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Re: End Stages

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Joanne,

I am sending you and your family much strength to help you through this

stage.

Courage

RE: End stages

>Mom is going through the end stuff as we speek. She contacted an

>URI about a week ago, and it has taken its toll. Mom is spending

>many many hours asleep, then well wake for few minutes or an hour or

>so ;drink and eat very little. The last two days I have had to

>request extra pain medication, and medication types that will

>dissolve in the mouth without the resident waking. I hope these

>steps will make Mom more comfortable. This is a time when one

>revisits the Living Will and comes to the same conclusion each time,

>reassures oneself they are doing as LO wishes , takes each day as it

>comes and stick to the request that was made, when the LO was in

>a sound mind. I am doing that today, easy no, but easier than

>standing by and watching this process of deteriation continue. Mom

>is down to less than 70 pounds, and she is ready for the next

>journey, and her family has to be ready to let her make that

>transition. My prayers now are that that journey is a pain free one.

>Joanne in Oregon

>

>

>

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  • 3 weeks later...

Dear Dorinda:

When I started in this site, I asked about the stages. The response, from a

professional nurse, is in post # 18110. It is very informative, although it

is the stages of Dementia, not so specific to LBD, which have not yet been

formulated, as far as I know.

Your dad may be helped by taking away the feeding tube. Make sure he is

given IV liquids and kept with enought pain medication to keep him comfortable.

Have you thought about Hospice care? You can have them come over and evaluate

your dad. They will give you an idea of how they can help him and how long he

will be under their care. I had excellent care for my dad and was very

satisfied with their level of compassion and ability to manage the situation.

Your

dad's quality of life seems pretty low at this point. Hospice can help.

While they do not provide recuperative treatment, they do treat all the

discomfort symptoms and allow the most dignified passing possible. I hope you

are not

put off by my bluntness, but I could not see my dad suffering so, and

continuing to prolong his life. My choice worked for me because my family and

I knew

that was what my dad wanted and all he talked about whenever he was aware and

had the chance.

My thoughts and prayers are with you and your family.

Josie

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Dear Dorinda:

When I started in this site, I asked about the stages. The response, from a

professional nurse, is in post # 18110. It is very informative, although it

is the stages of Dementia, not so specific to LBD, which have not yet been

formulated, as far as I know.

Your dad may be helped by taking away the feeding tube. Make sure he is

given IV liquids and kept with enought pain medication to keep him comfortable.

Have you thought about Hospice care? You can have them come over and evaluate

your dad. They will give you an idea of how they can help him and how long he

will be under their care. I had excellent care for my dad and was very

satisfied with their level of compassion and ability to manage the situation.

Your

dad's quality of life seems pretty low at this point. Hospice can help.

While they do not provide recuperative treatment, they do treat all the

discomfort symptoms and allow the most dignified passing possible. I hope you

are not

put off by my bluntness, but I could not see my dad suffering so, and

continuing to prolong his life. My choice worked for me because my family and

I knew

that was what my dad wanted and all he talked about whenever he was aware and

had the chance.

My thoughts and prayers are with you and your family.

Josie

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