Re: o

[Guest guest]

Dearly Kate Vasquez and Lizday

Thank you for write and unserd my email, my inglish is so, so,

I have a freind who lived in EEUU some years ago. the next week end she will

write for me questions and experiencie of still desease.

Sorry , I can't write any more, I send you an email soon.

A hujs

o ni Argentina

Kate Vasquez escribió:

Hola o!

Pienso usted piensa que hablo español, pero hablo muy poco. ¿Puedo utilizar

una herramienta de traducción en línea como ahora estoy haciendo y el

español puede ser malo, pero podemos intentar muy bien? ¡Cuidado de la toma!

In His Strength,

, CA

Please visit my websites:

www.freewebs.com/faithfights

http://Writing.Com/authors/faithfights

From: o ni

Reply-To: Stillsdisease

To: Stillsdisease

Subject: RE: New Group Member

Date: Wed, 22 Nov 2006 22:58:01 +0000 (GMT)

Estimada Kate:

Se que sos una integrante del Grupo y practicamente la única que hablas

Español.- Me gustaría intercambiar algunas experiencias de la enfermedad con

vos ya que yo no puedo conectarme con nadie del Grupo por el tema del

idioma.-Cuando vos puedas por favor mucho te agradecería si podemos

conversar a traves del email aunque sea una ves cada 2 meses.-

Muchas Gracias Kate.-

o ni

Argentina

Kate Vasquez escribió:

Hey ,

I have been fairly quiet in the group, haven't had the best time lately and

don't spend too much time on my computer lately. Anyways, my name is .

I was diagnosed when I was 18 and am now 20. Just wanted to say hi to

someone my age, if you ever want to talk I would appreciate it. But everyone

in this group is absolutely amazing, strong, helpful, and caring no matter

how many years have passed in time with or without this disease.

I am sorry you must experience this, but we are all glad you found us, so

that hopefully we can help you through as hopefully you can do the same for

us.

I couldn't be happier for you and your " success " with Enbrel!

Congratulations. You are hope for us all.

I see you are at school. Hope you are able to work hard and enjoy. Talk

soon, hopefully.

In His Strength,

, CA

Please visit my websites:

www.freewebs.com/faithfights

http://Writing.Com/authors/faithfights

From: bscheffler@...

Reply-To: Stillsdisease

To: stillsdisease

Subject: New Group Member

Date: Wed, 22 Nov 2006 00:32:19 -0600

Hi all,

I'm new to the group but I was diagnosed with Stills (systemic onset JRA)

when I was 16. I am now 19. I just wanted to say hi to everyone here and

introduce myself.

I literally woke up the day after Christmas and couldn't move. My joints

were all swollen and I had the fevers and rashes... the whole bit. After I

finally got into the local rheumatologist, he basically told me and my

family that I had JRA. He was treating me with very small amounts of

methotrexate.

After several more weeks of constant and unbearable pain, he decided to have

another look at me. He put me on Prednisone and Solumedrol. These were

providing me with temporary relief... but it didn't do the trick. This

doctor told me this is the best we can do.

After more than three months of this doctor's nonsense and unwillingness to

try new things, my parents took me to the Mayo Clinic. I spent 9 days

undergoing tests and I don't even remember what they were for. However, I

feel that Mayo is what really helped me in my fight. The doctors there

diagnosed me with Still's and started me on a very aggressive medicine

routine. The doctors there are the ones who immediately wanted me to start

taking Enbrel.

After about 2 weeks of Enbrel, I considered myself " back to normal. " No

other medicine did what Enbrel did. I no longer had constant pain... and

since then, I feel as if some of my " permanent " damage has reversed. I can

now move my wrists much more than before Enbrel.

Anyways, I am 19 now, three years later, and I no longer have pain. I have

bad days every couple months.... but I have not had a serious flare since

the original period.

That's about all... just wanted to get my story out there.

Happy Thanksgiving!

-- Scheffler

--

-- bscheffler@...

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute

for medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical

or professional medical services. You should consult your physician on

specific medical questions, particularly in matters requiring diagnosis or

medical attention. The International Still's Disease Foundation makes no

representations or warranties with respect to any treatment, action,

application, medication or preparation by any person following the

information offered or provided within this support form.

ion by any person following the information offered or provided within this

support form.

[Guest guest]

Gracias o. Yo espero que te siente mejor ahora mismo...!!! Habla

contigo luego! Hugs Liz New Jersey

[Guest guest]

Hola Liz: Es un gusto comunicarme con vos.- En breve te comentaré mas cosas.-

Preguntáme lo que tu quieras.-

Que tengan un buen fin de Semana ( Un buen Weekend) lo dije bien en Ingles?

Chau

o

lizdaly101@... escribió:

Me gusto escribir in espanol pero neccesito tiempo a entiende y usar una

dictionario o el computer( spanglish).hhhaaa

En algunas de dias escribire otra vez, Mi hijo tiene 11 anos tambien!

Liz

[Guest guest]

Hola Liz, Como estás, etoy provando para ver si recibis mi email.-

Ayer te envié un email en Englis pero me parece que no lo recibistes.-

Thank You

lizdaly101@... escribió:

Yo espero que tu entiende este...El computer ayuda me...

Hoy leí sus correos electrónicos. Los demás en nuestro grupo hablan de sólo

después de consejo de doctores no consejo de la lista. Me ofrecí realmente el

trabajo hoy para el Hospicio. Los pacientes son muy viejos y se deterioran.

Hoy alimenté a una muy vieja señora. Espero que usted tenga un día bueno

Ah sí los otros de .. hablan del dolor en su superior atrás cerca de sus

hombros. Consigo esto a veces. Me acuesto y esto ayuda,

Adiós por el momento o

Liz

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