Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 My ANA is also 1:160 and so are many other CFS patients. thesangreal <vze3f7wf@...> wrote:I thought I would jump into your conversation. I have been seeing a rheumatologist for the last several months to figure out why I have been achey in my joints over the past year. I have ALWAYS been tired (that's the story of my life) and so I didn't make that big of a deal out of it at the doctor's office. I guess I am used to it. I do have other autoimmune conditions like asthma, bladder problems, TMJ, abdominal pain and some skin problems. Interestingly enough all the tests came back normal except I have a ANA titer of 1:160. My ANA profile turned up nothing except just the high non specific titer. So apparently no rheumatoid arthritis, no lupus, or any of those more specific things. The doctor isn't quite sure what to do next. He thinks it might be mild fibromyalgia. He suggested a prednisone burst but I balked. I am going to look into this adrenal issue. I wonder if this is something that could also cause a high ANA titer? > Hi Lorraine, > > I have CFS/FM and recently read a book titled " Tired of Being Tired " , by Dr. Hanley which also discusses adrenal burnout. I found the book very informative. I believe adrenal burnout sets us up for fibro, but I think there is more to it than just that. In my research (informal) for alpha1 antitrypsin deficiency, I'm finding overlap with CFS, FMS, lupus, RA, and others. I suggest you and your family be tested. The phone number to call for a free test kit is 877-886-2383. Feel free to email me off-line. > > Take Care, > > in PA > ====msg thread truncated==== Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. --------------------------------- To visit your group on the web, go to: / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Hi, I also had a high ANA titer 1:850 and horribly achey joints for over a year. Finally after REPEATED blood tests I was diagnoses with Hashimoto's Thyroiditis, then hypothyroidism. I've been taking Synthroid for 11 years with no further problems. My point is, often it takes repeated blood tests to diagnose thyroid disease. I'm assuming your rheumatologist checked your thyroid function, but it may be worth a recheck. HTH, Re: adrenal fatigue I thought I would jump into your conversation. I have been seeing a rheumatologist for the last several months to figure out why I have been achey in my joints over the past year. I have ALWAYS been tired (that's the story of my life) and so I didn't make that big of a deal out of it at the doctor's office. I guess I am used to it. I do have other autoimmune conditions like asthma, bladder problems, TMJ, abdominal pain and some skin problems. Interestingly enough all the tests came back normal except I have a ANA titer of 1:160. My ANA profile turned up nothing except just the high non specific titer. So apparently no rheumatoid arthritis, no lupus, or any of those more specific things. The doctor isn't quite sure what to do next. He thinks it might be mild fibromyalgia. He suggested a prednisone burst but I balked. I am going to look into this adrenal issue. I wonder if this is something that could also cause a high ANA titer? Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 I was also seen by a rheumatologist about a year ago because of achey and swollen joints in my hands. I have a sister dx with rheumatoid arthritis. My tests for arthritis came back negative. The problem disappeared for a time but has returned. I have no idea if my ANA was tested-I will have to search my files. Those of you with the achey joints, do you also get swelling and redness around those joints and is it just in the hands/feet? I can't believe all of this is just coincidental. I wonder how many moms of kids have this problem?!! Have any moms out there gone GFCF to see if the problem disappears? I have seen references that indicate it could be beneficial. Thanks to all. --- In , " LINDA ANAGNOSTAKOS " <lsa5885@m...