Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 Lina We had the same kind of " invisible " seizures for 2 years. Throw in a few visible seizures and it was horrible. We did surgery. Feel free to send me a message or contact me on Facebook for details. Sent from my iPhone > Dear family, > > Our Neurologist asked us yesterday to ask for second opinion regarding surgery, according to z last EEG there are still un visual seizures, although there are no visual ones for 4 months now. So it's our decision to still using meds as long as they seem to help so far or to do surgery and stop there seizures which is something nobody even z Surgent can guarantee!!! We are currently don't know what to do or decide!! Any suggestions. > > Best Regards, > Lina > > > > > TODAY(Beta) • Powered by Yahoo! > Secrets behind 'NCIS' star's goth look > ey Perrette dishes on the evolution of her character's trademark whimsical style. > Privacy Policy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 How old was he when he made z surgery? And was it helpful? But z doctor said that z surgery basically removing z damaged part of the brain which is very scary!! Was it z same surgery that ur son when through? Best Regards, Lina Kurdi > Lina > > We had the same kind of " invisible " seizures for 2 years. Throw in a few visible seizures and it was horrible. We did surgery. Feel free to send me a message or contact me on Facebook for details. > > > > Sent from my iPhone > > > > > Dear family, > > > > Our Neurologist asked us yesterday to ask for second opinion regarding surgery, according to z last EEG there are still un visual seizures, although there are no visual ones for 4 months now. So it's our decision to still using meds as long as they seem to help so far or to do surgery and stop there seizures which is something nobody even z Surgent can guarantee!!! We are currently don't know what to do or decide!! Any suggestions. > > > > Best Regards, > > Lina > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > Secrets behind 'NCIS' star's goth look > > ey Perrette dishes on the evolution of her character's trademark whimsical style. > > Privacy Policy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 Not sure who you are seeing.  We tried to evaluate our son (3xs) for surgery (From Boston to Texas) evaluation.  Everytime showed multifocal seizures.  Surgery is not helpful unless most or all seizures come from one area of brain.  Hopefully if they do remove that area it will not effect function.  In any case our son was not a surgical candidate, we therefore tried VNS on our son when he was 4 years old at Boston Children's.  It has been a miracle for us.  Our son now has partial seizures that only last 10-30 seconds a day vs gand mal seizures that he had every other day for 20+ minutes.  VNS is very easy to do by a skilled neurosurgeon.  You can always consider surgery even after getting a VNS implanted.  Food for thought.  Dr. Madsen was our surgeon in Boston and he does resective surgery to. Good luck, > > > Dear family, > > > > Our Neurologist asked us yesterday to ask for second opinion regarding surgery, according to z last EEG there are still un visual seizures, although there are no visual ones for 4 months now. So it's our decision to still using meds as long as they seem to help so far or to do surgery and stop there seizures which is something nobody even z Surgent can guarantee!!! We are currently don't know what to do or decide!! Any suggestions. > > > > Best Regards, > > Lina > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > Secrets behind 'NCIS' star's goth look > > ey Perrette dishes on the evolution of her character's trademark whimsical style. > > Privacy Policy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 My daughter was 14. They removed the entire left hemisphere. 6.5 months ago. VERY successful - BUT I had one of the top neurosurgeons in the country. She was back at school full time in 5 weeks and made honor roll. Sent from my iPhone > How old was he when he made z surgery? And was it helpful? But z doctor said that z surgery basically removing z damaged part of the brain which is very scary!! Was it z same surgery that ur son when through? > > Best Regards, > Lina Kurdi > > > > > Lina > > > > We had the same kind of " invisible " seizures for 2 years. Throw in a few visible seizures and it was horrible. We did surgery. Feel free to send me a message or contact me on Facebook for details. > > > > > > > > Sent from my iPhone > > > > > > > > > Dear family, > > > > > > Our Neurologist asked us yesterday to ask for second opinion regarding surgery, according to z last EEG there are still un visual seizures, although there are no visual ones for 4 months now. So it's our decision to still using meds as long as they seem to help so far or to do surgery and stop there seizures which is something nobody even z Surgent can guarantee!!! We are currently don't know what to do or decide!! Any suggestions. > > > > > > Best Regards, > > > Lina > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > Secrets behind 'NCIS' star's goth look > > > ey Perrette dishes on the evolution of her character's trademark whimsical style. > > > Privacy Policy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 VNS wasn't an option for us because the issue wasn't outright seizures but seizure activity. Dr Bingaman at Cleveland Clinic