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Re: Fears

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Carol,

I can relate to what you said - as much from my observations of my

sister than from myself. I have always tried to maintain a brave

front even when I was terrified.

My sister was terrified of burglars, even though she had a second-

story window. Before going to bed she always looked under the bed

and in the closet for burglars. I jokingly asked her what she would

do if she found one. I realize now that I was cruel, but I didn't

understand that then. Sometimes she woke up with night terrors. She

is still terrified of lots of things - high places, cars, etc.

I used to be afraid of people behind me, but now I am only a little

nervous. Sometimes while getting a haircut it was all I could do to

keep from dissolving in panic. I am 6 foot 4 inches tall so my

height makes lots of people afraid of me. I feel so ashamed of that,

if I am walking down the sidewalk and am going to pass somebody from

behind I cross to the other side of the road so I won't scare them.

Another checkmark on my list of reasons for wishing I were disabled -

on crutches I wouldn't be faster than most people. I would be less

frightening, less ashamed to be me.

Another thing I am afraid of is talking on the telephone. I deal

with it but I hate it. My wife wants me to make calls for her. She

says she doesn't feel comfortable expressing herself in French. To

me that is nonsense, her French is as good as mine and I can say what

I want. The difficulty is knowing what I want to say, and trying to

speak for somebody else is doubly difficult. I have been refusing

this controlling behavior as much as possible, but it causes a lot of

conflict.

When I was into amateur radio I preferred Morse code to voice because

it gave me time to compose my thoughts. The Internet is an ideal

means of communication for me. Written English is my first language,

spoken English is my second. I learned French the same way.

- Dan

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> Another thing I am afraid of is talking on the telephone. I deal

> with it but I hate it. ...>

> When I was into amateur radio I preferred Morse code to voice

because

> it gave me time to compose my thoughts. The Internet is an ideal

> means of communication for me. Written English is my first

language,

> spoken English is my second. I learned French the same way.

>

> - Dan

Dan, I'm glad to know I'm not the only one! What (if anything) it has

to do with being a KO I don't know, but I too really dislike using

the

phone. I vastly prefer IM'ing and e-mailing. I tell people, " I don't

do phone. " In my line of work, I do have to do interviews by

telephone fairly often, and I always dread them (although, oddly,

once

I get into it they're invariably fine.) To tell you the truth, I

prefer internet communication to most face-to-face conversation,

except with my spouse and kids and others with whom I feel a deep

level of trust and intimacy. I know people, as I'm sure you do, who

love chatting on the phone, and I'm just stymied by them. What do

they

SAY? I often feel I literally don't know what I think about something

until I write about it. Do I think with my fingers?? :-)

Beth

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> She says she has a terrible fear whenever anyone stands behind her,

> like in waiting lines. She says it's so strong she literally has

> to stand sideways so she can see who's behind her. Also, if she's

> walking down the sidewalk and someone approaches and passes her

> from behind, it's like a knife going through her until they've

> passed her. She's fine with people approaching from the front.

>

I used to do the same thing when standing in line! I would sometimes

be so much to the side that it wasn't uncommon for me to lose my

place, especially when I was in school.

I was always really jumpy, I'm still a little bit, but I used to be

so jumpy that it was something I'd get teased about. I was scared of

everything, all the time, and didn't even know it until one day I

wasn't. :)

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That's a good question, really. My childhood was so surreal that I

have no idea what's 'normal' and what's not. I know now that it's not

normal for an 8 year-old girl to have a stomach ulcer from stress,

but I only figured that out from the reactions of friends much later

in life. I know that the intensity and frequency of my nightmares are

not normal, but again, it's only from hearing about the experiences

of others (you mean, not everyone dreams of tidal waves on a nightly

basis?).

The rest of it I'm not sure about. I get startled easily, but don't a

lot of people? Kids have nightmares, sure. Do normal kids

hallicinate? Aren't most people wary around strangers?

I have no idea. I just generally assume that if it interfers with

normal life, it's significant enough to be called 'troublesome'.

> > She says she has a terrible fear whenever anyone stands behind

> > her, like in waiting lines. She says it's so strong she

> > literally has to stand sideways so she can see who's behind her.

> > Also, if she's walking down the sidewalk and someone approaches

> > and passes her from behind, it's like a knife going through her

> > until they've passed her. She's fine with people approaching

from

> > the front.

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  • 3 years later...

I read in a book that psychologists have theorized that we are only born

with two fears: the fear of falling and the fear of loud noises. that means

that every other fear was learned, and even more importantly than that, that

means that every other fear can be unlearned. Which is hard, but not

impossible. May we unlearn some fears through all of our experiences.

