Guest guest Posted December 7, 2002 Report Share Posted December 7, 2002 Hi ... I went through this last year during the big goodbye. I dreamt almost nightly. Really vivid dreams. Nada in all of them. Very scary stuff. I would tell my husband about them, and would write them down -sometimes sharing them here on this list. It eventually passed. Sleep, I found to be helped by making sleep a big goal. Early to bed, exercise during the day, reading in bed makes me sleepy, as does watching TV. I have a sound machine, need a very dark room, need one of those eggshells pads, need a buckwheat pillow. Oh me oh my sleeping is my high maintenance place. I feel for you if you are having trouble sleeping. warm thoughts...... kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Kathleen, these are good ideas. I have to admit I usually dread going to bed. Old flea stuff, I guess. Seeing it in a new light helps, knowing I am safe now, going to bed is easier. Thanks for all your helpful suggestions. Jen Re: Dreams Hi ... I went through this last year during the big goodbye. I dreamt almost nightly. Really vivid dreams. Nada in all of them. Very scary stuff. I would tell my husband about them, and would write them down -sometimes sharing them here on this list. It eventually passed. Sleep, I found to be helped by making sleep a big goal. Early to bed, exercise during the day, reading in bed makes me sleepy, as does watching TV. I have a sound machine, need a very dark room, need one of those eggshells pads, need a buckwheat pillow. Oh me oh my sleeping is my high maintenance place. I feel for you if you are having trouble sleeping. warm thoughts...... kathleen To get off the list, send a blank message to ModOasis-unsubscribe . Send questions & amp; concerns to ModOasis-owner . & quot;Stop Walking on Eggshells, & quot; a primer for non-BPs can be ordered via 1-888-35-SHELL (). For the table of contents, see http://www.BPDCentral.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 REM Sleep Behavior Disorder is another indicator of LBD. It's when your body does not produce a particular chemical that normally keeps us in a state of physical inactivity during REM sleep. My father has had it for many years, but it's been bad the last 3 years. He has not be diagnosed yet with LBD, but because of the REM disorder, I'm watching closely for the other harbingers... So far, no Parkinson's symptoms, only cognitive and memory decline. He wakes up in the middle of his dreams, to find himself out of bed, fighting off an attacking animal of some sort. He hallucinates only at night and remembers these episodes clearly the next day. He currently takes 1.0 mg of Clonazepam to control the problem. Hope that helps. > > Hello everyone it's been awhile? > > I wanted to ask about dreams? Ronnie is waking up and his dreams > come with him. Like he woke me crying. when i ask him what was wrong > he said ,I had locked him in his room and would not let him out. > Told me he had been knocking and calling to get out? Has this > happened to anyone? Glad to be back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2004 Report Share Posted January 3, 2004 Hello: I know my mom has told me that part of why my dad's confusion is growing at night she believes is attributed mostly to some very vivid dreams he has had. He begins talking aloud and becomes very agitated. Is this what happens to your loved one as well? Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Hi there! I am just catching up with the posts from over the weekend and just read yours. My dad also has the problem you describe with dreams. When he has a bad dream, it carries over into his day. He is unable to differentiate the dream from real life, and it is always something bad. He usually thinks he has been fired from his job and doesn't know how he is going to support his family. He hasn't worked for anyone else since he was in law school over 50 years ago so I have no idea why he would even think he could get " fired " . Sometimes I can explain to him that it was a dream from last night, and he understands that and puts it behind him. Other times he just can't seperate it from reality. Let us know how things are going with Ronnie. Hugs, Piper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Welcome back, and sorry to hear that Ronnie is having disturbing dreams. As others have said, sleep problems are common in LBD. Is he waking up in the middle of the night? If so, Trazodone helped my mother to get a restful sleep, we kept it to a low dose so she wasn't too drowsy in the mornings. I hope otherwise things are going well for you and Ronnie in Indiana. Kind regards, Peggy , Your note reminded me of the following article I read recently and you may be aware of, suggesting that a clinical LBD diagnosis could be made with only REM and dementia symptoms. ------------------------- J Int Neuropsychol Soc. 2002 Nov;8(7):907-14. Related Articles, Links Dementia with Lewy bodies may present as dementia and REM sleep behavior disorder without parkinsonism or hallucinations. Herman TJ, Boeve BF, GE, Silber MH, Lucas JA, Graff-Radford NR, Dickson DW, Parisi JE, sen RC, Ivnik RJ. Department of Psychiatry and Psychology, Mayo Clinic and Foundation, ville, Florida 32224, USA. ferman.tanis@... Rapid eye movement (REM) sleep behavior disorder (RBD) is a sleep disturbance that commonly occurs in Dementia with Lewy bodies (DLB). Retrospective examination of DLB course has shown that RBD and cognitive decline may precede the onset of parkinsonism and visual hallucinations. Therefore, some patients with DLB may initially present with dementia and RBD, but would not meet current formal criteria for probable DLB at that time. The purpose of this study is to determine whether patients with dementia and RBD, who do not have parkinsonism or visual hallucinations, have