was our surgeon. Sent from my iPhone > Not sure who you are seeing. We tried to evaluate our son (3xs) for surgery (From Boston to Texas) evaluation. Everytime showed multifocal seizures. Surgery is not helpful unless most or all seizures come from one area of brain. Hopefully if they do remove that area it will not effect function. In any case our son was not a surgical candidate, we therefore tried VNS on our son when he was 4 years old at Boston Children's. It has been a miracle for us. Our son now has partial seizures that only last 10-30 seconds a day vs gand mal seizures that he had every other day for 20+ minutes. VNS is very easy to do by a skilled neurosurgeon. You can always consider surgery even after getting a VNS implanted. Food for thought. Dr. Madsen was our surgeon in Boston and he does resective surgery to. > Good luck, > > > > > > > > > Dear family, > > > > > > > > Our Neurologist asked us yesterday to ask for second opinion regarding surgery, according to z last EEG there are still un visual seizures, although there are no visual ones for 4 months now. So it's our decision to still using meds as long as they seem to help so far or to do surgery and stop there seizures which is something nobody even z Surgent can guarantee!!! We are currently don't know what to do or decide!! Any suggestions. > > > > > > > > Best Regards, > > > > Lina > > > > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > > Secrets behind 'NCIS' star's goth look > > > > ey Perrette dishes on the evolution of her character's trademark whimsical style. > > > > Privacy Policy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 I always wanted to ask this but I was si afraid from z answer, does this kind of surgery affect z mental functions? Can a person live with one hemisphere?? Sorry for z question but I have to ask this! Best Regards, Lina > My daughter was 14. They removed the entire left hemisphere. 6.5 months ago. VERY successful - BUT I had one of the top neurosurgeons in the country. She was back at school full time in 5 weeks and made honor roll. > > > > Sent from my iPhone > > > > > How old was he when he made z surgery? And was it helpful? But z doctor said that z surgery basically removing z damaged part of the brain which is very scary!! Was it z same surgery that ur son when through? > > > > Best Regards, > > Lina Kurdi > > > > On Feb 10, 2012, at 3:48 AM, Holman wrote: > > > > > Lina > > > > > > We had the same kind of " invisible " seizures for 2 years. Throw in a few visible seizures and it was horrible. We did surgery. Feel free to send me a message or contact me on Facebook for details. > > > > > > > > > > > > Sent from my iPhone > > > > > > > > > > > > > Dear family, > > > > > > > > Our Neurologist asked us yesterday to ask for second opinion regarding surgery, according to z last EEG there are still un visual seizures, although there are no visual ones for 4 months now. So it's our decision to still using meds as long as they seem to help so far or to do surgery and stop there seizures which is something nobody even z Surgent can guarantee!!! We are currently don't know what to do or decide!! Any suggestions. > > > > > > > > Best Regards, > > > > Lina > > > > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > > Secrets behind 'NCIS' star's goth look > > > > ey Perrette dishes on the evolution of her character's trademark whimsical style. > > > > Privacy Policy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 Lina Yes. She does better mentally than before the surgery. It was worse right away, but after about 2 months she improved and is better than before. Honor roll in high school means that she got very good grades in all of her class. Sent from my iPhone > I always wanted to ask this but I was si afraid from z answer, does this kind of surgery affect z mental functions? Can a person live with one hemisphere?? Sorry for z question but I have to ask this! > > Best Regards, > Lina > > > > > My daughter was 14. They removed the entire left hemisphere. 6.5 months ago. VERY successful - BUT I had one of the top neurosurgeons in the country. She was back at school full time in 5 weeks and made honor roll. > > > > > > > > Sent from my iPhone > > > > > > > > > How old was he when he made z surgery? And was it helpful? But z doctor said that z surgery basically removing z damaged part of the brain which is very scary!! Was it z same surgery that ur son when through? > > > > > > Best Regards, > > > Lina Kurdi > > > > > > On Feb 10, 2012, at 3:48 AM, Holman wrote: > > > > > > > Lina > > > > > > > > We had the same kind of " invisible " seizures for 2 years. Throw in a few visible seizures and it was horrible. We did surgery. Feel free to send me a message or contact me on Facebook for details. > > > > > > > > > > > > > > > > Sent from my iPhone > > > > > > > > > > > > > > > > > Dear family, > > > > > > > > > > Our Neurologist asked us yesterday to ask for second opinion regarding surgery, according to z last EEG there are still un visual seizures, although there are no visual ones for 4 months now. So it's our decision to still using meds as long as they seem to help so far or to do surgery and stop there seizures which is something nobody even z Surgent can guarantee!!! We are currently don't know what to do or decide!! Any suggestions. > > > > > > > > > > Best Regards, > > > > > Lina > > > > > > > > > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > > > Secrets behind 'NCIS' star's goth look > > > > > ey Perrette dishes on the evolution of her character's trademark whimsical style. > > > > > Privacy Policy > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2012 Report Share Posted February 10, 2012 So pleased to hear this, thank u . Regards, Lina > Lina > > Yes. She does better mentally than before the surgery. It was worse right away, but after about 2 months she improved and is better than before. Honor roll in high school means that she got very good grades in all of her class. > > Sent from my iPhone > > > > > I always wanted to ask this but I was si afraid from z answer, does this kind of surgery affect z mental functions? Can a person live with one hemisphere?? Sorry for z question but I have to ask this! > > > > Best Regards, > > Lina > > > > On Feb 10, 2012, at 4:03 AM, Holman wrote: > > > > > My daughter was 14. They removed the entire left hemisphere. 6.5 months ago. VERY successful - BUT I had one of the top neurosurgeons in the country. She was back at school full time in 5 weeks and made honor roll. > > > > > > > > > > > > Sent from my iPhone > > > > > > > > > > > > > How old was he when he made z surgery? And was it helpful? But z doctor said that z surgery basically removing z damaged part of the brain which is very scary!! Was it z same surgery that ur son when through? > > > > > > > > Best Regards, > > > > Lina Kurdi > > > > > > > > On Feb 10, 2012, at 3:48 AM, Holman wrote: > > > > > > > > > Lina > > > > > > > > > > We had the same kind of " invisible " seizures for 2 years. Throw in a few visible seizures and it was horrible. We did surgery. Feel free to send me a message or contact me on Facebook for details. > > > > > > > > > > > > > > > > > > > > Sent from my iPhone > > > > > > > > > > > > > > > > > > > > > Dear family, > > > > > > > > > > > > Our Neurologist asked us yesterday to ask for second opinion regarding surgery, according to z last EEG there are still un visual seizures, although there are no visual ones for 4 months now. So it's our decision to still using meds as long as they seem to help so far or to do surgery and stop there seizures which is something nobody even z Surgent can guarantee!!! We are currently don't know what to do or decide!! Any suggestions. > > > > > > > > > > > > Best Regards, > > > > > > Lina > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > > > > Secrets behind 'NCIS' star's goth look > > > > > > ey Perrette dishes on the evolution of her character's trademark whimsical style. > > > > > > Privacy Policy > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2012 Report Share Posted February 10, 2012 Lina Please understand that it was no easy or simple thing for her to heal. But it was worth it for us Sent from my iPhone > So pleased to hear this, thank u . > > Regards, > Lina > > > > > Lina > > > > Yes. She does better mentally than before the surgery. It was worse right away, but after about 2 months she improved and is better than before. Honor roll in high school means that she got very good grades in all of her class. > > > > Sent from my iPhone > > > > > > > > > I always wanted to ask this but I was si afraid from z answer, does this kind of surgery affect z mental functions? Can a person live with one hemisphere?? Sorry for z question but I have to ask this! > > > > > > Best Regards, > > > Lina > > > > > > On Feb 10, 2012, at 4:03 AM, Holman wrote: > > > > > > > My daughter was 14. They removed the entire left hemisphere. 6.5 months ago. VERY successful - BUT I had one of the top neurosurgeons in the country. She was back at school full time in 5 weeks and made honor roll. > > > > > > > > > > > > > > > > Sent from my iPhone > > > > > > > > > > > > > > > > > How old was he when he made z surgery? And was it helpful? But z doctor said that z surgery basically removing z damaged part of the brain which is very scary!! Was it z same surgery that ur son when through? > > > > > > > > > > Best Regards, > > > > > Lina Kurdi > > > > > > > > > > On Feb 10, 2012, at 3:48 AM, Holman wrote: > > > > > > > > > > > Lina > > > > > > > > > > > > We had the same kind of " invisible " seizures for 2 years. Throw in a few visible seizures and it was horrible. We did surgery. Feel free to send me a message or contact me on Facebook for details. > > > > > > > > > > > > > > > > > > > > > > > > Sent from my iPhone > > > > > > > > > > > > On Feb 9, 2012, at 7:42 PM, Lina Kurdi wrote: > > > > > > > > > > > > > Dear family, > > > > > > > > > > > > > > Our Neurologist asked us yesterday to ask for second opinion regarding surgery, according to z last EEG there are still un visual seizures, although there are no visual ones for 4 months now. So it's our decision to still using meds as long as they seem to help so far or to do surgery and stop there seizures which is something nobody even z Surgent can guarantee!!! We are currently don't know what to do or decide!! Any suggestions. > > > > > > > > > > > > > > Best Regards, > > > > > > > Lina > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > > > > > Secrets behind 'NCIS' star's goth look > > > > > > > ey Perrette dishes on the evolution of her character's trademark whimsical style. > > > > > > > Privacy Policy > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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