Re: Hi All!

[Guest guest]

Courage:

Please add my dad's name to your donation:

Adolfo E. Batista

October 22, 1913

August 18, 2003

Thank you, love,

Josie

[Guest guest]

Jonet:

At what time is the party? Can I go? It sounds fabulous. What a great

hostess you are! Holiday cheers for you, love,

Josie

[Guest guest]

Glad to hear from you.

Patty in TN, mom to Wesley -pmg, seizures, great laugh and smile

To: polymicrogyria@...: willandcatelarson@...: Mon, 2

Feb 2009 19:22:07 +0000Subject: Hi all!

Hello, My name is Catey and my son Charlie is 9. I have been reading for a while

and thought I would introduce myself and Charlie. He was diagnosed a 4 days old

with Liss. He had to have surgery at 2 days old because he had 17 blockeges in

his small intestine. They did ultrasounds of the reast of the body and thats

when they saw it. We went to see Dr.Dobyns and he changed it to PMG. Charlie

does not walk or talk and has to be feed. He is also blind, for the most part.

We think he can see a little. He has very little use of his hands. He has 6-7

seizures a day. They are in clusters and can last up to 20min. We are in the

process of changing his meds. He is a very happy boy and smiles and laughs a

lot. He is a complete joy in our family. I don't want to type everyones ear of

so I will keep it short. I love to talk about him and could go on for hours. We

have been through a lot together and I would be more that happy to share if

anyone has any questions.Thanks for letting me share,Catey mom to Charliebear

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