RE:Jayne/Intro

[Guest guest]

Hi Jayne,

Boy, I can totally relate. I am also 40 and I have been battling this since

I was a kid too. And the Drs haven't been supportive nor willing to take the

steps to help me find out what was going on as I grew older. I was even told

that when you have this as a child when you grow older it is overcome and

never bothers you again. WHAT? What can you do when the ones who are suppose

to help you are not doing their jobs? I was also told that the arthritis was

not active anymore. Interesting. Then why all the pain and stiffness?!? It's

enough to make one pull their hair out!

I am from Oregon State. After the births of my two boys, I began the

battle with the dragon in a bigger way. Recently I have added a new

diagnosis to go along with all the other things. I also have Psoriatic

Arthritis plus a compressed disk in my spine partly from damage and partly

from an old injury--which I didn't know I injured.

I am glad that you found us. This disease can leave us wondering and asking

a lot of questions, and if we don't know a lot about it, we are left in the

dark and feel very alone and scared. Feel free to ask questions and be sure

to read over the web page for Still's. A lot of good information is listed

there.

Welcome to our group. I hope you can find some answers here.

Welcoming Hugs,

, Oregon

Posted by: " JAYNE MCCLOY " jaynemccloy@...

<jaynemccloy@...?Subject=+Re%3Aintroduction> jayne111471

<http://profiles.yahoo.com/jayne111471> Fri Dec 29, 2006 9:45 am (PST) hi

everyone im jayne and im 40yrs old. ive had stills disease since age 2 but

wasnt diagnosed until about age 14. had my first hip replacement at age 18

and have had seven more since then, the latest in march this year. very let

down by the medical profession over the years, saw an rd for the first time

when i was 25 didnt know they existed and have seen her once since then,

this october. had my shoulders injected for the first time in october but

right shoulder bad again. ive never had good pain relief, started mtx for

first time in october and taking rheumalgan and paracetamol, my pains are

actually getting worse and at times unbearable. im divorced with 2 children

age 11 and 9 and at times its really hard going. i do try to keep on top of

things and love meeting with friends and having a good laugh but after all

these years of having stills, i still know very little about the disease and

would love some answers if possible and why im starting to have so much pain

when i was told a few years ago that my arthritis wasnt active any

more.......

--

SPEEDY :-)

Meds:

MTX 15 mg; Prednisone 5mg; Leucovorin 5 mg; Armour Thyroid 60 mg

Supporters:

MSM; DHEA 25 mg; Omega3 fish oil 8 daily; Vit. C; Vit. D; B-Complex; Vit

B-12;

Lithium Ortate; Osteo Comlex; Glucosamine & Chondroitin; and Essential

Minerals, AND CALCIUM 1500 mg

" Love endures all things. "

great MSN animations:

http://groups.msn.com/TheAbyssOfAnimation/