Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 a, Maybe I'm more flexible than most people but I have no problems injecting myself. Steve Bullock Re: Kutapressin > As far as the injections { B12 and Mag} does anyone do their own shots? I get > shots every other night in my bottom . Can they be done anywhere else? I > would like to do them myself and not have to depend on having my boyfriend > around at the right time to do them . a > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 What does back channel mean?..barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 I was told by my pharmacist that insurance will only cover Kutapressin for acne in people up to a certain age (I think in their twenties...) bc that is when acne may still be prevalent. > The standard usage seems to be for acne treatment, so you could try getting > covered for that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 a, my favorite place for intramuscular magnesium injections is in the top of the thigh. Like if you were sitting is a chair it would be right in your lap. It seems less likely to hurt than the butt or especially than the outer side of the leg, which is also a much more narrow target. You still do have to be careful to do it in the right area, but there's a lot of meat there even for skinny people like me. I have a handout on giving IM shots that I could fax to you if you backchannel me. If you have a fax machine that is. E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2000 Report Share Posted September 28, 2000 Hi, , >I have Blue Cross, and they've been really good about covering things. As >far as I know, my doctor just wrote the prescription and they covered it >without making him give them an explanation. But they want to cover 1 ml >per day, which is annoying. Most of the time, they will supply at least 30 days worth. If you get on a protocol similar to the one I was on, with larger doses at first, and progressively smaller later, you can probably get the Rx filled, wait a couple of weeks to start the protocol, and get the next refill soon enough to cover the rest of the days that you need >1ml. FWIW, my Blue Cross (the one I am suing for not covering Rx meds, among other things) did cover Kutapressin. They did not question the Rx which specified ann amount of it >1ml/day. Jerry PS sorry about the last time(S?) I forgot to change the subject line. I'm trying as best I can (like most of us, how well that is changes from hour to hour..) _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2000 Report Share Posted September 28, 2000 From: Jerry <jerrycam@...> > >I have Blue Cross, and they've been really good about covering things. As > >far as I know, my doctor just wrote the prescription and they covered it > >without making him give them an explanation. But they want to cover 1 ml > >per day, which is annoying. > > Most of the time, they will supply at least 30 days worth. If you get on a > protocol similar to the one I was on, with larger doses at first, and > progressively smaller later, you can probably get the Rx filled, wait a > couple of weeks to start the protocol, and get the next refill soon enough > to cover the rest of the days that you need >1ml. Thanks Jerry. They did cover it, finally. It was just an error that they didn't at first. How much did you take at first, and what did you taper down to? __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2000 Report Share Posted October 29, 2000 Maybe, but you'd probably have to down 5 bottles a day. Re: Kutapressin > > Since Kutapressin is a liver extract, wouldn't it be easier and cheaper > to take a liver glandular from the health food store? > > Bonnie B > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2000 Report Share Posted October 29, 2000 Since Kutapressin is a liver extract, wouldn't it be easier and cheaper to take a liver glandular from the health food store? Bonnie B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2000 Report Share Posted October 29, 2000 Bonnie, In my opinion, the difference is that Kutapressin is injected instead of ingested. When peptides are ingested, the intestinal cells get first crack at them and use much of the amino acids for their own purposes. When they are injected, they are available for other purposes, such as for the lymphocytes. I think that when Kutapressin works against viruses it is because it supplies amino acids to the lymphocytes and boosts the Th1 (cell-mediated) immune response. Rich Van K. > > Since Kutapressin is a liver extract, wouldn't it be easier and cheaper > to take a liver glandular from the health food store? > > Bonnie B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 In a message dated 1/23/2001 9:18:59 AM Pacific Standard Time, lbinujrsy@... writes: << In researching for a cheap source of Kutapressin, I came up with Women's Pharmacy which carries it for $142 a vial. >> Prescriptionsbymail.com 888-611-2323 $118 a vial. I've checked around and I think this is the cheapest it gets. