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Re: Flapping/regression

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In a message dated 4/17/2004 1:32:54 PM Central Standard Time,

beckeric@... writes:

Only time I've seen him this stimmy was during die off with Diflucan. We

switched from Nizoral a few mos. ago and I've always thought the Nizoral kept

his

stools more normal. Once on the Diflucan, he seemed to grow more sensitive

to foods/break out in minor eczema for no obvious reason.......??

This happened to my son as well when he retried Diflucan. It just kept

getting worse so we stopped it.

Gaylen

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Becky,

You might want to ask Dr. G about doing an ASO titer (Strep antibodies). My

son was REALLY thrown off by strep and he wasn't even " sick " ... the only way

we knew was that Dr. Goldberg ordered the ASO. A few days after starting

Erythromycin, we had our boy back (the teacher called me from school to say

it was a miracle). He was on Erythromycin for about 6 months 'til his

titer numbers came down to within the normal range.

Caroline

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Becky....I think your theories are right on. Something has sent his

system over the edge and trial and error may be the best way to get

it back.

As for the allergies....my son is on a nasal spray as well as night

time allergy meds....maybe your son needs extra right now.

As for Celexa.....my son outgrew his dosage....as he got bigger he

needed an increase in the Celexa dosage. We have always seen GREAT

improvements when increasing Celexa. We went through something

similar to you last December after a Flu shot (!!) and it lasted 2

months. Increasing Celexa dose really brought him back.

Bets of luck

>

>

> Anyone else gone through this, and what turned out to be the

cause?

>

> My son has been doing very well on the protocol , progresssing

until about 6 weeks ago. He is on Famvir, Diflucan, Celexa, Zyrtec,

and has had one IMGG shot. About 6 weeks ago, his spaciness started

to increase slightly on/off with some deviation of his left eye

(always a sign that something is amiss, usually when he's sick)

>

>

> Since then, he's still very alert, happy, and interactive most of

the time, but his running/flapping habit has gotten out of control.

It's like he just can't control it. he's always been a big flapper

when he's excited about something and likes to run back and forth

when not occupied, but I could always distract him....it was more

like a habit. Now, when he starts, its much more intense and he is

totally tuned out. It's also much more frequent. He'll be totally

fine, looking like a perfectly normal kid, then suddenly, " autism

boy " takes over and off he goes, running in circles, flappping,

kinking his head to the side and scrunching up his face with his

mouth open. He does it most often when bored but there's really no

set pattern. He used to do it mostly in the evening, but now its all

day. Whats most scary is that he seems to have absolutely no

control over it.

>

> He also seems to have developed a sound sensitivity, which he

has NEVER had (cvering ears) His social anxiety seems to be

increasing a bit, too, having a harder time in school and dealing

with other kids. Overall, it seems to be a total increase in his

SI issues. I've tried brushing and more OT stuff to no avail. Only

new med is an increase in Famvir and adding IMGG to try and get the

HHV6 down more (now at 40, down from 80) But the regression started

before either of these med changes.

>

> My theories:

>

> 1. Environmental allergies throwing his system totally out of

whack. We live in the foothills and its BAD right now, Zyrtec keeps

him dry at night but not during the day, and doesn't seem to curb

the itching eyes, sneezing, etc. When we play outside he gets

totally stuffy. Regression started when everything got green......

I have EAs too and I've never been this bad.

>

> 2. Yeast? Only time I've seen him this stimmy was during die

off with Diflucan. We switched from Nizoral a few mos. ago and I've

always thought the Nizoral kept his stools more normal. Once on the

Diflucan, he seemed to grow more sensitive to foods/break out in

minor eczema for no obvious reason.......??

>

> 3. SSRI not right? Celexa was great for improving creative

thought at first, but seems to have lost its effect to some degree.

SSRIS helped with social anxiety, but that's coming back now, too.

>

> 5. Viral count up? I doubt this, as viral issues for us have

never really been connected to SI issues.

>

> Any insight/random thoughts/experiences would be

appreciated. We have a phone consult next week. I'd really like to

get him back on track before I have this baby in a few weeks!! A

newborn and a compulsively flapping/running preschooler together

might send me over the edge, LOL

>

> thanks,,, Becky

>

>

>

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My oldest did almost the same thing right after Christmas and I had

the same list of possibilities you do. I had a strep test done, which

was normal. We tried another round of anti-fungals, which didn't

help. I've finally decided it was allergies. He's allergic to mold.

We had a really wet winter and where we live it doesn't get cold

enough to kill mold. Once it warmed up & dried out, the stimming,

flapping (which he had NEVER done before) & noise sensativity went

away. If you have a lot of allergens right now, that may be it.

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