Re: canker sores in mouth

[Guest guest]

Are they canker sores or herpes sores?? They are two different

things with 2 different causes.

Becky

canker sores in mouth

> This is my first time to post. I have a son whose diagnoisis is Mild

> Autism with a normal IQ. He still has a lot of difficulty with

> pragmatic speech. I have had good success with the supplements DMG,

> SuperNu Thera and Pro Efa fish oils. We also take probiotics to fight

> a yeast problem in his colon. I have not done any chelation. It

> should also be noted that I have ulcerative colitis which is

> supposedly an immune dsyfunction.

> **My question is this: My son suffers frequently from cancker sores

> in his mouth. When they start he has a low grade fever and stops

> eating. He also starts his echolalic tendencies which are not so bad

> when one of these things is not in his mouth. The low grade fever is

> my warning--he doesn't readily say that his mouth is hurting. Our

> peditrician (who just retired) gave me a prescription for acycolvir.

> I think it helps but we only use it when I get the warning signs.

> What tests are out there that we can get our " new " peditrician to run

> to prove that the herpes virus is responsible for this???? I truly

> feel that it is this virus in his system that causes so many of his

> autistic like symptoms. I have never had any blood work done on him

> but would like to get some done. Also, does Valtrex work better? The

> acycolvir has to be give every 4 hours around the clock which I do not

> do because I don't want to wake him up at night. He is 5 years

> old....Thank you, Tammy

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

[Guest guest]

Hi Tammy -

I'll share some of my thoughts in the post below:

--- teachesl2000 <teachesl2000@...> wrote:

> We also take

> probiotics to fight

> a yeast problem in his colon.

**** Probiotics are very helpful-you've probably read

that Dr Goldberg recommends limited strains (usually

just Acidophilus, no more than acidophilus

w/l.bacillus-but many kids can react to that).

However, if there is a yeast problem and immune

dysfunction, unfortunately, probiotics alone will not

likely do the job completely.

I have not done any

> chelation.

**** Good thing. Known for causing some serious yeast

(and other bacterial issues) in the gut.

It

> should also be noted that I have ulcerative colitis

> which is

> supposedly an immune dsyfunction.

*** My husband also has ulcerative colitis, and his

mom-and she just moved on to Crohn's disease. I have

a history of CFS & PANDAS as a kid (self-diagnosed-not

official).

> **My question is this: My son suffers frequently

> from cancker sores

> in his mouth.

*** Just before the canker sores break out, is there a

white speck on the membranes before the ulcer comes?

Next time, inspect his mouth and gums for any sign of

whiteness (thrush). When I go through periods when I

have canker sores, they are related to yeast - thrush

that turns into ulcers. Swishing Nystatin and putting

some probiotics directly on the site.

When they start he has a low grade

> fever and stops

> eating. He also starts his echolalic tendencies

> which are not so bad

> when one of these things is not in his mouth.

**** Interesting thing that you mention echolalia. My

son was purely echolalic in the beginning. The first

med I obtained for him (after starting the GFCF diet

and probiotics about 7 months before), was 10 days of

Diflucan. Within 3 days of the medicine, all

echolalia was dropped and he moved to spontaneous

speech (2-3 word sentences after always being

echolalic). There's about 20 other things he did for

the first time w/in that first week - many associated

with sensory issues - food, sound, motion, etc - but

the dropping echolalia was the most shocking and

dramatic. With your observation, I would strongly

suggest that perhaps this is fungal rather than viral.

HOWEVER, a viral flare will also make you far more

susceptible to a fungal overgrowth.

The

> low grade fever is

> my warning--he doesn't readily say that his mouth is

> hurting. Our

> peditrician (who just retired) gave me a

> prescription for acycolvir.

> I think it helps but we only use it when I get the

> warning signs.

**** The problem with short bursts of antivirals is

that you don't really help the immune system as much

by providing long-term suppression, and there's the

possibility that virus could build a resistance to it

just like antibiotics (and even antifungals).

> What tests are out there that we can get our " new "

> peditrician to run

> to prove that the herpes virus is responsible for

> this????