In His Strength,

, CA

Please visit my websites:

www.freewebs.com/faithfights

http://Writing.Com/authors/faithfights

Reply-To: Stillsdisease

To: Stillsdisease

Subject: Re: OT need some good thoughts and/or prayers

Date: Thu, 25 Jan 2007 20:07:33 -0000

I must not fear. Fear is the mind-killer. Fear is the little-death that

brings total obliteration. I will face my fear. I will permit it to

pass over me and through me. And when it has gone past I will turn the

inner eye to see its path. Where the fear has gone there will be

nothing. Only I will remain.

ny Against Fear

Dune

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute

for medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical

or professional medical services. You should consult your physician on

specific medical questions, particularly in matters requiring diagnosis or

medical attention. The International Still's Disease Foundation makes no

representations or warranties with respect to any treatment, action,

application, medication or preparation by any person following the

information offered or provided within this support form.

ion by any person following the information offered or provided within this

support form.

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AMEN KATIE!

Thank you!

I shared this with my oldest daughter who has been struggling with many fears

lately!

God Bless!

Larry B

Re: OT need some good thoughts and/or prayers

Date: Thu, 25 Jan 2007 20:07:33 -0000

I must not fear. Fear is the mind-killer. Fear is the little-death that

brings total obliteration. I will face my fear. I will permit it to

pass over me and through me. And when it has gone past I will turn the

inner eye to see its path. Where the fear has gone there will be

nothing. Only I will remain.

ny Against Fear

Dune

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute

for medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical

or professional medical services. You should consult your physician on

specific medical questions, particularly in matters requiring diagnosis or

medical attention. The International Still's Disease Foundation makes no

representations or warranties with respect to any treatment, action,

application, medication or preparation by any person following the

information offered or provided within this support form.

ion by any person following the information offered or provided within this

support form.

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Hola Kate: Como estás tanto tiempo? Como andas tus cosas y como estas llevando

tu enfermedad.- Me encuentro a tu disposición para contarte lo que quieras sobre

mi experiencia sobre la enfermedad, la cual por el momento NO ME CEDE.-

Bueno espero que vos estes bien.-

Un fuerte abrazo

o L.ni

Arequito

Kate Vasquez escribió:

I read in a book that psychologists have theorized that we are only

born

with two fears: the fear of falling and the fear of loud noises. that means

that every other fear was learned, and even more importantly than that, that

means that every other fear can be unlearned. Which is hard, but not

impossible. May we unlearn some fears through all of our experiences.

In His Strength,

, CA

Please visit my websites:

www.freewebs.com/faithfights

http://Writing.Com/authors/faithfights

Reply-To: Stillsdisease

To: Stillsdisease

Subject: Re: OT need some good thoughts and/or prayers

Date: Thu, 25 Jan 2007 20:07:33 -0000

I must not fear. Fear is the mind-killer. Fear is the little-death that

brings total obliteration. I will face my fear. I will permit it to

pass over me and through me. And when it has gone past I will turn the

inner eye to see its path. Where the fear has gone there will be

nothing. Only I will remain.

ny Against Fear

Dune

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute

for medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical

or professional medical services. You should consult your physician on

specific medical questions, particularly in matters requiring diagnosis or

medical attention. The International Still's Disease Foundation makes no

representations or warranties with respect to any treatment, action,

application, medication or preparation by any person following the

information offered or provided within this support form.

ion by any person following the information offered or provided within this

support form.

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  • 3 weeks later...

Hola : Vos sabes que estoy enviando emails y no veo que lleguen a vos a

traves del grupo.- Yo te envie dos o tras emails y me parece que no los estas

recibiendo? puede ser.- Quiero saber si recibis estos mensajes o si hay algun

problema.-

Por favor si podes contestame simplemente para saber si los estas recibien

Un abrazo y un beso para Fátima

o ni

Argentina

fatima ximena garcia salgado escribió:

Puff, es padre saber que uno no esta solo con este mal, gracias por

contestar.

me podrias dar el e-mail de claudio y de otros pacientes de still en

latinoamerica, si los tienes.

Por el ingles, yo leo bien, pero se me dificulta escribir, ademas de que hay

muchas palabras tecnicas y medicas que no comprendo del todo, tambien no es

tan facil con las personas de USA ya que existen grandes diferencias entre

nuestros paises.

espero a que regreses de tus vacaciones (disfrutalas), y nos comunicamos.

suerte y nuevamente gracias.

oscar garcia sevilla

>From: o ni

>To: fatima ximena garcia salgado

>Subject: Re: RE: fears

>Date: Tue, 30 Jan 2007 19:13:22 -0300 (ART)

>

>Hola :