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2001 Report Share Posted February 8, 2001 Inject kutapressin into the muscle. If you use bottom, make sure it is upper, outer quadrant. Can also do thigh, but I've had very little success with this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 I would like to hear of personal experiences (both reports of it helping, and reports of it doing nothing) of Kutapressin and Isoprinosine. I took Isoprinosine a couple of years ago for six weeks and it seemed to help some. When I took it later, it didn't seem to do much of anything. Also, I'd like to know if anyone has tried inosine/paba in combination as a substitute for Isoprinosine. What is the lowest cost/ availablity of Kutapressin? Where can one obtain Isoprinosine? The PWA health group used to sell it w/o prescription, but last time I talked with them, they needed lots of forms and an RX. Thoughts and info? Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 Larry, Whilst I waited to see an Immunologist to help with my CFS, that is to obtain a prescription for Isoprinosine/Imunovir, I used Inosine and PABA. In doing so, I had a long period without any secondary infections, and when we did have an epidemic of Influenza in the UK, I continued to use this method. Having done so, I can advise that it definitely helped as my symptoms were considerably less than my infected colleagues, my recovery was a lot quicker, and most significantly no relapse occurred with my CFS that I would normally expect. As for Isoprinosine/Imunovir it has a very similar benefit as experienced in my case, but needs to be taken in a cyclic manner, that is two months with, two without. It would appear that using it constantly reduces the effect. Imunovir/Isoprinosine can be obtained in Canada, or if your are in the USA from the Channel Island of Jersey. In the case of the Channel Island of Jersey, I believe that it does not need a prescription and can be shipped straight to the USA. In addition, whilst Jersey is located near to the French coast, it effectively forms part of Great Britain even though it's self governing. This means no language problems! Inosine and PABA can be purchased in the USA in health food stores particularly those selling supplements for athletes. I hope this helps to answer your questions. Regards, Andy Porter Re: Re: Kutapressin > I would like to hear of personal experiences (both reports of it > helping, and reports of it doing nothing) of Kutapressin and > Isoprinosine. > > I took Isoprinosine a couple of years ago for six weeks and it seemed to > help some. When I took it later, it didn't seem to do much of > anything. Also, I'd like to know if anyone has tried inosine/paba in > combination as a substitute for Isoprinosine. > > What is the lowest cost/ availablity of Kutapressin? > > Where can one obtain Isoprinosine? The PWA health group used to sell it > w/o prescription, but last time I talked with them, they needed lots of > forms and an RX. > > Thoughts and info? > > > Larry > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 In a message dated 10/28/2001 2:05:02 PM Pacific Standard Time, lfrazier@... writes: > > > > > > I would like to hear of personal experiences (both reports of it > helping, and reports of it doing nothing) of Kutapressin and > Isoprinosine. > hi Larry : ) kutapressin helped me significantly and permanently. I took it for about 6 months in 1996. the way in which it helped was that it reduced the frequency and duration of " flu-like " episodes that I get. the degree to which it decreased these flareups is pretty considerable. I am still quite disabled by cfids, but still it is an improvement. specifically, the symptoms it helped with are: fevers, swollen painful lymph nodes, body aches, devestating exhaustion. I know for sure that I have reactivated hhv6 and kutapressin has in vitro activity against hhv6. I think it my case, that's why it was so helpful. it is also an immune modulator. I think Cheney considers it a th1/th2 shifter, which goes along with it being antiviral. the best price I know of (and I looked around a lot) is prescriptionsbymail.com (I've no affiliation, etc.) As of last year, about $117 a bottle (other places are as much as $180 a bottle). usual protocol: 2ccs im once daily. p.s.1 at that dosage, you would go through 3 bottles a month. p.s.2 the reason I stopped using it is that I hit a plateau with it where it stopped making me any better. maybe it is like isoprinosine in that it has to be cycled for continued effectiveness. I don't know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 How long did you take Kutapressin before you noted improvement? My insurance won't cover this cost, so I'm trying to figure out how long it would take (how much I would need to spend) to see if it helped. Larry > > hi Larry : ) kutapressin helped me significantly and permanently. I took it > for about 6 months in 1996. the way in which it helped was that it reduced > the frequency and duration of " flu-like " episodes that I get. the degree to > which