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Hi , I am born 3/18/1956. I have had this for a while. (1972) It did

go into remissions for me and then pop back many years later.

Anyways with all that your on, I assume it is a rheumatologist. Lowering

prednisone has to be done ever so so slowly. Ask all your new friends here.

Like

1 mg a month. For some reason some doctors are surprised by this.

My brother in Vermont had bad asthma. They used to lower his prednisone

10 mg a pop then take it away at 20mg. Guess how many ER visits he had

gasping for air. Until I told him to tell them.

I am not putting docs down but they probably did not deal with people who

need prednisone for serious reasons( asthma or diseases like ours )

I am so sorry you have this. You sound interesting!! I love city /mountain

stuff myself. When I am well I ride horses( English, but would love to learn

Western as well)

My friend born 2 days before you is going thru a hard time as well...maybe

it is in the stars. Patience patience.....not fun at all as I know all so well.

Lets see what everyone else has to say!!! Feel better and welcome.

Liz

born and lived NYC for 37 years

now a mom in NJ outside of Philadelphia..had kids late , they are 7 and 12

now

************************************** See what's free at http://www.aol.com.

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