> wrote: > Hi, > I also had a high ANA titer 1:850 and horribly achey joints for over a year. Finally after REPEATED blood tests I was diagnoses with Hashimoto's Thyroiditis, then hypothyroidism. I've been taking Synthroid for 11 years with no further problems. My point is, often it takes repeated blood tests to diagnose thyroid disease. I'm assuming your rheumatologist checked your thyroid function, but it may be worth a recheck. HTH, > Re: adrenal fatigue > > > I thought I would jump into your conversation. I have been seeing a > rheumatologist for the last several months to figure out why I have > been achey in my joints over the past year. I have ALWAYS been tired > (that's the story of my life) and so I didn't make that big of a deal > out of it at the doctor's office. I guess I am used to it. I do have > other autoimmune conditions like asthma, bladder problems, TMJ, > abdominal pain and some skin problems. Interestingly enough all the > tests came back normal except I have a ANA titer of 1:160. My ANA > profile turned up nothing except just the high non specific titer. So > apparently no rheumatoid arthritis, no lupus, or any of those more > specific things. The doctor isn't quite sure what to do next. He > thinks it might be mild fibromyalgia. He suggested a prednisone burst > but I balked. I am going to look into this adrenal issue. I wonder > if this is something that could also cause a high ANA titer? > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > > > > -------------------------------------------------------------------- ---------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 Hi , I didn't have any redness or swelling, just pain. All of my joints ached, and I was so stiff in the morning I had a hard time coming down the stairs. I felt like I was a hundred years old. As soon as I was treated for the hypothyroidism all of my symptoms went away. Whenever my joints ache now I know that I need an adjustment in medication. HTH, Take care, Re: adrenal fatigue > > > I thought I would jump into your conversation. I have been seeing a > rheumatologist for the last several months to figure out why I have > been achey in my joints over the past year. I have ALWAYS been tired > (that's the story of my life) and so I didn't make that big of a deal > out of it at the doctor's office. I guess I am used to it. I do have > other autoimmune conditions like asthma, bladder problems, TMJ, > abdominal pain and some skin problems. Interestingly enough all the > tests came back normal except I have a ANA titer of 1:160. My ANA > profile turned up nothing except just the high non specific titer. So > apparently no rheumatoid arthritis, no lupus, or any of those more > specific things. The doctor isn't quite sure what to do next. He > thinks it might be mild fibromyalgia. He suggested a prednisone burst > but I balked. I am going to look into this adrenal issue. I wonder > if this is something that could also cause a high ANA titer? > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > > > > -------------------------------------------------------------------- ---------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 Wow...your description could describe my feeling a few months back. I couldn't make it down the stairs without first getting into a hot bath. Then after soaking there for ten minutes I could finally make my way to the coffee maker, which had to be my next stop or I couldn't make it through the morning. LOL Anyway, I am starting to think that the rheumatologist did not test my thyroid. He did an ANA profile. I can't seem to find the results for that. Would a thyroid test be part of that? I did find my earlier tests done by my podiatrist. What would the thyroid test look like in terms of letters? I don't see anything indicating a test for T3 or T4 or anything that says thyroid, but I do see a CBC with lots of things under that. And Hepatic Function Panel and Sed Rate and ANA and RA factor. But that's it. Boy, it would be exciting to actually find something. Kim in MD --- In , " LINDA ANAGNOSTAKOS " <lsa5885@m...> wrote: > Hi , > > I didn't have any redness or swelling, just pain. All of my joints ached, and I was so stiff in the morning I had a hard time coming down the stairs. I felt like I was a hundred years old. As soon as I was treated for the hypothyroidism all of my symptoms went away. Whenever my joints ache now I know that I need an adjustment in medication. HTH, Take care, > > Re: adrenal fatigue > > > I was also seen by a rheumatologist about a year ago because of achey > and swollen joints in my hands. I have a sister dx with rheumatoid > arthritis. My tests for arthritis came back negative. The problem > disappeared for a time but has returned. I have no idea if my ANA > was tested-I will have to search my files. Those of you with the > achey joints, do you also get swelling and redness around those > joints and is it just in the hands/feet? I can't believe all of this > is just coincidental. I wonder how many moms of kids have this > problem?!! Have any moms out there gone GFCF to see if the problem > disappears? I have seen references that indicate it could be > beneficial. Thanks to all. > > >>>>>>TRUNCATED<<<<<<< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 To answer the other question. I also just get pain, no visible swelling or redness altho they feel swollen. Mostly hands, ankles, and feet but also knees. Sometimes neck hurts too. --- In , " LINDA ANAGNOSTAKOS " <lsa5885@m...