There's a list of lab workup on www.nids.net under the

For Doctors tab(I think). The viral titers would be

helpful, but if you've followed this list for long,

you may already know that often the lab results are

not dramatic enough to get enough treatment, but

combined with the research listed, the papers, and an

open-minded pediatrician, you may be able to get help.

The most important labs I'd suggest to you are

Immunoglobulin IgA, IgE, IgM, and IgG w/IgG

subclasses, HSV-1 & 2 viral titers, HHV6 titers (will

likely show up negative-but after antivirals will

often shoot up-can hide undected by the immune

system), CMV (cytomeg..) titers, EBV (mono) titers.

You'd also want the CBC w/differential and

eosiniphils. Any of the other labs you could get done

would be helpful, but with chronic fungal infections,

you're bound to see some abnormalities in the IgG

subclasses, and low IgM and IgG can point to the

possibility of some chronic infections.

I truly

> feel that it is this virus in his system that causes

> so many of his

> autistic like symptoms.

**** It is also likely that the virus is not the

specific cause - they don't all have the same viruses

- it's more immune dysfunction (still possibly caused

by the virus combined w/genetic susceptibility) and

it's inability to properly suppress infections,

allowing herpes virus known to like certain parts of

the central nervous system to cause inflammation and

irritation and keep the immune system chronically

active, creating oxidative stress, metabolic problems,

and so on.

I have never had any blood

> work done on him

> but would like to get some done. Also, does Valtrex

> work better?

*** Yes, and so does Famvir.

The

> acycolvir has to be give every 4 hours around the

> clock which I do not

> do because I don't want to wake him up at night.

**** Valtrex is 3 times a day and Famvir is twice a

day. Dr G usually starts w/Valtrex for a year, and

will often switch to Famvir if there is an intolerance

or insufficient improvement in labs. I do get the

impression most try both. Those are the only two

antivirals he uses. Valtrex is metabolized into

Acyclovir - I guess the problem w/compliance having to

dose that way is why he doesn't use it. Anything

other than those listed here are not used because of

the potential dangers.

He

> is 5 years

> old...

****My oldest son will turn 5 in August. If you want

to compare notes, contact me offlist. I'm in

Birmingham AL.

Hope that helps some.

>> Thank you, Tammy

_________________________________

[Guest guest]

Hi. I am working on getting my daughter the blood work for a eval, so this

is not based on any knowledge. Maybe someone more knowledgeable will check

this. I have a big problem w/ canker sores and some other auto-immune things.

What works amazingly well for me is lysine. If I take it every day I get very

few. If I forget to take it and get some, starting the lysine clears them up

really fast. I used to get enough so that eating ( & sometimes talking) was very

painful. I take 500 mg. at bedtime. I don't know what would be appropriate for

a little guy but your ped could probably help w/ that. Good luck - even when

nothing else happens, canker sores are a DRAG.

(mom to , 11, DS & ASD)

[Guest guest]

Canker sores seem to be a problem for me too! They come up even when the

arthritis part seemed to be in remission. I haven't found anything that helped

but I'm going to start taking folic acid as others have recommended. I

really hope you start feeling better soon.

Margie

[Guest guest]

hi joey, i get those canker sores in the mouth from time to time. usually only

one or two at most, can feel them coming on before they appear, and they seem to

last for a few days then just go away. can be very painful if in the wrong spot

tho. when i first experienced them i tried everything to deal with them but

there seemed to be no effective magic potion so now i just endure them for the

time they're with me and its all over soon enough.

best wishes. james

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[Guest guest]

:

Yeap. Starts off like a little dot .. a day or two later a crater

the size of a tooth. Hurts. Hard to eat / speak.

Sometimes I'll rinse w/ salt & water. Helps a little. Goes away

in 4 days or so.

Are you on any medication?

Thanks.

joey

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[Guest guest]

Thanks Margie

Gosia1122@... wrote:

Canker sores seem to be a problem for me too!

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[Guest guest]

Your dentist can give you a mouth wash prescription that will help. Doctors

did little for me with this problem. But when I discussed it with my

dentist he said to let him know the next time it happens and he could give

me a helpful prescription that would at least help keep the sore from

becoming infected.

Ray Neal

[Guest guest]

Ray:

Thanks. I have a friend who is a very good dentist. I'll ask him

about it. In fact, my family is seeing him tomorrow.

Thanks.