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Kyra,

Hi and welcome

I am Heidi 34 from Sydney Australia..

I live with 64 and our princess and diva, our cat Puddy...

I suffer from fibromyalgia, chronic fatigue, rheumatoid and osteoarthritis, 25%

loss of back and 15% loss of legs as well as some other illnesses..

I look forward to getting to know you..

I am a newbie to the list too

Hugs and Healing

Heidi

New member introduction

Hello to all. I just wanted to take a minute to introduce myself, and

express how much I appreciate groups like this. My family has a long

history of rheumatoid arthritis with the associated co-illnesses, but

in 1988 I was bitten by a tick that had Lyme's.

Since that time, I have been diagnosed with just about every sub-

illness that Lyme's can cause, but without tying it to Lyme's.

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Guest guest

-Welcome to the Group Kyra!

Sorry that you had to have illness to bring you here but sometimes in

the midst of illness, there is a " bigger picture " involved in the net

we weave in this group. I feel so much closer and open to those in

this group than I do with those around my life in the physical being.

I hope you can gain and grow as I have with this group of wonderful

beings.

God Bless!

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Guest guest

Welcome Kyra! This is a fabulous group, as you have probably already found out.

Good Luck in your expedient recovery!

STL Jane

KC wrote: Hello to all. I

just wanted to take a minute to introduce myself, and

express how much I appreciate groups like this. My family has a long

history of rheumatoid arthritis with the associated co-illnesses, but

in 1988 I was bitten by a tick that had Lyme's.

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  • 1 month later...

Hi Elaine,

From experience I can tell you that Beamray machines work very well against

cancer. I

know of two people personally who had cancer and don't have it anymore after

using the

Beamray. I've also seen it work well for people who had mono, thyroid problems

and many

other ailments. I've seen them for sale on ebay. They now have a dual bulb

plasma tube

unit making it the most powerful plasma tuble unit available. This is the type

of machine

Dr. Rife used. Hope this helps.

Tom

>

> Hello. I'm Elaine. Very interested in Rife. His life, inventions

> the Rife machine and special microscope.

>

> I have read his story, and was already interested in knowing more

> about the man and his accomplishments.

>

> Then I got diagnosed with a late stage cervical cancer. So... now,

> in addition to my natural curiosity about Rife, I am looking to

> supplement my conventional cancer treatment with Rife machine

> therapy.

>

> I'd be very happy to hear from anybody who has anything to say to me

> on this subject. Please write.

>

> Particularly any warnings of who to stay away from. I am still

> shopping for my Rife machine.

>

> One particular seller on e-bay seems to know what he's talking

> about: Hrh. Anybody know him? I can't seem to find his ad now

> on e-bay.

>

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Sorry for the confusion, I was making two separate remarks, but with them back

to back, it

seems they are the same. What I meant was that Dr. Rife used a plasma tube unit.

That

was where I failed to make the difference. As for the dual bulb unit, both bulbs

are

powered by their own power unit. Instead of one bulb putting out 300 watts

power, you

now have 2 bulbs putting out 300 watts power. Its like have two machines in one

in that

aspect. The reason I say no one has a plasma unit more powerful is because I

haven't seen

one yet. The closest thing I've seen to a Beamray is the Perl and even at the

web site for

the Perl, it states the bulb output at only 60 watts. If you know of any others

putting out

that much, please share it with me. thanks,

Tom

>

> Hi Tom,

>

> Dr. Rife didn't use a dual plasma tube and the carrier frequency

> was in the MHz range. I haven't seen any plasma tube units being

> sold, which come very close to the ones Rife used (not that there

> aren't some which may be better).

>

> Due to FCC regulations you can't even use the original RF

> frequencies (in a production unit anyway).

>

> Having 2 plasma tubes doesn't necessarily add to the power. The

> power source would have to be beefed up for this to happen. There

> are some very powerful Rife/Bare units.

>

> Just curious, who is making this claim? (as to the power, and how

> much power?)

>

> Bil

>

> PC 1000

> M-Pulse 5000 magnetic pulse generator

> http://magpulser.com

> Mammoth Lakes, CA

>

>

> mailto:magpulser@...

