- got that T shirt on too!

[Guest guest]

Dear

Thank you for sharing how you feel. It really helps other 'strugglers' like me

who know just how you feel.

Every day we share even more aspects of this heinous disease - it is devastating

on so many levels. There needs to be a specific handbook written that details

the global impact of this unspeakably cruel disease on the entire family. We all

suffer. It is a prolonged agony.

We suffer even before diagnosis! We arrive at the point of diagnosis after

months of uncertainty and pain. Then we go through the agonies of living with

the beast - all the twists and turns, the side effects, the decline, and then,

post death we trawl through the extreme mental torture of our harrowing memories

and our bitter anger.

It's a holocaust of unfathomable suffering. It goes on and on and on ....

LBD stalks its victims like a demon and then derides our pathetic attempts to

attack it. It mockingly ridicules and humiliates us - continually deceiving and

tricking us into false hope. It ravages our loved ones and consumes them whilst

inflicting savage wounds on us. We are all maimed.

Three years ago today in a Prozac induced, stupefied muddle my mum capitulated

to the impending menace of a then undiagnosed evil that was slowly inhabiting my

dad.

She knew something was wrong but the ferocity of its intent literally frightened

her to her death. I know the bastard that convinced my mother to leave ... and

all day today I shall curse it!

BUT as we learn together we are exposing this evil to the light. We're onto

it!!! Slowly but surely we are hunting it down and fighting back.

- I know how you're feeling. It is so unfair and cruel. But it hasn't

stolen everything - when I consider the wonderful people I have met here, the

worldwide network of support we share and the colossal outpouring of love and

understanding generated here I KNOW that our loved ones were part of something

completely positive and life affirming. Your Grandpa and my dad are part of the

living testimony to 'the fight' here - we will not be extinguished or defeated!

Their lives are honoured in our service to others here.

I'm embracing you in my thoughts and prayers today.

Sally x