> wrote: > Hi , > > I didn't have any redness or swelling, just pain. All of my joints ached, and I was so stiff in the morning I had a hard time coming down the stairs. I felt like I was a hundred years old. As soon as I was treated for the hypothyroidism all of my symptoms went away. Whenever my joints ache now I know that I need an adjustment in medication. HTH, Take care, >>>>>TRUNCATED<<<<<< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 I'll chime in with those whose achy joints (mainly my legs) and extreme lethargy was hormonal. Thyriod helped it some but for me progesterone was the biggie. My blood thyriod levels always show low normal but the doc put me on natural thyriod med (Armour) due to other symptoms. When she did a full hormonal work-up, my hormones were a mess. Taking progesterone and thyriod for several years have almost normalized the overall hormones. The leg and joint pains went away after about a week of treatment and only returned once when a doc mistakenly wrote an RX that cut my progesterone dose to 1/4 of what I was taking and I took that dose for about a month. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Hi Kim, Even though the news of having hypothyroidism was at first hard to swallow. The fact that I finally had a diagnosis was such a relief. Also not feeling or acting like a grumpy old lady was a welcome relief to my family. I'm not a physician but I do know that my thyroid panel consists of a T3, TOTAL,T-3 UPTAKE,T-4 FREE, T-4 THYROXINE, TOTAL, FREE T4 INDEX (T7) and a TSH level. It doesn't sound like you had a thyroid panel based on what you read. Oh yeah, don't forget that it may take more than one blood test to find thyroid disease. It took repeated tests before I was finally diagnosed. HTH, Re: adrenal fatigue > > > I was also seen by a rheumatologist about a year ago because of achey > and swollen joints in my hands. I have a sister dx with rheumatoid > arthritis. My tests for arthritis came back negative. The problem > disappeared for a time but has returned. I have no idea if my ANA > was tested-I will have to search my files. Those of you with the > achey joints, do you also get swelling and redness around those > joints and is it just in the hands/feet? I can't believe all of this > is just coincidental. I wonder how many moms of kids have this > problem?!! Have any moms out there gone GFCF to see if the problem > disappears? I have seen references that indicate it could be > beneficial. Thanks to all. > > >>>>>>TRUNCATED<<<<<<< Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Hi , thanks so much. I called my doctor and found out that he hadn't run any thyroid tests. So glad to find a new avenue. As someone who has suffered from a couple of mysterious ailments, I would also prefer to have a name and a treatement protocol. The info you gave me is helpful. Kim in MD > > Hi , > > > > I didn't have any redness or swelling, just pain. All of my joints > ached, and I was so stiff in the morning I had a hard time coming > down the stairs. I felt like I was a hundred years old. As soon as I > was treated for the hypothyroidism all of my symptoms went away. > Whenever my joints ache now I know that I need an adjustment in > medication. HTH, Take care, > > > > Re: adrenal fatigue > > > > > > I was also seen by a rheumatologist about a year ago because of > achey > > and swollen joints in my hands. I have a sister dx with > rheumatoid > > arthritis. My tests for arthritis came back negative. The > problem > > disappeared for a time but has returned. I have no idea if my > ANA > > was tested-I will have to search my files. Those of you with the > > achey joints, do you also get swelling and redness around those > > joints and is it just in the hands/feet? I can't believe all of > this > > is just coincidental. I wonder how many moms of kids have > this > > problem?!! Have any moms out there gone GFCF to see if the > problem > > disappears? I have seen references that indicate it could be > > beneficial. Thanks to all. > > > > > > >>>>>>TRUNCATED<<<<<<< > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Gaylen, What kind of doctor did you see who thought up all these tests? My rheumatologist seems kind of lazy in light of what other folk's doctors are doing. Kim in MD --- I n , Googahly@a... wrote: > I'll chime in with those whose achy joints (mainly my legs) and extreme > lethargy was