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Estimada Virginia:

Lei su mensaje y le respondo en espanol para poder entendernos bien. Su

ingles es magnifico, pero quizas algunas cosas tecnicas o mas especiales le sea

mas facil en espanol.

Siento mucho que este pasando por este problema, todos nosotros estamos o

hemos estado en la misma situacion. Los demas miembros de esta lista le podran

dar mas detalles de las medicinas. Mi papa tuvo LBD, pero lo diagnosticaron

muy tarde y vivio solamente menos de un mes despues de ser diagnosticado.

No puedo escribir mucho ahora porque tengo que salir, pero quiero que sepa

que puede escribir en espanol, si gusta, en cualquier momento y yo le respondo.

Los tendre presente en mis pesamientos y oraciones, un abrazo, fina

Batista

OK. everybody, I have to go, but will be back and politely translate what I

said, Josie

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Dear :

Thank you, I felt so impolite by writing my message and no translation, but I

had to go to an appointment and didn't have time for it. Unfortunatelly I

only have the two languages. I better get going on the translation.

I read your post to Jan. Here in Miami we are at 84 degrees F., about 27

degrees C, which is perfect for me. Norway must be really, really cold by now!

I don't mind the cold as much as the cold humidity, and cannot do without my

sunshine!!! One full day of cloudiness makes me all blue! Your photos are

magnificent. Good luck with your camera hunting for whales and other great

creatures, have great trip, a hug, Josie

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Virginia:

Let me begin by applauding all the great work you've done with your

husband so far. He certainly has benefitted by you working so hard

to get him properly diagnosed and medicated. I am so impresed by you.

Also your English is fantastic! I had no trouble understanding you

at all. How did you become so fluent in English?

It sounds as if you have a lot on your plate. Please visit this site

as often as you can. It truly has given me more information than the

doctors have.

I just thought I'd mention that we may have more doctors in other

parts of the world but they're often just as inaccessible or unable

to help us with this disease. That's why this group has been such a

godsend for me.

My thoughts are with you.

Abby

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Well I have no idea what you wrote but I'm really impressed!

Goes to prove what a cracking group of people are on this site.

Well done Josie

Hugs,

Re: Thanks

Estimada Virginia:

Lei su mensaje y le respondo en espanol para poder entendernos bien. Su

ingles es magnifico, pero quizas algunas cosas tecnicas o mas especiales

le sea

mas facil en espanol.

Siento mucho que este pasando por este problema, todos nosotros estamos o

hemos estado en la misma situacion. Los demas miembros de esta lista le

podran

dar mas detalles de las medicinas. Mi papa tuvo LBD, pero lo

diagnosticaron

muy tarde y vivio solamente menos de un mes despues de ser diagnosticado.

No puedo escribir mucho ahora porque tengo que salir, pero quiero que sepa

que puede escribir en espanol, si gusta, en cualquier momento y yo le

respondo.

Los tendre presente en mis pesamientos y oraciones, un abrazo, fina

Batista

OK. everybody, I have to go, but will be back and politely translate what

I

said, Josie

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  • 2 years later...

Hi

I must admit I read all about the conference with interest and wish I could

come but as you say it is a fair old way so I think for now I will just have

to be satisfied by the info. from you all.

I hope you are having a better day today and not in too much pain.

Take care

Joan U.K.

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of dahtdah_denise

Sent: 25 August 2006 01:37

To: Stillsdisease

Subject: RE: Thanks

>Hi Joan,

Thanks for listening, as you already know,it is very hard to talk to

most people about our disease. They ask how one is out of kindness,

but I think they really don't care, they are only being polite. I am

sure there is someone much worse off than me, that's what keeps me

going everyday. It seems like the rhemuy's all may have one patient,

but I have yet to meet someone else with my disease. I am thinking

about going to the conference, so I actually CAN meet someone with our

disease. Are you going? I did read that you live in the U.K., so it

would be quite a trip. Maybe one day, though.

Thanks for listening,

dahtdah_denise

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  • 7 months later...
Guest guest

Just wanted to thank everybody that gave me great input about the

kidney problems. I really hope it isn't kidney stones. But I would be

very lost without this group.

Is there any way that my kidneys could be inflamed? Just a question.

Hugs and Blessings

Corpus Christi, Tx

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  • 1 month later...
Guest guest

>

> Boy, I sure appreciate you guys. I work so much I never spend time

> with friends, so my online life is IT sometimes. You know what I

> mean? Lucky for me my friends are also online.

>

> Marta

>

*******************************

Huge Huge Congrats Marta!

Hugs and High 5's

Sharon in Onyx

;) so does this mean you are going to stay there a while?

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Guest guest

Well, I am considering it! The term is for two years. I think I have

tied my longest job this month.

Marta

> *******************************

> Huge Huge Congrats Marta!

> Hugs and High 5's

> Sharon in Onyx

>

> ;) so does this mean you are going to stay there a while?

>

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