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Hi all:

I'm sorry to let you know but my husband died on monday 15th. We came back to

the hospital the 9th, he could not respire, the diagnosis was neumonia, he had

suero, antibiotic that's all. He had problems at the botton (ulceres), at the

last weeks he cannot move.

He was completely aware, conscient, he suffered too much. On sunday I ask the

doctor to help him, they gave him during the day three injections of morphine,

and at 1:30 AM he died.

After that I was completely empty, alone I took my car and I stayed like zombie

at home. I wanted to " incinerate " him, here was not possible, I organized in

Barcelona. Now I'm back with the ashes, that we will througt in the

Mediterranean sea, near Formentera island.

Before sending him by fly to Barcelona, I've spoken with the neurologist that

manages a neurogolical tissus bank at the Clinical Hospital in Barcelona, we

took out the " cerebelo " to do the anatomopatological examination confirming the

diagnosis and to study it. I hope may be it can helps to know more about LBD.

When friends called me and asked about what kind of disease he had, really I

didn't know what to say. My feeling now is that we were living a long trip,

after the diagnosis of LBD you cannot do almost nothing, the neurologists know

not much, you're aware and suffering until the end.

Now I'm sure he's better. My question is, if the neurologist know all this why

they don't give the chance to die before, why suffer at that point when you're

completely conscient.

My husband never conplain, when he had horrible pain allways was a " discrete "

person. Me I was not discrete, why all this pain...

Thanks again to find you, you helped me a lot.

Sincerely,

Virginia.

Re: Anne: Re: End stages question -

>Debbie:

>

>This sounds like hospice care. It is the kindest thing we can do for our

>LO's. Your aunt was lucky to come home. We couldn't take my dad home

because my

>mom could not have taken care of him in their condition. My dad's room was

>turned into a Hospice room and given that kind of care. The morphine keeps

>them from being in pain, and their breathing response is decreased. They

pass

>very peacefully.

>

>Josie

>

>

>