Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 What a difficult time you are having now. I send you positive energy to find your way through. I hope you all will keep all of your options open and discuss them with each other. Being a care giver takes an enormous toll and it's important to address the needs of ALL of you as you are all affected by what's happening to your Dad. While you're taking care of him remember to take a care of yourself and encourage your Mom to do the same. My heart goes out to you. > Hello: > > My dad has been in the hospital for about a month now while they try > to find some medication to help control his dementia (really his > largest problem at this point). > > We brought him home for (Canadian) Thanksgiving for the day. Then, > he was tired and quite unresponsive. It hurt to see him want to get > back to the hospital by 3:00 in the afternoon. He had already begun > to define that place in his mind as " home " or at least a comfortable > place for him. > > This weekend we're bringing Dad home again. His doctor wants us to > try him at home every now and again so we can see how he and how we > cope with him at night. He truly wants to come home and has spoken > of little else this entire week. > > I'm scared though. My mother and my sister will be with him > throughout the night which is when he's at his worst. The nurses and > the other patients say my Dad wanders aimlessly in and out of their > rooms throughout the night. Because we're not there, we don't know > what he's like at that time. > > My mother still insists on having him home with her ASAP. This > weekend will be a trial run. We have our family meeting on Monday. > His doctor has told us to bring him back at anytime throughout the > weekend if he appears seriously confused or demented. > > I so want my father and my family to have a great weekend together > but I'm concerned that if he does, my mother will have a false sense > of security and not feel as compelled to get help. Before any of > this started, she was the sick one. > > Does any of this make sense? > > I'll try and post throughout the weekend or after it to let you know > how it went. > > Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 What a difficult time you are having now. I send you positive energy to find your way through. I hope you all will keep all of your options open and discuss them with each other. Being a care giver takes an enormous toll and it's important to address the needs of ALL of you as you are all affected by what's happening to your Dad. While you're taking care of him remember to take a care of yourself and encourage your Mom to do the same. My heart goes out to you. > Hello: > > My dad has been in the hospital for about a month now while they try > to find some medication to help control his dementia (really his > largest problem at this point). > > We brought him home for (Canadian) Thanksgiving for the day. Then, > he was tired and quite unresponsive. It hurt to see him want to get > back to the hospital by 3:00 in the afternoon. He had already begun > to define that place in his mind as " home " or at least a comfortable > place for him. > > This weekend we're bringing Dad home again. His doctor wants us to > try him at home every now and again so we can see how he and how we > cope with him at night. He truly wants to come home and has spoken > of little else this entire week. > > I'm scared though. My mother and my sister will be with him > throughout the night which is when he's at his worst. The nurses and > the other patients say my Dad wanders aimlessly in and out of their > rooms throughout the night. Because we're not there, we don't know > what he's like at that time. > > My mother still insists on having him home with her ASAP. This > weekend will be a trial run. We have our family meeting on Monday. > His doctor has told us to bring him back at anytime throughout the > weekend if he appears seriously confused or demented. > > I so want my father and my family to have a great weekend together > but I'm concerned that if he does, my mother will have a false sense > of security and not feel as compelled to get help. Before any of > this started, she was the sick one. > > Does any of this make sense? > > I'll try and post throughout the weekend or after it to let you know > how it went. > > Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Abby, I live in Toronto. Where do you and your family live? Courage Trial visit home for my dad >Hello: > >My dad has been in the hospital for about a month now while they try >to find some medication to help control his dementia (really his >largest problem at this point). > >We brought him home for (Canadian) Thanksgiving for the day. Then, >he was tired and quite unresponsive. It hurt to see him want to get >back to the hospital by 3:00 in the afternoon. He had already begun >to define that place in his mind as " home " or at least a comfortable >place for him. > >This weekend we're bringing Dad home again. His doctor wants us to >try him at home every now and again so we can see how he and how we >cope with him at night. He truly wants to come home and has spoken >of little else this entire week. > >I'm scared though. My mother and my sister will be with him >throughout the night which is when he's at his worst. The nurses and >the other patients say my Dad wanders aimlessly in and out of their >rooms throughout the night. Because we're not there, we don't know >what he's like at that time. > >My mother still insists on having him home with her ASAP. This >weekend will be a trial run. We have our family meeting on Monday. >His doctor has told us to bring him back at anytime throughout the >weekend if he appears seriously confused or demented. > >I so want my father and my family to have a great weekend together >but I'm concerned that