Diet Questions

[Guest guest]

Dr. G's dietary recommendations are so less restrictive than all the others.

Does anyone know if he recommends soymilk or ricemilk? We use organic spelt

bread. Is that one of the better one's? We also started pepperidge farm

white bread. Does anyone know of a specific brand or kind that is more

favorable? We know to stay away from whole wheat. Thanks,

[Guest guest]

Hi ,

Dr. G. is fine with soy milk *if* your child doesn't react to it. My son does,

so we switched to rice milk (Rice Dream). Soy is an allergen for a lot of these

kids. The soy protein molecule is very similar to that of casien (milk

protein).

Organic spelt bread would be a no-no on the protocol because it isn't

processed. It's not just whole wheat, but unprocessed grains in general that

Dr. Goldberg cautions against. Dr. G says that if you are going to serve bread

at all, the more processed it is, the better. Sour dough, Wonder Bread, Iron

Kids (by Sara Lee), Weber's, and " the cheapest white bread on the shelves " (Dr.

G's actual words to me!) are actually the best choices. Dr. Goldberg would

prefer that we keep bread to a minimum in the kids' diets anyway, but we all

know that sometimes we need to surround the important stuff with bread to get it

into them! :-)

Hope that helps.

Donna

[Guest guest]

Hi Ranee,

The key component to the " " diet sounds very similar to what your son

needs, with the exception of complex carbs, which Dr. G does try and

eliminate or reduce as they do turn to sugar in the digestion process. This

is very similar to most healthy diets you hear of today - consisting mostly

of lots of veggies, and protein, limited fruit, carbs only to get the

protein in, or to fill the child AFTER you can't get anymore veggies and

meat into them.

The main goal is to have the child's immune system homeostatic so that the

immune system can concentrate on fighting viruses. The child's health is

first and foremost. If your child has particular issues, the last thing Dr.

G would want to do is inflame them. However he would more then likely

question why your child has reactive glycemia and again try and cool it so

the immune system can focus on the viral issues.

Our last allergy testing was through blood, however Dr. G's clinical

experience also gives him a LOT of knowledge that he can usually steer kids

in the right direction himself and often uses the allergy testing as a very

basic guideline. Things that I felt the need to cling to, for fear that my

child would starve or emotionally die without them, are usually the ones I

had to get rid of and my child has always been better for it. He survived!

So did I.barely! LOL?

Talk it over with Dr. G., but trust his experience. He has been doing this a

long time and really has a much better sense, believe it or not, of what our

kids can and cannot have, then we do. Our goals are all the same.a

healthier child will really mean a more connected child.

Best wishes,

Lori

_____

From: [mailto: ] On Behalf Of Ranee

Sent: April-09-10 2:57 PM

Subject: DIET QUESTIONS

We are in the process of becoming a patient of Dr. G's. We have been with a

pretty reputable biomed (not DAN) doc for almost 2 years and have seen

significant progress with treatments like amino acids and MB12. I do suspect

there is a link b/t viruses and autism for my kid so we were happy to learn

about Dr. G.

The one thing I am struggling with is the diet, though perhaps for different

reasons than most. We have been GF/CF/SF for over 2 years with very few

infractions. I cannot say that I have seen an improvement only with the diet

nor did I see regression after an infraction though I have seen temporary

regression with other things like viruses. To further complicate things, my

son has a diagnosis of reactive hypoglycemia which requires that he eat only

things with a low glycemic index (complex carbs only, ve ry little sugar,

lots of protein). There are not a lot of options combining this with either

GF/CF or , though my info on the diet is from dated material on the

website basicly saying no dairy of any kind but highly processed

wheat/gluten is ok, which would be a disaster for a hypoglycemic. I am

seriously thinking of quitting GF/CF as my child seems to have significant

issues when not on a proper hypoglycemic diet but only very mild

(undetectable even to me who watches him like a hawk) if any iss ues with a

GF/CF infraction. Here are my questions:

1) If you refuse to follow the diet, what is Dr. G's position? Does he

refuse to treat you?

2) Is soy allowed?

3) Is there anywhere that outlines Dr. G's complete diet that is up to date?

It sounds like there have been many changes over the years and most things

on the neuroimmunedoc website are not current, including the diet info.

4) What type of testing does Dr. G order for food allergies - skin, blood,

stool, etc? Is there a particular reaction that he weighs more heavily than

others (i.e. IgG over IgE, skin reactions, etc.)?

5) Are you convinced that your child made significant improvements just

following diet alone?

6) If you switched from GF/CF to diet, what was your experience?

Any help with the above would be greatly appreciated. Thank you everyone for

contributing to this message board. I have learned so much since joining.

[Guest guest]

Hi Ranee,

The Meridian test was one that we could order ourselves as a patient. If you

Google Merridian Valley Labs you can get their website with phone number, so you

can arrange to have a test kit sent to you. They require you to pay in advance

for the test before they will send the kit, about $149, I think it was. They

have two food panels: the basic 95 foods, and an add-on of another 95 or so

foods with things like spices. We just did the basic 95. We live near a major

medical center, so we were able to walk into one of their blood draw sites and

the tech just did the draw for us. I don't know if you need to have a doc order

for the actual blood draw or if your peds. office could do that part for you. It

takes a little time for the tech to prepare the sample for shipping, so don't

plan on walking in and out with your sample. The techs will need about 40

minutes with it, for it to clot and be centrifuged. I mention this because I

tried to do it one day on a tight schedule and ended up having to return another

day when I had more time. Sorry if this is TMI, but that was the process for us

beginning to end! Good luck.

Tammy

Re: DIET QUESTIONS

Thanks Tammy. Will Meridian just send the test kit if you call or do you

have to go through a doctor to get it? Did your regular pediatrician order

it for you and the other tests as well? I would love to be able to do what

you did and go to the appointment with much of the testing completed.

Thanks again for your very detailed response. Ranee