Pain in all joints, headaches, fevers & chills at times. I don't see how our blood work can be ok & we aren't. My RD took me off of MTX about 4 weeks ago so posbbily that is playing a part in how I feel because it takes 6 to 8 weeks to get out of a persons systom but even when I was on it I still had the pain & normal blood work I just feel worse now. It will be interesting to see how many others have this as well. Chris Brett wrote: Hello stilligans, I was dx back in Nov. 05 and since Feb.. or march my blood work is normal. I am on kineret when I don't have some type of infection going on and plaquenil and antinflamitory called lodine. Even with the blood work be normal I still have a great deal of pain in my hands, elbows, shoulders and my knees and my RD feels I should not be in so much pain. I also still have fevers often, I get hot then cold then hot again this goes on everyday. Whenever I do any type of physical activity I start to sweat real bad and get exhausted easily. I have lesions in my brain caused by still's and I get headaches frequently, my memory is shot and I cannot concentrate very well. My question to the group is, does anybody experience pain even though your blood work is ok. thanks, Brett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 Arava is a DMARD like MTX and sometimes is used instead of MTX. I don't know how different they are. I was having too bad of side effects on MTX so I got put on Arava. Those brain lesions are scary. How often do you have to have your brain re-scanned to see if there are changes? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2007 Report Share Posted April 8, 2007 Hello Sharon! Do you work at all? I think that the state(and federal) usually " play " with our money if we make a little more;or less...I don't work at all,and every January I get a " cost of living " raise (ha -ha about 10 to 20 bucks. But it's something anyway.) I think that you should fight it;BUT call first. It MAY be an honest (yea...) mistake? I never received my recertification packet for Food Stamps. So...They closed my case in February! Their fault;not mine,but I suffer. They did send me the packet after I called and whined at them at how " good " I am(awww)at ALWAYS making out my recerts. and sending them in right away. BUT;Even if they re-open my case(probably;it sounded good);I won't get my March (or Feb. Food money.) OF COURSE Rox will feed me(my partner);but those food stamps are the HELP I give her by me buying some food for the house for us BOTH..This is the ONLY way that I can pay her SOMETHING for all her spending on ME. See? The SSI and SSD money goes for x-tra medicine that I buy since I am useing the max allowed on my Medicare part D. (That money is SUPPOSED to be my rent money! See how crazy it all is? Well;I wish you luck,I really really do!!!!! Let us know,okay? Sincerely(I mean that!);Bram. Quote Link to comment Share on other sites More sharing options...
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