>

>

> r> Hi Elaine,

>

> r> From experience I can tell you that Beamray machines work very well against

cancer.

I

> r> know of two people personally who had cancer and don't

> r> have it anymore after using the

> r> Beamray. I've also seen it work well for people who had

> r> mono, thyroid problems and many

> r> other ailments. I've seen them for sale on ebay. They now

> r> have a dual bulb plasma tube

> r> unit making it the most powerful plasma tuble unit

> r> available. This is the type of machine

> r> Dr. Rife used. Hope this helps.

>

> r> Tom

>

>

> >>

> >> Hello. I'm Elaine. Very interested in Rife. His life, inventions

> >> the Rife machine and special microscope.

> >>

> >> I have read his story, and was already interested in knowing more

> >> about the man and his accomplishments.

> >>

> >> Then I got diagnosed with a late stage cervical cancer. So... now,

> >> in addition to my natural curiosity about Rife, I am looking to

> >> supplement my conventional cancer treatment with Rife machine

> >> therapy.

> >>

> >> I'd be very happy to hear from anybody who has anything to say to me

> >> on this subject. Please write.

> >>

> >> Particularly any warnings of who to stay away from. I am still

> >> shopping for my Rife machine.

> >>

> >> One particular seller on e-bay seems to know what he's talking

> >> about: Hrh. Anybody know him? I can't seem to find his ad now

> >> on e-bay.

> >>

>

>

>

>

> r>

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I know they have several different models starting at $5000. They are very easy

to use. I

can teach a 10 year old to run mine in just a few minutes.

Tom

-- In Rife , McGuire wrote:

>

> Ho Much do the Beam Ray devices cost and are they cumbersome to use?

>

> Angie

>

> rifebeliever wrote:

>

> Hi Elaine,

>

> From experience I can tell you that Beamray machines work very well against

cancer. I

> know of two people personally who had cancer and don't have it anymore after

using

the

> Beamray. I've also seen it work well for people who had mono, thyroid problems

and

many

> other ailments. I've seen them for sale on ebay. They now have a dual bulb

plasma tube

> unit making it the most powerful plasma tuble unit available. This is the type

of machine

> Dr. Rife used. Hope this helps.

>

> Tom

>

> >

> > Hello. I'm Elaine. Very interested in Rife. His life, inventions

> > the Rife machine and special microscope.

> >

> > I have read his story, and was already interested in knowing more

> > about the man and his accomplishments.

> >

> > Then I got diagnosed with a late stage cervical cancer. So... now,

> > in addition to my natural curiosity about Rife, I am looking to

> > supplement my conventional cancer treatment with Rife machine

> > therapy.

> >

> > I'd be very happy to hear from anybody who has anything to say to me

> > on this subject. Please write.

> >

> > Particularly any warnings of who to stay away from. I am still

> > shopping for my Rife machine.

> >

> > One particular seller on e-bay seems to know what he's talking

> > about: Hrh. Anybody know him? I can't seem to find his ad now

> > on e-bay.

> >

>

>

>

>

>

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with Yahoo!

FareChase.

>

>

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Dave,

Since I own a BR, I emailed the company to see there response as to the BR

putting out

300 watts power from the bulb. Here is their response.

Dear Tom,

In response to the questions you posed about our equipment and the power of our

plasma

tube, please see my response.

As most people making comments about our system have not had it tested in a

clean

room, it makes me wonder how they make the determinations they quote.

Out tubes are custom made to do what we have designed the system to do based on

what

we have obtained for the history of Dr. Rife's work. Our electrodes can well

handle 300

watts power and more if needed, as we have run test units in the 1000 watt range

in

earlier testing. As far as I know our equipment is the only unit to have been

tested in an

independent testing facility to determine the spectral output and the power

output of the

tube. We do take all this data and test reports to the shows that we attend. (

Rife

conference, Cancer Control, ect.) We did this because we needed the data to make

our

submissions to the FDA and to also be allowed in hospitals for our clinical

testing. We have

also had independent testing of a few other units in the market place also to

assertain the

facts of what they are saying about there own equipment. Most manufactures don't

release

this data as they dont know what they are producing and most copy the leaders in

the

industry and assume that there stuff works without really doing any testing. We

have also

done extensive darkfield blood studies on users before/after Beamray use to help

determine effects on the system. We also do liver enzymes/function testing on

some of

the users also just to make sure we get consistant results. We currently have

the only

Severe Lyme clients to get a completely CLEAN test for lyme after using the

Beamray as

suggested.