it decreased these flareups is pretty considerable. I am still quite > disabled by cfids, but still it is an improvement. specifically, the > symptoms it helped with are: fevers, swollen painful lymph nodes, body > aches, devestating exhaustion. > I know for sure that I have reactivated hhv6 and kutapressin has in > vitro activity against hhv6. I think it my case, that's why it was so > helpful. > it is also an immune modulator. I think Cheney considers it a th1/th2 > shifter, which goes along with it being antiviral. > the best price I know of (and I looked around a lot) is > prescriptionsbymail.com (I've no affiliation, etc.) As of last year, about > $117 a bottle (other places are as much as $180 a bottle). > usual protocol: 2ccs im once daily. > p.s.1 at that dosage, you would go through 3 bottles a month. > > p.s.2 the reason I stopped using it is that I hit a plateau with it where it > stopped making me any better. maybe it is like isoprinosine in that it has > to be cycled for continued effectiveness. I don't know. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 In a message dated 10/30/2001 9:11:21 AM Pacific Standard Time, lfrazier@... writes: > > > > How long did you take Kutapressin before you noted improvement? My > insurance won't cover this cost, so I'm trying to figure out how long it > would take (how much I would need to spend) to see if it helped. > Hi Larry : ) It took a good 6 or 8 weeks before I noticed *anything* at all. I was going to give up on it! Then it really kicked in and starting working pretty dramatically. So, improvement did not come on gradually. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2003 Report Share Posted March 2, 2003 hi try family meds .com had a price of i think 140 and was the lowest i saw when i was checking out prices earlier this year for a friend. i was on kutarpressin sub cutaneously , simple injection for years on a daily basis ... my feeling is intitally it helps but over time your body adjusts to it and my hhv6 levels measured by antibody remained high and higher than normal for a cfids patient. the only things that seemed to lower my hhv6 antibody titers into a normal range were hydrogen peroxide intraveous drips but they are very rough on your veins and i think when i was on a few times a week bovine stem cell schedule but they are above normal again but not as high as years ago when i was first ill..long termer here somish. ps i have no connection to family meds.com and they are one of the few online pharmacy that is approved by the pharmacy evaulation stamp ( begins with v online) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Hello, We are very interested in knowing how we could help to get Kutapressin back. Our son has regressed in some areas and slowed in others since we lost it. He was really excellerating on it and literally jumped a whole level of Kindergarten on kutapressin. His stims almost completely disapeared as well. Since being off of it, many old stims have reoccured. So if their is anyway we can help, it would be great to know. Tommy's Mom & Dad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Similar for us Doris Kutapressin Good news on the Kutapressin! Thanks to everyone who aided in this effort!! BTW - just finished charting 's 5 yrs worth of monthly blood draws in Excel and guess what? Results were stable and even for the 2 yrs he was on Kutapressin. Currently, we're experiencing ups/downs in 4mth chunks Doris - land Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Group, I have more info on Kutapressin. The best way to contact the President of Nexco is to send him a fax. When I called the phone number from the website all I received was a recording. I gave this information to my doctor and my doctor said he would try and contact Mr. Sahni and get back with me. I believe that the company will only be selling the drug directly to pharmacy's and possibly doctors that request the drug directly. Sahni President & CEO Nexco Pharma P.O. Box 420222 Houston, Texas 77242-0222 USA tel 713-896-6996 fax 713-896-0176 nexcopharma@y... Sydney Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Kutapressin will be released again by Nexco Pharma under the name Nexavir. Visit NexcoPharma.com for more information! Marc Share Executive Director _____ From: ShyGuyHi@... [mailto:ShyGuyHi@...] Sent: Tuesday, February 08, 2005 4:13 PM Subject: Kutapressin Hello, I have heard from a few people that they are going to start making Kutapressin again. Anyone know where the best place to find it is? It really helped me alot....and would love to get back on it (although it is super pricey). Thanks, _www.thecloves.net_ (http://www.thecloves.net) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Anyone out there get any kutapressin yet? Dr. G said it was available, I believe and that he thinks my boys will be on it by mid May or so. Barb Barb Katsaros barbkatsaros@... Quote Link to comment Share on other sites More sharing options...
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