Guest guest Posted April 29, 2007 Report Share Posted April 29, 2007 Oh Kathy, I'm so sorry!!!!!!!!!!!! I do think that you should have more than one doctor at a time, to get different opinions. And if they disagree completely (honestly i wouldn't even tell them that you have the other doctor, just compare notes mentally)..... then see someone completely different and get another opinion. I'm a big proponent of second, third, fourth, and fifth opinions on things... I've seen two family members die because their doctors told them their cancer was gone and that they were out of the woods. Granted cancer is a #$%^ as it is and comes back unannounced like that.... but doctors are human and make misjudgments. (is that a word?) And another doctor may have told my dad and my grandma to stay on the treatments longer or something that may have saved them. Who knows? I sure don't.... and docs dont know everything either. In a perfect world, they would. ((((((((((((hugs)))))))))))) Love, is ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2007 Report Share Posted April 29, 2007 Kathy, I am so sorry. I don't understand why these doctors don't tell us about the long term side effects of these medications that they will do to our bodies. I have learned the hard way of putting my faith in doctors a while back when I could of died from a ruptured gallblader that the doctors didn't want to remove because I didn't have any of the classic textbook symptoms, but I was dying of lower right rib pain and many other symptoms. Well when they did the surgery the gallbladder was so big that it was lifting you could see it without lifting my liver. And now I am dealing with my kidney problems where my gyn is blaming weight and not checking my ovaries when I tell him that I have a high count of white blood cells in my urine. He makes it sound that I am making it up. I know that my situation does not compare to your lost but I thought I would share a little something with you. And my blessings are with you. Hugs, Corpus Christi, Tx > > Hi everyone, > I wrote a while ago about my pregnancy with twins and > being worried about the steriods i was on. Well it > turns out that it was a really big problem. I went to > 2 high risk gyn's and they both told me that there was > no way that i would survive the pregnancy. I was faced > with the toughest choice of my life. Go thru with my > pregnancy, die and give birth to twins that would be > mentally challenged. So the choice was clear but the > hardest ever. I felt like they ripped my heart, my > reason for living out of me. It's not fair. I'm soooo > mad at my rheumy because if they forethought that i > would have these problems being on 60mg of steriods > wouldn't they say something?? Or wouldn't you think > that after over a year of failing trying to get off > the steriods they would try another medication, like > Kineret, enbrel, MTX, etc... But maybe its my fault > for putting all my faith into this doctor. I've > learned the hard way and I'm trying to get thru this. > It has just been one bad thing after another for me. > When is it ever going to get better?? I'm sorry for > this venting, but its just not fair. My angels are > gone... > > Kathy > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 Kathy I am so so sorry for this. It is extremely painful...try to find some peace. Love Liz ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 Dear Kathy How can life be so cruel. I am very moved and really sorry that you have lost your babies. The medical advise you were given was appalling but you do put your trust in the professionals - what else can you do. I can try to understand how you must be feeling but know that I couldn't possibly grasp the extent of the shock and pain that you are going through. All I can say is that if any of us in the stilligan family can be of help please let us. Will be thinking of you Love Joan U.K. _____ From: Stillsdisease [mailto:Stillsdisease ] On Behalf Of KATHY MOSTAFA Sent: 30 April 2007 02:54 To: stillsdisease Subject: Was pregnant... Hi everyone, I wrote a while ago about my pregnancy with twins and being worried about the steriods i was on. Well it turns out that it was a really big problem. I went to 2 high risk gyn's and they both told me that there was no way that i would survive the pregnancy. I was faced with the toughest choice of my life. Go thru with my pregnancy, die and give birth to twins that would be mentally challenged. So the choice was clear but the hardest ever. I felt like they ripped my heart, my reason for living out of me. It's not fair. I'm soooo mad at my rheumy because if they forethought that i would have these problems being on 60mg of steriods wouldn't they say something?? Or wouldn't you think that after over a year of failing trying to get off the steriods they would try another medication, like Kineret, enbrel, MTX, etc... But maybe its my fault for putting all my faith into this doctor. I've learned the hard way and I'm trying to get thru this. It has just been one bad thing after another for me. When is it ever going to get better?? I'm sorry for this venting, but its just not fair. My angels are gone... Kathy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2007 Report Share Posted April 30, 2007 There are absolutely no words... I will be praying for you. Gentle Hugs... Gail KATHY MOSTAFA wrote: Hi everyone, I wrote a while ago about my pregnancy with twins and being worried about the steriods i was on. Well it turns out that it was a really big problem. I went to 2 high risk gyn's and they both told me that there was no way that i would survive the pregnancy. I was faced with the toughest choice of my life. Go thru with my pregnancy, die and give birth to twins that would be mentally challenged. So the choice was clear but the hardest ever. I felt like they ripped my heart, my reason for living out of me. It's not fair. I'm soooo mad at my rheumy because if they forethought that i would have these problems being on 60mg of steriods wouldn't they say something?? Or wouldn't you think that after over a year of failing trying to get off the steriods they would try another medication, like Kineret, enbrel, MTX, etc... But maybe its my fault for putting all my faith into this doctor. I've learned the hard way and I'm trying to get thru this. It has just been one bad thing after another for me. When is it ever going to get better?? I'm sorry for this venting, but its just not fair. My angels are gone... Kathy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Oh, Dear Kathy, I am holding you close to my heart~ My first child miscarried, why is still a mystery.... 25 years later I still wonder... The burden on your tired shoulders right now is massive. I mourn for your angels also. There are not enough words in the English language that will make you feel better..... I am so very sorry for your loss.... I will keep you close in my heart as you find your way through these dreadful days. Bless your heart. Pat Austin, TX ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Kathy, i am so so sorry about your loss. My prayers are with you.... and your family... Doreen Chicago IL Re: Was pregnant... Oh, Dear Kathy, I am holding you close to my heart~ My first child miscarried, why is still a mystery.... 25 years later I still wonder... The burden on your tired shoulders right now is massive. I mourn for your angels also. There are not enough words in the English language that will make you feel better..... I am so very sorry for your loss.... I will keep you close in my heart as you find your way through these dreadful days. Bless your heart. Pat Austin, TX ************************************** See what's free at http://www.aol. <http://www.aol.com.> com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 _____ From: Stillsdisease [mailto:Stillsdisease ] On Behalf Of KATHY MOSTAFA Sent: 30 April 2007 02:54 To: stillsdisease Subject: Was pregnant... Hi everyone, I wrote a while ago about my pregnancy with twins and being worried about the steriods i was on. Well it turns out that it was a really big problem. I went to 2 high risk gyn's and they both told me that there was no way that i would survive the pregnancy. I was faced with the toughest choice of my life. Go thru with my pregnancy, die and give birth to twins that would be mentally challenged. So the choice was clear but the hardest ever. I felt like they ripped my heart, my reason for living out of me. It's not fair. I'm soooo mad at my rheumy because if they forethought that i would have these problems being on 60mg of steriods wouldn't they say something?? Or wouldn't you think that after over a year of failing trying to get off the steriods they would try another medication, like Kineret, enbrel, MTX, etc... But maybe its my fault for putting all my faith into this doctor. I've learned the hard way and I'm trying to get thru this. It has just been one bad thing after another for me. When is it ever going to get better?? I'm sorry for this venting, but its just not fair. My angels are gone... Kathy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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