The Perl unit is a good basic unit that runs consistantly between 20 to 40 watts

output and

should be kept at least 6 feet from the user due to the amount of RF energy

output that

may cause harm to the cells/DNA over the long haul. I have not seen one Perl

that was

running at 60 watts and believe it could only do so if it were perefectly tuned

at each use.

As far as a comparision to the EMEN and being a modified form of it, well this

would

simply be absurd. We were producing units at least ten years before the EMEN

came on the

market and while I have heard some results about the unit, I dont believe that

any of the

units in the Rife community can compare to the Beamray track record for

consistant

results. There is no one who gets/has 100% success with what they

do and that includes the Beamray. I hope this helps answer your questions, if

you like

please feel free to call anytime.

Lynn

I hope this explains more in detail about the bulb wattage. If you would like to

email them

yourself for more info, their email address is beamray@.... Thanks

Tom

> >

> >> Hi Tom,

> >>

> >> Dr. Rife didn't use a dual plasma tube and the carrier frequency

> >> was in the MHz range. I haven't seen any plasma tube units being

> >> sold, which come very close to the ones Rife used (not that there

> >> aren't some which may be better).

> >>

> >> Due to FCC regulations you can't even use the original RF

> >> frequencies (in a production unit anyway).

> >>

> >> Having 2 plasma tubes doesn't necessarily add to the power. The

> >> power source would have to be beefed up for this to happen. There

> >> are some very powerful Rife/Bare units.

> >>

> >> Just curious, who is making this claim? (as to the power, and how

> >> much power?)

> >>

> >> Bil

> >>

> >>

> >

>

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  • 1 year later...

Hi Jo,

 

Welcome.  My step daughter has periventrical nodular heterotopia in one of her

lateral vertricals, it's not unusual for children with PMG to also have PNH. 

She also has an enlarged posterior fossa but no cysts.  In case you weren't

aware Dr. Dobyns at the University of Chicago has done research and

published papers on PNH.  If you haven't already consulted him on your son's

case, it may be worthwhile to contact Dr. Dobyns. 

 

Penny - Step Mom to nela (16 yo, unilateral PMG and PNH causing Lennox

Gastaut Syndrome) 

Subject: New member introduction

To: polymicrogyria

Date: Tuesday, February 17, 2009, 2:13 PM

Hi, my name is Jo, and I am the mom of 5 beautiful children. No one in my family

has polymicrogyria, but we do have a similar condition, and I am hoping to find

information and support from others who share similar experiences.

One of my 4 boys, " Jon "  has bilateral periventricular heterotopia, an arachnoid

cyst of the posterior fossa, " extreme " megalencephaly, a history of seizures and

right sided ptosis (droopy eyelid) during infancy, a mild learning disability,

and mild motor delays. He is 10 years old and doing very well at present. We did

not find out about the brain malformations until Oct 2008. (We also know that my

nephew, who has severe seizures and severe developmental delays, also has the

same pattern of malformation) .

My youngest son, , has more noticeable motor delays than Jon. He has a

chiari 1 malformation, " extreme " megalencephaly, severe congenital ptosis which

will require surgery and possibly several surgeries, hypotonia with greater

weakness on left side, and possibly some parasthesias. We are told that the

chiari is not causing any of his problems. He does not have heterotopia.

I also have a sister, mother, aunt, uncle, and cousin with seizures of

undiagnosed origin.

Genetics and neurology have become interested in the fact that we have familial

periventricular heterotopia, which is extremely rare in males. As a result, we

have been asked to participate in a genetic study to try to determine the

genetic mechanisms involved.

Thanks for allowing me to join. I hope to be able to find support and

information as well as share some of the things I have learned.

Is there anyone else in the group with PNH?

 

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