hormonal. Thyriod helped it some but for me progesterone was the > biggie. My blood thyriod levels always show low normal but the doc put me on > natural thyriod med (Armour) due to other symptoms. When she did a full hormonal > work-up, my hormones were a mess. Taking progesterone and thyriod for several > years have almost normalized the overall hormones. The leg and joint pains > went away after about a week of treatment and only returned once when a doc > mistakenly wrote an RX that cut my progesterone dose to 1/4 of what I was taking > and I took that dose for about a month. > Gaylen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 In a message dated 3/18/2004 11:10:38 AM Central Standard Time, vze3f7wf@... writes: What kind of doctor did you see who thought up all these tests? My rheumatologist seems kind of lazy in light of what other folk's doctors are doing. It is hard to find a doc who recognizes and deals with hormonal imbalance. The first doc I saw for this was an allergy doc and the current doc is a regular D.O. but specializes in women's issues. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Hi there I suggested bananas but I only eat them when they have just ripened, obviously the more they ripen the higher the sugar level. GI factor Ripe 55 (med) Under Ripe 30 (low) When I was suffering from CFS, if I had to go anywhere I found it useful to take a banana with me. --- Duncan Crow <duncancrow@...> wrote: --------------------------------- > I thought banana's are not recommended under the anti-candida diet and > Bananas are among the highest glycemic and largest carb sources per ounce you can eat. In my view that more than offsets the 1/3 of a gram of potassium you might get from one. Duncan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 I have eaten bananas all through this candida thing and never had a problem with them. Try them and see how your body reacts, but remember to keep a variety in your diet.. it would really suck to become allergic to even more foods *8-) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Thanks for your remark on eating bananas, only I felt I was coming under attack for recommending them to another Candida sufferer. Regards --- " M. " <puhutes@...> wrote: --------------------------------- I have eaten bananas all through this Candida thing and never had a problem with them. *8-) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 Yes, I have adrenal exhaustion as well. Licorice did nothing for me. I take Isocort, which has been a life saver for me. I feel completely normal when I take it, with a lot of energy. One problem with Isocort, or any drug for that matter, is that when my liver wasn't functioning well a few years ago, I could only tolerate 1/4 of one tablet. My dose now is 6 tablets in the morning and 3 in the afternoon! You might do a web search and buy it on line if your doc doesn't carry it. I'd do this instead of hydrocortisone, as Isocort does the same thing in the body. Kenda > I found out yesterday I am in stage 5 of adrenal fatique. No surprise > really since this is the way I have felt the last few months and since > it often goes along with Hypothyroidism. Has anyone else been > diagnosed with this and if so, did you ever get your adrenals back in > shape.? > Dr. is putting me on physiological doses of hydrocortisone....20 mgs > thru out the day. She did this instead of licorice and natural things > because my cortisol is almost zero at 4:00 in the afternoon. > > All this time I spent " exercising " , I was doing my damage than good, > since exercise depletes cortisol reserves. It also explains > the " water retention " , bloated feeling, pains in joints....etc. > I am really hoping this is the last thing I need to correct! > > If our bodies become so stressed due to implants that we end up with > thyroid problems, chances are it will lead to adrenal gland problems. > And ladies, my doctor did not find this. I did. I contacted a lab > thru a website to do the saliva testing. It was the same lab my own > doctor used over 2 years ago...so it is a valid lab. > > Lesson I learned: Don't expect our doctors to find out what is wrong > with us. We have to be proactive diligent and " analyst " about our > health especially after implants. (and my doctor is a holistic > doctor!!!!!!) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2007 Report Share Posted April 26, 2007 Very good article Patty ~ Those were my beginning symptoms too.......Thank you for always sharing info ~ Hugs N Prayers ~ DSee what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
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