>

> Bueno en primer lugar muchas gracias por comunicarte conmigo.- Es

>importante estar en contacto entre nosotros los de habla hispana como es el

>caso de Claudio s de Chile, vos y Yo de Argentina.-

>

> Lamento muchisimo lo de Fátima Ximena, debido a que es muy pequeña con

>esta enfermedad, pero bueno esperemos que remita y que lo de Ella No sea

>crónica.- Tengamos Fe en que se superará y ademas en nuevos medicamentos

>que aparezcan a futuro.-

>

> Esta enfermedad aparentemente es diferente en cada uno de nosotros,

>porque en mi caso yo estuve internado 15 días sin diagnostico y luego

>estuve casi 6 años muy bien sin ninguna medicación y ahora hace doas años

>estoy con 16 mgs diarios de prednisona y 20 mg semanales de metotrexato y

>bueno con eso ando mas o menos bien, pero no se puede estar en forma

>permanente con tanto corticoide.-

>

> De todas maneras yo me estoy yendo esta noche una semana de

>vacaciones.-Cuando vuelva seguiremos en contacto y estoy a tu disposición

>para todo lo que te pueda aportar y contar.- Yo le he preguntado ya algunas

>cosas a Claudio s y el amablemente me comento lo que hablan en Ingles

>los miembros del Grupo, ya que yo no entiendo Ingles, no se si vos manejas

>el Idioma Ingles?.-

>

> Bueno seguiremos en permanente contacto y espero que Fátima vaya

>mejorando.-

>

> Un fuerte abrazo y tene Fe en que todo mejorará.-

>

> o L.ni

> Arequito

> Rep.Argentina.-

>

>fatima ximena garcia salgado

>escribió:

>

>Hola o,

>

>Soy (Mexico), soy papa de Fatima Ximena quien tiene 5 años y

>padece STILL desde

>hace casi dos años.

>

>He sabido de pocas personas en latinoamerica con STILL, me gustaria

>compartir datos sobre la misma enfermedad.

>

>

>Mi hija inicio en mayo del 2005 con terribles fiebres de 40 grados

>centigrados y rash intermitente

>por todo el cuerpo, la hospitalizamos por 2.5 meses y padecio de

>inflamacion

>general con pleuritis y pericarditis, despues de casi 2 meses nos

>informaron

>sobre esta rara enfermedad, a la fecha ha tenido 3 recaidas mas leves pero

>muy dificiles para una niña de 5 años.

>

>su tratamiento consiste en prednisona cortisona, naproxeno, plaquenil y

>despues de tratar el ledertrexate e inmuran sin exito, esta tomando

>cellcept

>un medicamento nuevo muy caro que al parecer comienza a controlar el

>problema, si tanto efecto secundario.

>

>espero comunicacion y saber sobre tu expriencia y conocimientos sobre esta

>terrible enfermedad STILL.

>

>Hasta pronto.

>

>oscar garcia

>

>

>

>

>

>

>

>

> >From: o ni

> >Reply-To: Stillsdisease

> >To: Stillsdisease

> >Subject: Re: RE: fears

> >Date: Mon, 29 Jan 2007 17:02:21 -0300 (ART)

> >

> >Hola Kate: Como estás tanto tiempo? Como andas tus cosas y como estas

> >llevando tu enfermedad.- Me encuentro a tu disposición para contarte lo

>que

> >quieras sobre mi experiencia sobre la enfermedad, la cual por el momento

>NO

> >ME CEDE.-

> >

> > Bueno espero que vos estes bien.-

> >

> > Un fuerte abrazo

> >

> > o L.ni

> > Arequito

> >

> >Kate Vasquez escribió:

> > I read in a book that psychologists have theorized that we are

> >only born

> >with two fears: the fear of falling and the fear of loud noises. that

>means

> >that every other fear was learned, and even more importantly than that,

> >that

> >means that every other fear can be unlearned. Which is hard, but not

> >impossible. May we unlearn some fears through all of our experiences.

> >

> >In His Strength,

> >

> >, CA

> >

> >Please visit my websites:

> >www.freewebs.com/faithfights

> >http://Writing.Com/authors/faithfights

> >

> >From: " claudio_rosas_c "

> >Reply-To: Stillsdisease

> >To: Stillsdisease

> >Subject: Re: OT need some good thoughts and/or prayers

> >Date: Thu, 25 Jan 2007 20:07:33 -0000

> >

> >I must not fear. Fear is the mind-killer. Fear is the little-death that

> >brings total obliteration. I will face my fear. I will permit it to

> >pass over me and through me. And when it has gone past I will turn the

> >inner eye to see its path. Where the fear has gone there will be

> >nothing. Only I will remain.

> >ny Against Fear

> >Dune

> >

> >Visit the Still's Disease Message Board

> >http://disc.server.com/Indices/148599.html

> >

> >The materials and information contained in this message are not intended

>to

> >replace the services of a trained health professional or to be a

>substitute

> >for medical advice of physicians and/or other health care professionals.

> >The

> >International Still's Disease Foundation is not engaged in rendering

> >medical

> >or professional medical services. You should consult your physician on

> >specific medical questions, particularly in matters requiring diagnosis

>or

> >medical attention. The International Still's Disease Foundation makes no

> >representations or warranties with respect to any treatment, action,

> >application, medication or preparation by any person following the

> >information offered or provided within this support form.

> >

> >ion by any person following the information offered or provided within

>this

> >support form.

> >

> >

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