introduction

[Guest guest]

hi everyone im jayne and im 40yrs old. ive had stills disease since age 2 but

wasnt diagnosed until about age 14. had my first hip replacement at age 18 and

have had seven more since then, the latest in march this year. very let down by

the medical profession over the years, saw an rd for the first time when i was

25 didnt know they existed and have seen her once since then, this october. had

my shoulders injected for the first time in october but right shoulder bad

again. ive never had good pain relief, started mtx for first time in october

and taking rheumalgan and paracetamol, my pains are actually getting worse and

at times unbearable. im divorced with 2 children age 11 and 9 and at times its

really hard going. i do try to keep on top of things and love meeting with

friends and having a good laugh but after all these years of having stills, i

still know very little about the disease and would love some answers if possible

and why im starting to have so much pain

when i was told a few years ago that my arthritis wasnt active any more.......