if he does, my mother will have a false sense >of security and not feel as compelled to get help. Before any of >this started, she was the sick one. > >Does any of this make sense? > >I'll try and post throughout the weekend or after it to let you know >how it went. > >Abby > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Abby, I live in Toronto. Where do you and your family live? Courage Trial visit home for my dad >Hello: > >My dad has been in the hospital for about a month now while they try >to find some medication to help control his dementia (really his >largest problem at this point). > >We brought him home for (Canadian) Thanksgiving for the day. Then, >he was tired and quite unresponsive. It hurt to see him want to get >back to the hospital by 3:00 in the afternoon. He had already begun >to define that place in his mind as " home " or at least a comfortable >place for him. > >This weekend we're bringing Dad home again. His doctor wants us to >try him at home every now and again so we can see how he and how we >cope with him at night. He truly wants to come home and has spoken >of little else this entire week. > >I'm scared though. My mother and my sister will be with him >throughout the night which is when he's at his worst. The nurses and >the other patients say my Dad wanders aimlessly in and out of their >rooms throughout the night. Because we're not there, we don't know >what he's like at that time. > >My mother still insists on having him home with her ASAP. This >weekend will be a trial run. We have our family meeting on Monday. >His doctor has told us to bring him back at anytime throughout the >weekend if he appears seriously confused or demented. > >I so want my father and my family to have a great weekend together >but I'm concerned that if he does, my mother will have a false sense >of security and not feel as compelled to get help. Before any of >this started, she was the sick one. > >Does any of this make sense? > >I'll try and post throughout the weekend or after it to let you know >how it went. > >Abby > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Hi Coyote: I'm in Kleinberg but my parents live in Etobicoke. Nice to know members span the globe but there are some around locally too. Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Thanks for the warm thought samchigirl. I'm even more worried about bringing my dad home after a call from my mom. I didn't visit the hospital this morning. (This is only the second time I haven't gone since he's been in). I had trouble sleeping last night and I have developed an awful cold. I decided to stay home and just try to relax and ready myself for his visit tomorrow. Apparently, when my mom got to the hospital, she found him lying sideways on his bed clutching a razor. She asked my dad to get up so he could be more comfortable. He got up and, while saying the razor didn't work, he fainted. He was out for a very short time. What disturbs me is that the nurses or the doctor who came soon afterwards didn't bother to take my dad's blood pressure and seemed to attribute this fall to his illness. Is this true? I know my dad does have a horrible illness but could he be right when he says the meds are making him sicker? (He's on 10 mg. of Aricept and an anti- depressant that starts with a " T " . He was just put on the anti- depressant on Monday) I just wish that they had been a bit more reassuring to my mom. My dad says he feels a bit shaken up but doesn't want to talk about it. He appears embarrassed. Will this disease stop at nothing while it destroys our LOs and us in its wake? Once again, I hate this damn illness!!! Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Thanks for the warm thought samchigirl. I'm even more worried about bringing my dad home after a call from my mom. I didn't visit the hospital this morning. (This is only the second time I haven't gone since he's been in). I had trouble sleeping last night and I have developed an awful cold. I decided to stay home and just try to relax and ready myself for his visit tomorrow. Apparently, when my mom got to the hospital, she found him lying sideways on his bed clutching a razor. She asked my dad to get up so he could be more comfortable. He got up and, while saying the razor didn't work, he fainted. He was out for a very short time. What disturbs me is that the nurses or the doctor who came soon afterwards didn't bother to take my dad's blood pressure and seemed to attribute this fall to his illness. Is this true? I know my dad does have a horrible illness but could he be right when he says the meds are making him sicker? (He's on 10 mg. of Aricept and an anti- depressant that starts with a " T " . He was just put on the anti- depressant on Monday) I just wish that they had been a bit more reassuring to my mom. My dad says he feels a bit shaken up but doesn't want to talk about it. He appears embarrassed. Will this disease stop at nothing while it destroys our LOs and us in its wake? Once again, I hate this damn illness!!! Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Hi Abby, I hope that things go smoothly over the weekend. Try not to be too anxious over it....whatever will be, will be. Just try to make sure he gets lots of rest and take things moment by moment. I'll be thinking of you and looking forward to hearing how things go. Hugs, Coyote > Hello: > > My dad has been in the hospital for about a month now while they try > to find some medication to help control his dementia (really his > largest problem at this point). > > We brought him home for (Canadian) Thanksgiving for the day. Then, > he was tired and quite unresponsive. It hurt to see him want to get > back to the hospital by 3:00 in the afternoon. He had already begun > to define that place in his mind as " home " or at least a comfortable > place for him. > > This weekend we're bringing Dad home again. His doctor wants us to > try him at home every now and again so we can see how he and how we > cope with him at night. He truly wants to come home and has spoken > of little else this entire week. > > I'm scared though. My mother and my sister will be with him > throughout the night which is when he's at his worst. The nurses and > the other patients say my Dad wanders aimlessly in and out of their > rooms throughout the night. Because we're not there, we don't know > what he's like at that time. > > My mother still insists on having him home with her ASAP. This > weekend will be a trial run. We have our family meeting on Monday. > His doctor has told us to bring him back at anytime throughout the > weekend if he appears seriously confused or demented. > > I so want my father and my family to have a great weekend together > but I'm concerned that if he does, my mother will have a false sense > of security and not feel as compelled to get help. Before any of > this started, she was the sick one. > > Does any of this make sense? > > I'll try and post throughout the weekend or after it to let you know > how it went. > > Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Hi Abby, I hope that things go smoothly over the weekend. Try not to be too anxious over it....whatever will be, will be. Just try to make sure he gets lots of rest and take things moment by moment. I'll be thinking of you and looking forward to hearing how things go. Hugs, Coyote > Hello: > > My dad has been in the hospital for about a month now while they try > to find some medication to help control his dementia (really his > largest problem at this point). > > We brought him home for (Canadian) Thanksgiving for the day. Then, > he was tired and quite unresponsive. It hurt to see him want to get > back to the hospital by 3:00 in the afternoon. He had already begun > to define that place in his mind as " home " or at least a comfortable > place for him. > > This weekend we're bringing Dad home again. His doctor wants us to > try him at home every now and again so we can see how he and how we > cope with him at night. He truly wants to come home and has spoken > of little else this entire week. > > I'm scared though. My mother and my sister will be with him > throughout the night which is when he's at his worst. The nurses and > the other patients say my Dad wanders aimlessly in and out of their > rooms throughout the night. Because we're not there, we don't know > what he's like at that time. > > My mother still insists on having him home with her ASAP. This > weekend will be a trial run. We have our family meeting on Monday. > His doctor has told us to bring him back at anytime throughout the > weekend if he appears seriously confused or demented. > > I so want my father and my family to have a great weekend together > but I'm concerned that if he does, my mother will have a false sense > of security and not feel as compelled to get help. Before any of > this started, she was the sick one. > > Does any of this make sense? > > I'll try and post throughout the weekend or after it to let you know > how it went. > > Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Abby...You're so lucky...Kleinburg is THE most beautiful place around ESPECIALLY in the Autumn! Take a moment over the weekend just to look at the beautiful trees...you'd be surprised how therapeutic it can be. Last weekend I took my daughters out, found a beautiful creek with gorgeous Autumn trees as a backdrop to photograph them. Felt great just to stop and smell the roses for a minute!! By the way, I moved here (near Cayuga Speedway) from Etobicoke. (Westway/grove). Hugs, Coyote > Hi Coyote: > > I'm in Kleinberg but my parents live in Etobicoke. > > Nice to know members span the globe but there are some around locally > too. > > Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Well, I am not a doctor...but I certainly think his BP should have been checked out. Although falls are common with LBD patients, they shouldnt just cast off loss of consciousness as just being part of the disease! LBD is not the only illness LBD patients can get!!! Well, maybe his body is just adjusting to the new antidepressant...I hope....I hope he will be ok over the weekend. I'll keep him (and of course, you) in my prayers. -Coyote > Thanks for the warm thought samchigirl. > > I'm even more worried about bringing my dad home after a call from my > mom. > > I didn't visit the hospital this morning. (This is only the second > time I haven't gone since he's been in). I had trouble sleeping last > night and I have developed an awful cold. I decided to stay home and > just try to relax and ready myself for his visit tomorrow. > > Apparently, when my mom got to the hospital, she found him lying > sideways on his bed clutching a razor. She asked my dad to get up so > he could be more comfortable. He got up and, while saying the razor > didn't work, he fainted. He was out for a very short time. > > What disturbs me is that the nurses or the doctor who came soon > afterwards didn't bother to take my dad's blood pressure and seemed > to attribute this fall to his illness. Is this true? I know my dad > does have a horrible illness but could he be right when he says the > meds are making him sicker? (He's on 10 mg. of Aricept and an anti- > depressant that starts with a " T " . He was just put on the anti- > depressant on Monday) > > I just wish that they had been a bit more reassuring to my mom. My > dad says he feels a bit shaken up but doesn't want to talk about it. > He appears embarrassed. > > Will this disease stop at nothing while it destroys our LOs and us in > its wake? Once again, I hate this damn illness!!! > > Abby Quote Link to comment Share on other sites More sharing options...
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