cognitive profiles that can be distinguished from autopsy-confirmed definite AD, but not from clinically probable DLB. If so, this would support the hypothesis that the presence of RBD and dementia, as the only presenting symptoms, reflects the early manifestation of DLB. Results show that early dementia in probable DLB and dementia with RBD are neuropsychologically indistinguishable. Both groups differ from definite AD of a similar early stage with significantly worse visual perceptual organization, sequencing and letter fluency but significantly better confrontation naming and verbal memory. In addition, follow-up data from a subset of patients with dementia and RBD reveal the subsequent development of parkinsonism or hallucinations 1 to 6 years later. Results indicate that the presentation of dementia and RBD is suggestive of underlying Lewy body disease and not Alzheimer's disease. This provides further evidence in support of including RBD as one of the core diagnostic features of DLB. PMID: 12405541 [PubMed - indexed for MEDLINE] ------------------------------- > > > > Hello everyone it's been awhile? > > > > I wanted to ask about dreams? Ronnie is waking up and his > dreams > > come with him. Like he woke me crying. when i ask him what was > wrong > > he said ,I had locked him in his room and would not let him out. > > Told me he had been knocking and calling to get out? Has this > > happened to anyone? Glad to be back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Back again Ronnie and his dreams? I'm not sure about these dreams? They have scared him so bad he begs me to not let him go back to sleep. and to wake him if he starts moving around much at night. What is I think kind of sweet is his little Boston Terrier,Mugsy. Two nights ago heard ronnie ask me to wake him if he started moving around at night.And yes Mugsy woke him as he was starting into a dream. Ronnie is now forsure fighting his sleep . But by morning feeling better.But by noon he is tired and weak. I've also noticed last night he was choking which woke him. Well just had to say a few words.It helps me.Thank you all for listening. Arletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Arletha, I haven't seen you on in a very long time. Could be because I am hardly ever on myself. I'm sorry about Ronnie and his dreams. Bless you both. Shirley > > Back again Ronnie and his dreams? I'm not sure about these dreams? > They have scared him so bad he begs me to not let him go back to > sleep. and to wake him if he starts moving around much at night. > What is I think kind of sweet is his little Boston Terrier,Mugsy. > Two nights ago heard ronnie ask me to wake him if he started moving > around at night.And yes Mugsy woke him as he was starting into a > dream. Ronnie is now forsure fighting his sleep . But by morning > feeling better.But by noon he is tired and weak. I've also noticed > last night he was choking which woke him. Well just had to say a few > words.It helps me.Thank you all for listening. Arletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Hi Arletha, I'm the one that graduated from Shelbyville. We lived there two years, and prior to that we lived in Columbus for a year. I remember Edinburgh being not far from Shelbyville, and that we use to pass by there on our way from Columbus to Indianapolis. What a sweet story about Mugsy. I've heard Terriers are smart dogs, and she sounds like a gem. I'm sorry to hear that Ronnie's dreams are still so frighening. The fact that he is moving around and fighting so much in his sleep, I wonder if he could possibly have the sleep disorder they call REM Behavior Disorder (RBD). I don't know if it normally comes with the hallucinations, but there are some other people here that have loved ones with RBD that could tell you more about it, and might have some suggestions. I seem to remember from quite some time back that Ronnie was on a lot of different medicines. Have the doctors changed anything lately? Is Ronnie taking anything for the hallucinations or for sleep? With all the nighttime activity, I hope you are able to get some sleep. Take care. Kind regards, Peggy > > Back again Ronnie and his dreams? I'm not sure about these dreams? > They have scared him so bad he begs me to not let him go back to > sleep. and to wake him if he starts moving around much at night. > What is I think kind of sweet is his little Boston Terrier,Mugsy. > Two nights ago heard ronnie ask me to wake him if he started moving > around at night.And yes Mugsy woke him as he was starting into a > dream. Ronnie is now forsure fighting his sleep . But by morning > feeling better.But by noon he is tired and weak. I've also noticed > last night he was choking which woke him. Well just had to say a few > words.It helps me.Thank you all for listening. Arletha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Way to go Mugsy! Maybe next time you go to the doctors you can bring up the sleeping issue. Do you think Ronnie may have sleep apnea? Courage dreams > > Back again Ronnie and his dreams? I'm not sure about these dreams? > They have scared him so bad he begs me to not let him go back to >sleep. and to wake him if he starts moving around much at night. > What is I think kind of sweet is his little Boston Terrier,Mugsy. > Two nights ago heard ronnie ask me to wake him if he started moving >around at night.And yes Mugsy woke him as he was starting into a >dream. Ronnie is now forsure fighting his sleep . But by morning >feeling better.But by noon he is tired and weak. I've also noticed >last night he was choking which woke him. Well just had to say a few >words.It helps me.Thank you all for listening. Arletha > > >Welcome to LBDcaregivers. > > > > Quote Link to comment Share on other sites More sharing options...
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